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granny5's Recent CancerCompass Activity

  • granny5 has created a new message board discussion

    I wonder if anyone has experience with this medication.  My doctor is concerned about me getting osteoporosis since my numbers indicate I''m close to having it.  Taking calcium pills in addition to Boniva doesn't seem to be helping very much.  I recently started taking Arimedex to hopefully prevent any more problems.  1.5 years ago I had DCIS and had two lumpectomies.  My doctor, as well as t...

    April 22 at 7:37 PM view discussion
    • granny5 has replied to a post on the message board

      I've been reading all these posts about Arimidex and want to know what the terrible side effects people are talking about.  I've been on it for 3 weeks now and the only really annoying side effects are dizziness when I stand up and being hot, but not all the time.  I'm interested in knowing what side effects people are having and how they are dealing with them.  Linda

      March 22 at 8:14 PM view post
      • granny5 has replied to a post on the message board

        I'm so glad you know where you are going when you die!  See you there!  Linda

        March 22 at 8:09 PM view post
        • granny5 has created a new message board discussion

          I'm sure this has been discussed before, but I've recently been given a prescription for Arimidex.  To give you a very brief history, 3.5 years ago I had a bone marrow biopsy for leukemia (CMML).  15 months ago I had two lumpectomies for stage 0 breast cancer.  The margins were clean and I decided not to have any further treatment.  It's a long story but I now have a new doctor who would like me t...

          February 17 at 4:30 PM view discussion
          • granny5 has replied to a post on the message board

            CMML is very rare!  I was diagnosed with it 3.5 years ago. My symtoms were extreme tiredness and pain in my legs, plus bruising, of course.  I was recommended to go to Hackensack University Medical Center in Hackensack, NJ. They are the best!!  I had a bone marrow transplant on September 1, 2011.  I will still see the doctor for a year and a half and then will be considered 'cured.'  I'm grat...

            January 08 at 3:58 AM view post
            • granny5 has replied to a post on the message board

              3.5 years ago I had a bone marrow transplant due to chronic myleomonocitic leukemia (CMML).  While in the hospital I would wake up in the middle of the night drenched in sweat to the point where the nurses would kindly change my sheets.  Happily they did stop.  I did have some trouble sleeping after I came home from the hospital, but did not have nightmare.  Hang in there, Val, things will get bet...

              January 08 at 3:43 AM view post
              • granny5 has replied to a post on the message board

                Ed, I am so glad to hear about June. Dr. Scott Rowley was my transplant doctor too. He's a very good doctor and the nurses at Hackensack Hospital are amazing! I am glad to hear she is doing somewhat better. Pleas tell her Linda who had her bmt at her hospital is praying for her. We've talked on this website a number of times. Linda

                May 18, 2014 view post
                • granny5 has replied to a post on the message board

                  I am the Linda who did have the BMT 2.5 years ago and have done really well.  There is a risk involved.  There were four of us who got to know each other.  Two of us did and still are doing really well.  The other two didn't make it pretty early on. My doctor told me that the Dacogen I was on might work for another two years but that I would be in trouble if it did stop.  I went aheadand had ...

                  April 24, 2014 view post
                  • granny5 has replied to a post on the message board

                    I had a bone marrow transplant for CMML on 9/1/11 when I was 63 years old.  Dr. Goldberg at Hackensack University Medical Center I was young enough to have lots of life left and he encouraged me to have it.  Yes, my donor was a ten out of ten match.  And I had a match in just two weeks?  Linda

                    April 18, 2014 view post
                    • granny5 has replied to a post on the message board

                      June, SOOOOOOOOOoooooooooooo glad you are doing so well!!!  I only go to Hackensack every three months now.  The actual transplant is really not a big deal.  My son was planning to come for mine, and I told him not to come.  If your head is cold, get a hat.  I had several and wore one of them pretty much all the time.  By the end of my stay there I was getting really bored, but watched ...

                      April 16, 2014 view post
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