Loading...

granny5's Recent CancerCompass Activity

  • granny5 has replied to a post on the message board

    Ed, I am so glad to hear about June. Dr. Scott Rowley was my transplant doctor too. He's a very good doctor and the nurses at Hackensack Hospital are amazing! I am glad to hear she is doing somewhat better. Pleas tell her Linda who had her bmt at her hospital is praying for her. We've talked on this website a number of times. Linda

    May 18 at 2:23 AM view post
    • granny5 has replied to a post on the message board

      I am the Linda who did have the BMT 2.5 years ago and have done really well.  There is a risk involved.  There were four of us who got to know each other.  Two of us did and still are doing really well.  The other two didn't make it pretty early on. My doctor told me that the Dacogen I was on might work for another two years but that I would be in trouble if it did stop.  I went aheadand had ...

      April 24 at 3:19 AM view post
      • granny5 has replied to a post on the message board

        I had a bone marrow transplant for CMML on 9/1/11 when I was 63 years old.  Dr. Goldberg at Hackensack University Medical Center I was young enough to have lots of life left and he encouraged me to have it.  Yes, my donor was a ten out of ten match.  And I had a match in just two weeks?  Linda

        April 18 at 3:12 PM view post
        • granny5 has replied to a post on the message board

          June, SOOOOOOOOOoooooooooooo glad you are doing so well!!!  I only go to Hackensack every three months now.  The actual transplant is really not a big deal.  My son was planning to come for mine, and I told him not to come.  If your head is cold, get a hat.  I had several and wore one of them pretty much all the time.  By the end of my stay there I was getting really bored, but watched ...

          April 16 at 9:10 PM view post
          • granny5 has replied to a post on the message board

            June, I'm so glad you had the transplant.  The actual transplanting of the cells really is NO big deal!  I had pneumonia for the first time in my life this past winter.  I asked my last visit what level of immunity I now have and my nurse practitioner, Melissa, said she thought it was about 75%.  I had no clue.  I now only have to go to Hackensack every 3 months!  Please keep us updated...

            April 09 at 11:17 PM view post
            • granny5 has replied to a post on the message board

              Soooo glad to hear from you,  Will you lose your hair from the chemo?  I did and it came in so different, and better than it was.  Dr.Goldberg has a video on www.youtube.com.  I can't say enough about him and that hospital.  I had pneumonia two weeks ago - for the first time ever!  Please keep in touch!  I'm praying for you.  Linda

              January 27 at 3:50 AM view post
              • granny5 has replied to a post on the message board

                Yes this is Linda who had a BMT Hackensack University.

                January 26 at 3:20 AM view post
                • granny5 has replied to a post on the message board

                  Hi June,  Glad to hear you are continuing with Hackensack Hospital.  Please keep me posted - I think about you often and hope you are doing well.  I even told my nurse practitioner, Melissa, about you.  If you need to have a bone marrow biopsy, ask for Phyllis.  She does it virtually pain free! Linda

                  January 24 at 4:23 PM view post
                  • granny5 has replied to a post on the message board

                    My precancer, as my doctor called it, was DCIS stage 0.  What I forgot to mention (duh!) was that 2.5 years ago I was ciagnosed with CMML (chronic myelomonocitic leukemia).  They caught it very early and I had a bone marrow transplant. which included very high doses of chemo to 'kill' my own diseased bone marrow.  I took a ton of medication for several years including prednisone for a year and a half. ...

                    December 09 at 8:15 PM view post
                    • granny5 has replied to a post on the message board

                      I was diagnosed in August of 2013 with insitu Stage 0 breast cancer or precancer.  I can't remember the exact name.  Anyway I had two lumpectomies and my surgeon strongly urged me to see a medical oncologist who recommended taking Tamoxifen and a radiation oncologist who recommended radiation.  After the surgery the borders were clean and since it was stage 0, I'm leaning toward doing no further treatm...

                      December 09 at 2:29 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About granny5

                      granny5 has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.