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granny5's Recent CancerCompass Activity

  • granny5 has replied to a post on the message board

    June, SOOOOOOOOOoooooooooooo glad you are doing so well!!!  I only go to Hackensack every three months now.  The actual transplant is really not a big deal.  My son was planning to come for mine, and I told him not to come.  If your head is cold, get a hat.  I had several and wore one of them pretty much all the time.  By the end of my stay there I was getting really bored, but watched ...

    Yesterday at 9:10 PM view post
    • granny5 has replied to a post on the message board

      June, I'm so glad you had the transplant.  The actual transplanting of the cells really is NO big deal!  I had pneumonia for the first time in my life this past winter.  I asked my last visit what level of immunity I now have and my nurse practitioner, Melissa, said she thought it was about 75%.  I had no clue.  I now only have to go to Hackensack every 3 months!  Please keep us updated...

      April 09 at 11:17 PM view post
      • granny5 has replied to a post on the message board

        Soooo glad to hear from you,  Will you lose your hair from the chemo?  I did and it came in so different, and better than it was.  Dr.Goldberg has a video on www.youtube.com.  I can't say enough about him and that hospital.  I had pneumonia two weeks ago - for the first time ever!  Please keep in touch!  I'm praying for you.  Linda

        January 27 at 3:50 AM view post
        • granny5 has replied to a post on the message board

          Yes this is Linda who had a BMT Hackensack University.

          January 26 at 3:20 AM view post
          • granny5 has replied to a post on the message board

            Hi June,  Glad to hear you are continuing with Hackensack Hospital.  Please keep me posted - I think about you often and hope you are doing well.  I even told my nurse practitioner, Melissa, about you.  If you need to have a bone marrow biopsy, ask for Phyllis.  She does it virtually pain free! Linda

            January 24 at 4:23 PM view post
            • granny5 has replied to a post on the message board

              My precancer, as my doctor called it, was DCIS stage 0.  What I forgot to mention (duh!) was that 2.5 years ago I was ciagnosed with CMML (chronic myelomonocitic leukemia).  They caught it very early and I had a bone marrow transplant. which included very high doses of chemo to 'kill' my own diseased bone marrow.  I took a ton of medication for several years including prednisone for a year and a half. ...

              December 09 at 8:15 PM view post
              • granny5 has replied to a post on the message board

                I was diagnosed in August of 2013 with insitu Stage 0 breast cancer or precancer.  I can't remember the exact name.  Anyway I had two lumpectomies and my surgeon strongly urged me to see a medical oncologist who recommended taking Tamoxifen and a radiation oncologist who recommended radiation.  After the surgery the borders were clean and since it was stage 0, I'm leaning toward doing no further treatm...

                December 09 at 2:29 AM view post
                • granny5 has replied to a post on the message board

                  Hi June I'm so glad to read your posts.  Are you going to have the bone marrow transplant?  If do, do you know when?  I was diagnosed with a precancer of the breast.  I had two lumpectomies that were much easier than I expected.  My dr. in Hackensack called this a 'secondary cancer.'  My surgeon really wants me to have radiation, but I'm not at all sure about that.  I have an appoi...

                  November 14 at 4:52 AM view post
                  • granny5 has replied to a post on the message board

                    Hi June, I am curious to hear what is going on with your potential bone marrow transplant.  Linda

                    September 18 at 1:31 AM view post
                    • granny5 has replied to a post on the message board

                      June, I'm not positive but I think she was at least 65.  She had been sick for quite a while.  I basically didn't have a chance.  The dr. told me the chemo was on might work for 2 years, but then could stop working and then I'd be in real trouble.  Linda

                      August 22 at 6:04 PM view post
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