herrmajo

herrmajo's Recent CancerCompass Activity

• herrmajo has replied to a post on the message board

  I'm so sorry for your loss. My sweety passed almost 2yrs. ago from GBM also. What a roller coaster, huh? Well this damn grieving process is quite the roller coaster ride also, just a different ride. It's only been 2 months for you, the tears will flow and you will wonder where and how they keep coming and will it ever stop. Early on when I got really bent out of shape, I'd call the girls from hospice and they would g...

  April 25 at 4:43 AM view post

• herrmajo has replied to a post on the message board

  So happy that you are finally finding answers, I'm sure not what you want to hear but knowing is sure better than the unknown.Praying that they get to the bottom of it and can treat him to address the issues, and above all it works and gives him back quality of life. Go braves and he seems to be very brave and upbeat........hope he enjoys the game and is able to keep that smile on his face. Go Matt, go! Joyce

  April 06 at 4:23 AM view post

• herrmajo has replied to a post on the message board

  I feel your pain. GBM is the nastiest thing I ever went through with my loved one. I also have days that I say I wish I woulda, coulda..........but you know it does nothing to go down that road as I truly believe that this journey is not only a learning experience as we go, but also a learning experience for the doctors. So many unknowns about it. When I get in that mode I try, and not always successful, but to try a...

  March 23 at 7:04 PM view post

• herrmajo has replied to a post on the message board

  If you go back in this forum, I would say a little over 2 yrs ago there are posts there that I got info from for your issue. Has to do with when you take your anti-nausea meds, the temodar and food. I do remember though that bananas did help with that but if you can get your schedule of stuff right, hopefully you won't have to throwing up and relying on foods to settle it down. Good luck! Joyce

  March 23 at 5:14 AM view post

• herrmajo has replied to a post on the message board

  As for the showering/bathing thing I feel your pain. Kevin was 6'2'' and almost the same weight and that was a buggerg getting him in and out and he also developed a little bit of an attitude about it so I did it once and then called in homecare that would come in once a week to help me bathe him. As much as I thought he would not like an outside person helping us with that it went well, they know all the little...

  March 23 at 4:59 AM view post

• herrmajo has replied to a post on the message board

  I would strongly suggest hooking up with the hospice people and getting to know them and them you before the need arises. Learning what it's all about and how they work. Just do it and it will give you some kind of weird kinda peace knowing that it will only be a phone call away when the need arises and hopefully you won't need it for a long time. Best wishes and prayers to you and your husband and family in your jou...

  March 22 at 5:00 AM view post

• herrmajo has replied to a post on the message board

  Soo sorry for your loss! It's a tough road this healing thing. I did the same thing for a little bit, but only for a couple weeks.And then I said this is not helping anything, and I started reaching out to family and friends and it helps tremendously! Spend time with your family and talk about the good things you remember about Dad and there surely are some funny stories that you and your family can share about him.....

  March 18 at 6:33 PM view post

• herrmajo has replied to a post on the message board

  Have they taken into consideration the location of his tumor?My Kevin started the vomiting thing and it was the tumor jazzin' up signals from his brain, not anything physically wrong in other parts of his body. It took awhile to find the right med or combination to make it stop, but it did. Wish I knew what that med was, but can't remember for the life of me. Good luck and prayers to all of you! Joyce

  March 18 at 6:06 PM view post

• herrmajo has replied to a post on the message board

  Sorry to hear about your situation. Is Mom on any kind of pain meds such as morphine, fetanol or whatever? Those can cause all the symptoms of paranoia,hallucinations, etc. I hope you have talked to your docs about this. Also and you are not going to like this, and I truly hate to say it but sometimes conversations with those that have been gone,the disorientaion are kind of a sign that things are going downhill...

  March 15 at 4:59 AM view post

• herrmajo has replied to a post on the message board

  I thought the first year was gonna be the worst, but NOT!! this second year has been absolutely miserable in that I have many good days but when I fall, I fall hard and long. musta been something in the air or moon last night because I could not sleep either and cried and  cried over my loss of the love of my life. I wonder daily, if and when the enormous pain will ever go away. Thing is people all around me&nbs...

  March 06 at 6:50 AM view post