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granny5's Recent CancerCompass Activity

  • granny5 has replied to a post on the message board

    CMML is very rare!  I was diagnosed with it 3.5 years ago. My symtoms were extreme tiredness and pain in my legs, plus bruising, of course.  I was recommended to go to Hackensack University Medical Center in Hackensack, NJ. They are the best!!  I had a bone marrow transplant on September 1, 2011.  I will still see the doctor for a year and a half and then will be considered 'cured.'  I'm grat...

    January 08 at 3:58 AM view post
    • granny5 has replied to a post on the message board

      3.5 years ago I had a bone marrow transplant due to chronic myleomonocitic leukemia (CMML).  While in the hospital I would wake up in the middle of the night drenched in sweat to the point where the nurses would kindly change my sheets.  Happily they did stop.  I did have some trouble sleeping after I came home from the hospital, but did not have nightmare.  Hang in there, Val, things will get bet...

      January 08 at 3:43 AM view post
      • granny5 has replied to a post on the message board

        Ed, I am so glad to hear about June. Dr. Scott Rowley was my transplant doctor too. He's a very good doctor and the nurses at Hackensack Hospital are amazing! I am glad to hear she is doing somewhat better. Pleas tell her Linda who had her bmt at her hospital is praying for her. We've talked on this website a number of times. Linda

        May 18 at 2:23 AM view post
        • granny5 has replied to a post on the message board

          I am the Linda who did have the BMT 2.5 years ago and have done really well.  There is a risk involved.  There were four of us who got to know each other.  Two of us did and still are doing really well.  The other two didn't make it pretty early on. My doctor told me that the Dacogen I was on might work for another two years but that I would be in trouble if it did stop.  I went aheadand had ...

          April 24 at 3:19 AM view post
          • granny5 has replied to a post on the message board

            I had a bone marrow transplant for CMML on 9/1/11 when I was 63 years old.  Dr. Goldberg at Hackensack University Medical Center I was young enough to have lots of life left and he encouraged me to have it.  Yes, my donor was a ten out of ten match.  And I had a match in just two weeks?  Linda

            April 18 at 3:12 PM view post
            • granny5 has replied to a post on the message board

              June, SOOOOOOOOOoooooooooooo glad you are doing so well!!!  I only go to Hackensack every three months now.  The actual transplant is really not a big deal.  My son was planning to come for mine, and I told him not to come.  If your head is cold, get a hat.  I had several and wore one of them pretty much all the time.  By the end of my stay there I was getting really bored, but watched ...

              April 16 at 9:10 PM view post
              • granny5 has replied to a post on the message board

                June, I'm so glad you had the transplant.  The actual transplanting of the cells really is NO big deal!  I had pneumonia for the first time in my life this past winter.  I asked my last visit what level of immunity I now have and my nurse practitioner, Melissa, said she thought it was about 75%.  I had no clue.  I now only have to go to Hackensack every 3 months!  Please keep us updated...

                April 09 at 11:17 PM view post
                • granny5 has replied to a post on the message board

                  Soooo glad to hear from you,  Will you lose your hair from the chemo?  I did and it came in so different, and better than it was.  Dr.Goldberg has a video on www.youtube.com.  I can't say enough about him and that hospital.  I had pneumonia two weeks ago - for the first time ever!  Please keep in touch!  I'm praying for you.  Linda

                  January 27, 2014 view post
                  • granny5 has replied to a post on the message board

                    Yes this is Linda who had a BMT Hackensack University.

                    January 26, 2014 view post
                    • granny5 has replied to a post on the message board

                      Hi June,  Glad to hear you are continuing with Hackensack Hospital.  Please keep me posted - I think about you often and hope you are doing well.  I even told my nurse practitioner, Melissa, about you.  If you need to have a bone marrow biopsy, ask for Phyllis.  She does it virtually pain free! Linda

                      January 24, 2014 view post
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