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hophop4's Recent CancerCompass Activity

  • Hophop4 has replied to a post on the message board

    The Kyprolis is 2 consecutive days with Dex and the Cytoxin is 1 day a week.  3 weeks on 1 week off. Hop

    Yesterday at 2:03 PM view post
    • Hophop4 has replied to a post on the message board

      I started the Kyprolis with Dex in Feburary and after one cycle my Kappa Light Chains when up slightly so my MDA Doctor added Cytoxin 400 mg oral to the mix.  I went back to MDA after a cycle of this combination and my Kappa Light Chains went from 869 to 129.  My treatments for the next cycle has been put on hold right now until I have Cataract Eye Surgery.  I had the right eye surgery last Tuesday and...

      Yesterday at 1:59 PM view post
      • Hophop4 has replied to a post on the message board

        Glad to hear you are doing very well.  As for the pets, I would be very careful they do not lick you.  I have heard some MM people have sent their pets off to other family's homes for a while.  Have you asked your SCT team about this.  I don't have any pets so have not had this concern.  As for Nuerapathy i'm not sure it ever goes away. I guess it depends how bad it is.  I went for sever...

        Thursday at 4:53 PM view post
        • Hophop4 has replied to a post on the message board

          I am convinced that my eyes got this way due to the Dex.  There is a connection to this even the eye surgeon agreed. Hop

          April 12 at 9:13 PM view post
          • Hophop4 has replied to a post on the message board

            Thanks. I'm scheduled for eye surgery Tuesday but have to get blood cbc for white blood to make sure it doesn't drop down or he will cancel my surgery.  This last combination of drugs seems to be working but I am off everything last week and next couple weeks until eye surgery is complete then will start back up on another cycle. Hop

            April 12 at 9:11 PM view post
            • Hophop4 has replied to a post on the message board

              I am scheduled for this Tues to have Cataract Surgery on right eye and left eye next Tues.  I go in Mon for Pre-op but Mon afternoon I have to go see oncologist for a blood cbc to check the white blood counts.  He said if it drops again and under 2.0 he won't let me do it.  He said he would call the eye doctor if this happens. The white counts went from 6.1 from MDA and now was 3.2.&nbs...

              April 12 at 9:05 PM view post
              • Hophop4 has replied to a post on the message board

                I am back from MDA.  The Kappa Light Chains are down now to 129 from 866 last time (1230 last Oct).  So this combination is working.  The Ratio was high but she said that's ok.  I will do another cycle right after I get the eye surgery done. My wbc is 6.2 haven't seen that high in real long time.  That's good.  Platelets went up a little too.  So should be a go for the eye surgery.&...

                April 04 at 6:40 PM view post
                • Hophop4 has replied to a post on the message board

                  I just finished this week second cycle of Kyprolis/Dex and the Cytoxin was added this cycle time. No real side effects yet from any of this. I went to MDA yesterday for blood labs/urine and go back to see Doc on Friday morning for results.  So far my wbc are up and platelets holding.  I am putting a hold now on treatment because I am scheduled to go in for Cataract Eye Surgery on April 15 and 22.  That...

                  April 03 at 5:35 PM view post
                  • Hophop4 has replied to a post on the message board

                    Could that be Smoldering Myeloma? Hop

                    April 02 at 3:36 AM view post
                    • Hophop4 has replied to a post on the message board

                      I was on Velcade injections for two cycles in November and December and didn't have any of those symtoms but I did have shortness of breath where I couldn't walk few steps and couldn't breathe and I was huffing and puffing real bad.  When I went in to start the third cycle he took off it. I was fine.  Ran lab tests and assume this was not working this time.  I have been on Velcade previously ...

                      April 02 at 3:31 AM view post
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                      About hophop4

                      Patient, Survivor
                      Multiple Myeloma

                      I was diagnosed with Multiple Myeloma October 2006. At that time I had spine surgery for a large tumor on the spine. Had a Stem Cell Transplant March 2009 at MDAnderson in Houston. I am in remission at present time. Started on Thalomid for maintenance on January 20, 2010. I started with a 200 dosage and was dropped to 100 and then on 50 due to my Platelets dropping. I have currently switched to Revlimid 5 mg for maintenance.
                      Update: In March 2011 my test results showed my plasma cells have returned and possibly myeloma is back. Increase of Rev to 25mg and Velcade w/dex was done for one cycle with good results then a second cycle of Rev 25mg and Velcade. I completed 4 cycles of Rev 25 mg and Velcade and should be back in remission. Update: In November 2011 counts were acting up so they added dex 20 mg once a week with the Rev 25 mg and I have been back in remission once again.
                      Latest Update June 2013: Last Nov/Dec I was in the hospital with lung problems and infections. While on antibiotics I stopped my maintenance Rev/Dex. I have been off maintenance now 7 months. Counts are still holding good and both my oncologists agree to continue to keep me off Rev/Dex unless there is change in my counts.

                      Update: August, 2013: It finally happened after being off maintenance 10 months my Kappa Light Chain has increased from 40's to 178. Waiting for treatment plan from both my doctors. Most likely will be Velcade for 4 cycles.

                      Update: Nov. 2013. After being off Rev/Dex for one year I am now on Velcade shots twice a week for two weeks and one week off. I am on my second cycle now and blood labs are showing a good response. Kappa Light Chains went from 1237 to 414. I will do three more cycles after this one then go on maintenance Velcade.

                      Update: Velcade wasn't working so after one month break was put on Kyprolis with Dex and now Cytoxin has been added.

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