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gobarb26's Recent CancerCompass Activity

  • gobarb26 has replied to a post on the message board

    I was born into a Jewish family and was very active in my youth group and Sunday school while I was in high school. However, I always felt empty...I didn't believe in God!  I searched for many years, comparing religions and decided that I just couldn't find anything to help me believe that God was there.  I have been a spiritual person and I thought if there was a God, it must be nature.  Well, go back...

    June 21 at 2:49 AM view post
    • gobarb26 has replied to a post on the message board

      Funny you should mention about your eyes.  I too have noticed that.  My Doc wasn't sure if it was connected to the Rev., but I just got new glasses this summer and a few months later, they were not very effective.  I am about to make an appt. with the Opthomologist to have them checked again. I was on RVD therapy at the onset of my MM in Jan. 2011.  I had 2 stem cell transplants in July and Oct. 2...

      January 04, 2013 view post
      • gobarb26 has replied to a post on the message board

        Hi Hop.  I went on a 10 night cruise and came down with a cold, the last day. The day after we got back, I had to be at Moffitt for my 12 mth. bone marrow biopsy and bone scan.  My bloodwork came back with elevated liver enzymes.  I was taken off the Rev. until I return on Jan. 7.  I am still in remission and they think the elevated enzymes were a result of my cold.  I have noticed some chang...

        January 04, 2013 view post
        • gobarb26 has replied to a post on the message board

          What a bummer that you are still in the hospital.  You will be in my prayers.  Hopefully, your Christmas will be better than your Thanksgiving! Barb

          December 01, 2012 view post
          • gobarb26 has replied to a post on the message board

            I am so sorry to hear that you are in the hospital again.  I just hate when that happens!  Hope you are feeling better and can go home very soon!

            November 22, 2012 view post
            • gobarb26 has replied to a post on the message board

              I am on a clinical trial for Lenolidimide (Revlimed).  I am also getting Zometta infusions monthly.  I have had some problems with the Rev. since I started it after my diagnosis last year.  At first it was constipation so severe that I ended up in the hospital for 8 days.  This year, about  3 months after I started my maintenance (after my second SCT), they increased my dose and I started hav...

              November 16, 2012 view post
              • gobarb26 has replied to a post on the message board

                I have been going to Moffitt Cancer Center in Tampa.  It is a national cancer institute (NCI).  I love everyone there.  Their care is very thorough and the Drs. are great!  Excellent reputation.

                November 16, 2012 view post
                • gobarb26 has replied to a post on the message board

                  I, also, go to Moffitt Cancer Center in Tampa.  I started out with Dr. Baz and then when I started my transplants, I started seeing Dr. Ochoa.  He is wonderful!  I spent a lot of time there in the last year and a half.  I am on a clinical trial so I had to go monthly.  Now, I am going to my local Dr. for 2 months and then back to Moffitt on the third month. Everyone there is wonderful and you...

                  November 01, 2012 view post
                  • gobarb26 has replied to a post on the message board

                    I had 2 autologous transplants last July and Oct.  I am on Rev. only.  I am on a clinical trial so don't have to pay for it.  I have not had any problems with it since April, this year.  I started the Rev. for the trial in Jan. (3 months post last transplant). The trial lasts for at least 3 years so we will see if I stay in Remission the whole time. 

                    October 25, 2012 view post
                    • gobarb26 has replied to a post on the message board

                      I have been on just Revlimed (no dex or velcade) since Jan. Before that, I did 4 months of RVD.  During my RVD, I ended up with severe Constipation.  It was so bad that I had to go by ambulance to the hospital.  (I was there for 8 days.) Since I started my maintenance, (post tandem transplants), I take it every single day. No time off.  The only problem I have had was high fevers and ended up in t...

                      October 11, 2012 view post
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                      About gobarb26

                      Patient
                      Multiple Myeloma
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Insurance, Lifestyle, Side Effects, Spiritual Support, Cancer Nutrition

                      Hi. My name is Barbara and I was just diagnosed with Multiple Myeloma a week ago. I have been fundraising for the Leukemia & Lymphoma Society for 10 years through Team in Training. I never would have thought that I would be on the receiving end of the society! I am 61 years old and I work as a massage therapist. I have been having terrible pains for 7 months. About 3 months ago, I was diagnosed with Costochondritis and Fibromyalgia. Luckily, I went to a pain management dr. who said she wanted to do more tests to rule out anything more dangerous. After 2 more months, my medical doctor sent me to a Hematologist/Oncologist and he did a bone marrow biopsy and FINALLY gave me the cancer diagnosis. I am still getting tests to find out the stage and kidney function, but he said 80% of my bone marrow is affected. This doesn't sound good to me. He wants to treat this aggressively and I am starting chemo next Tues. So far, I have not talked with any one who has had this type of cancer so I am glad to find this support group. Hopefully, I will be able to connect with others who are going through this and who have gone into remission. Thank you all for your time. I will be back frequently, I am sure.

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