heartxplant

heartxplant's Recent CancerCompass Activity

• heartxplant has replied to a post on the message board

  Great, good luck and God bless

  July 01 at 10:29 AM view post

• heartxplant has replied to a post on the message board

  If it turns out they "missed" aortic stenosis, switch doctors quickly, cause I can teach a housekeeper here at the hospital to see AS in 5 minutes!

  June 21 at 8:47 PM view post

• heartxplant has replied to a post on the message board

  Aortic Stenosis is medically treated with Bets Blockers to reduce the heart rate and blood pressure, Aspirin, Statin to reduce inflammation and eventual replacement of the valve!

  June 21 at 8:44 PM view post

• heartxplant has replied to a post on the message board

  No inhalers for me, my PFTs are in the 75% of predicted. Some of my shortness of breath is due to my Aortic Stenosis. Not ready for a valve yet, but I'm not going to edit till my ventricle is a bag of poop either. Cardiologists have a habit of "medically treating" a surgical disease for too long of a period. Nobody wants surgery, but if it's inevitable you might as well do it when you still have a somewhat healthy h...

  June 21 at 3:55 AM view post

• heartxplant has replied to a post on the message board

  If you haven't already, I would suggest you get Pulmonary Function Tests (PFTs) to see if you have intrinsic lung disease or is it coming from your heart. We all have some degree of fibrosis in the hilium (area where the vessels and airways enter the lungs from the mediastinum). This is thanks to the RT. Depending on how many Gy you received and how extensive your lung filed blocks were will determine how much fibros...

  June 19 at 10:02 PM view post

• heartxplant has replied to a post on the message board

  I'll assume your Doc heard a mumur and not "heart a rumor" lol You don't get mumurs from blocked brachioradialis. That is a muscle in your forearm. One of your veins in the upper extremity may have been blocked, but you still do not get a mumur from it. My guess is if you received RT, you most probably have Aortic Stenosis or Mitral Regurg.

  June 19 at 1:59 PM view post

• heartxplant has replied to a post on the message board

  Have no fear Katiem, you have a 90% chance of a cure! Not many cancers can say that. If you have to get cancer, Hodgkins is the one! I'm a 34 year survivor on traditional Cobalt RT! I too had stage II. No Chemo, and few RT late effects (big deal). The "beauty" of Hodgkins, it's very rapid growing! It grows big quickly...and shrinks even more quickly from treatment. After 1 round of chemo, you're mediastinal tumor wi...

  May 23, 2012 view post

• heartxplant has created a new message board discussion

  My time you find a late effects Physician, you'd be dead! If you had RT only, it's the post secondary cancers you're to watch for: Skin (over RT areas), Bone, Lung are the biggest, sometimes brain if the fields went high in the neck. In addition, pulmonary fibrosis and heart issues: heart block (like me), premature CAD=>leading to heart attacks, valve stenosis (radiation valvulitis), and myocarditis (from fibrosis...

  May 23, 2012 view discussion

• heartxplant has replied to a post on the message board

  Hi Scott, I'd have an Echo, Exercise Stress and even a Calcium Scoring CT scan (no contrast). Depending on your insurance (assuming you have some), I'd prioritize with the Echo first, then the stress. I'm also assuming you had RT of the Chest.  As far as me, after the PPM was put in, I became very susceptible to Atrial Fib. I think it's where they placed the Atrial Wire...its causing irritation in the Atrial. ...

  May 23, 2012 view post

• heartxplant has replied to a post on the message board

  Hi and congrats on your "New" 20 Years! I am a 52 YO male medical professional who had Hodgkins when I was 17 in 1977. I am at 34 years next month! I had Stage 2A Nodular Sclerosis (neck and mediastinum) treated only with RT. No laparotomy or splenectomy. They did do para-aortic and spleen RT after Mantle Cobalt (in lieu of a Lap and Splenectomy). I have been blessed with many years of good health. My Thyroid has bee...

  May 22, 2012 view post