So it's not just me! Yes, I have gained weight. About 30 pounds! I have always been able to control my weight with diet and exercise, and now, no matter what I do, I can barely take off 5 pounds. Very frustrating! I'm sure part of it is that I no longer work, but I know my habits and body and it doesn't add up. If you learn anything, please let me know. God bless your journey.
Yes, I am on Sandostatin. I do have the discomfort that you are speaking of, but these pains are different. They are sharp pains. I appreciate your input though.
Hi , I have a tumor with mets to lymph nodes, small spots on liver and in my bones. Does anyone get sharp pains? I get them in no specific place, just here and there and then gone. I don't think these are my bones, those feel like bruising. Thanks, and God bless you all.
I'm so sorry to hear of your loss. I have a question. Where was your wifes tumors and the spread when she had started the sandostatin, and how long after that had she passed? I hope I'm not being insensative, it is just very difficult to find this kind of info. I have a tumor on my small intestine, spread to lymph nodes, small spots on liver and quite a few spots in the bone. I am very fortunate that I ha...
I'm not an expert, but what I've learned is the Sandostatin controls the symptoms of flushing and the diarhea, and has been known to slow down the growth of the carcinoid cancer. In my opininion the positive effects much outweigh the negative sides. My cancer has pretty much stopped growing, and I live a pretty normal life. The key is to always try to keep positive. God bless you.
I have been on Sandostatin since the beginning of 2009. It is still working for me, I have had virtually no growth since then
I have been on Sandostatin dose of 40 every 4 weeks since the beginning of 2009. In the beginning I would be very tired for a couple of days after the shot, that has now gone away. One of the things Sandostatin does is helps diahrea. If you have a history of constipation, it back fires and I need LOTS of products to help me, but is under control. I also get nauseas on a pretty regular basis, but the anti ...
Hi , I was diagnosed with carcinoid syndrome 2 1/2 years ago. Tumor on my small intestine, metast. to my lymphnoides, bones, and small spots on my liver. I am getting 40 sandostatin every 4 weeks. I've always been active to try to keep my weight down, in a healthy way. I've noticed my abdomen swelling about 1 1/2 years ago. I amped up my work out and started dieting form Jan- Jun with no luck losing any weight. I fin...
I have carcinoid syndrome,stage 4, diagnosed 2009.
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