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gigi50's Recent CancerCompass Activity

  • gigi50 has replied to a post on the message board

    Sorry to hear about your Mom. It sounds like things are moving quickly for her. Erratic behavior is absolutely something that GBM patients experience or display.  It is hard for the caregiver as you might be the brunt of outbursts as well. There will be a point where you will want to have someone around her at all times. Maybe not necessarily in the room but available. For my husband the loss of driving is ...

    August 07 at 2:21 PM view post
    • gigi50 has replied to a post on the message board

      Thanks for your note....its a rough road no matter how long...84 days is very fast...not going to get better so i guess better to realize that and deal with it head on... Thanks again!

      August 07 at 1:27 AM view post
      • gigi50 has replied to a post on the message board

        My spelling above is awful....darn ipad .....

        August 04 at 1:35 PM view post
        • gigi50 has created a new message board discussion

          My husband is 20 months into a diagnosis of his GBM. This is his 2nd brain tumour, he had a AA3 almost 14 years ago plus has CML (leukemia) and had prostate cancer. Toughest guy I know. Unfortunately his Tumor has grown and is now multiple tumours, he starts back on temodal tomorrow. His condition is deteriorating, he is putting on a brave face for our 3 kids (22,20 and 18). Last night he was moaning and complai...

          August 04 at 1:15 PM view discussion
          • gigi50 has replied to a post on the message board

            Ted Kennedy died of a GBM, lots of money, power, friends in high places, not sure it makes a difference who you are....maybe he lived a few more months longer than someone else....a GBM is a GBM...

            July 14, 2013 view post
            • gigi50 has replied to a post on the message board

              my husband was diagnosed with an anaplastic astrocytoma 13 years ago....surgery and radiation and 11 years later...did very well..was diagnosed with a GBM 18 months ago...

              July 08, 2013 view post
              • gigi50 has replied to a post on the message board

                thank you.

                July 08, 2013 view post
                • gigi50 has replied to a post on the message board

                  My husband was on steroids 13 years ago while going through radiation for his Anaplastic Astrocytoma....Decadron was a horrible drug...it did change his personality and he did take it out on the ones closest to him...he recognized it after he was weaned off and said that had he known the sideeffects when they suggested it he likely would have delayed starting them. He was diagnosed with a GBM 16 months ago...has not...

                  April 28, 2013 view post
                  • gigi50 has created a new message board discussion

                    My husband had his first diagnosis of AAgrade 3 13 yrs ago + cml (leukaemia) + prostate cancer and now dec 2011 dx of gbm. Had a brain port procedure last yr, radiation, and 5 months of temador which made him very sick... Stopped last October, some changes on MRI but still don't know what enhancements are so being watched monthly by oncologists. Here's the issue: over the past 2 years can only focus on things t...

                    January 30, 2013 view discussion
                    • gigi50 has created a new message board discussion

                      My husband had an MRI 3 weeks ago and the results came in which indicated a change from the last MRI in August but could be post radiation/surgical symptoms. He was diagnosed 1 year ago with a GBM (this is his 2nd brain tumor in 13 years), inoperable but had a procedure done here in Canada (brain port) that allowed them to remove the tumor, had 5 weeks radiation, has had about 4-5 months temodal but has stopped for ...

                      December 01, 2012 view discussion
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                      About gigi50

                      Caregiver
                      Brain Cancer

                      wife of 25 years, caregiver for 13 years, husband has had 2 brain tumours, CML (leukemia) and prostate cancer, GBM dx dec'11

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