On Sep 29, 2011 1:02 AM LadyBugzNface wrote:
Hello everyone, My name is Trisha, and my husband was diagnosed with RCC in 2009! His symptoms started while we were on vacation, he started peeing blood. So we headed home and in our local hospital emergency department, thru cat scan and ultrasound, they found a football size tumor on his right kidney. We were refered to a urologist, who then booked him for a radical left nepherectomy. Sept. 13,2009 my husband had his surgery, did well thru surgery, as they told him in our follow up appointment that they got it all, and that he was 95% cured!! And would need follow ups every 6 months for at least 2 years.
Nevertheless they wanted my husband to come in for a follow up Cat scan, and low and behold they found a spot in his pancreas, mets from the RCC, they decided to watch it for a bit and one spot turned into 4 spots, in the body, tail and 2 in the head of the pancreas. As of Sept 16,2010 my husband had the Wiple procedure, he is now Type 1 diabetic. When he went for his follow up tests, they discovered his RCC has spread to his left lung. We then were referred to a thorasic surgen, who then booked my husband for the RCC mets to be removed thru laparoscopy. April 2011. It was a successful venture.
As we went for his follow up cat scans, they discovered the RCC has metastisized to his right lung, lymph nodes, and his left kidney as the choose then to tell us, that the RCC in his left kidney has been there, but they decided to keep an eye on it, well it grew, its the size of a golf ball.
After many appointments later, he was refered to our Oncologist. So basically they told us, he had between 2 weeks and 5 Years! (Its already been 2 years). They finally tell us, He is stage IV RCC. And from the research of myself and our oncologist, as well as the tumor board, but my husband has a rare type of RCC. And Sutent is the last thing. As he is palliative..
As of now Sept 28/11, My husband has started his third round of Sutent 50mg. He goes for his follow up cat scan in the next few weeks! keepin fingures crossed!!
My thoughts and prayers go to everyone!!
Hugz Trisha