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hpy2b's Recent CancerCompass Activity

  • hpy2b has updated their status

    My last brain MRI was a couple of weeks ago, all clear, and today I turned 50 and had the distinct pleasure of having my 2 year old grandson sing the happy birthday song to me. I couldn't ask for a better birthday gift :)

    June 06, 2013
    • hpy2b has replied to a post on the message board

      I agree with you Randy, and I'm happy to hear about the clear MRI's.   

      February 13, 2013 view post
      • hpy2b has replied to a post on the message board

        Thank you Annie.  I wish the best for you, your husband and his fight.

        September 13, 2012 view post
        • hpy2b has replied to a post on the message board

          I'm so sorry to hear about your sisters as well.  Has anyone asked your family to participate in a study to determine how three of them were stricken with this?  It seems very unusual. I hope for the best for your sister.

          September 10, 2012 view post
          • hpy2b has created a new message board discussion

            This month I celebrate my 5 year survival anniversary.  I  resisted posting before because it meant putting more energy into thinking about cancer.  And being on the computer is difficult after being diagnosed with a seizure disorder.  Survivors will tell you (or not) that there is some guilt associated with being here, when others with GBM have lost their battles. So in some w...

            September 03, 2012 view discussion
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            About hpy2b

            Patient, Survivor
            Brain Cancer
            Acupuncture, Alternative Treatments, Cancer Nutrition, Clinical Trials and Research, Diet, Emotional Support, Genetics, Lifestyle, Massage Therapy, Naturopathic Medicine, Recipes, Supplements, After Treatment

            I was diagnosed in 2007 with Stage IV brain cancer. Glioblastoma Multiforme. I had surgery, radiation and chemotherapy (Temodar). And 5 years later, I'm very happy to be alive. I have a seizure disorder, thanks to the tumor's locaton, memory issues which drive me nuts at times, but living a quiet life suits me and I think it's allowed me to focus on my health and well-being and has contributed to the joyful fact that I am outliving the median survival time for GBM. My neurosurgeon was very kind when he gave me the news, he also told me the median survival rate at the time was 2.5 years and told me "GBM always comes back." That quote echos in my brain every day and every day I push it away and say, "not today" and get on with living my life. My MRI's are sheduled at 6 months apart. I'm used to them now and can fall sleep during the scan, but I still get nervous a few days before I go in and start playing the "what if" game. What if this one has a spot? What if this means I need another surgery. So far, so good. I try to eat healthy food, take a few supplements, Tai Chi class twice a week, get enough sleep and keep putting one foot in front of the other to keep moving forward.

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