Loading...

huxley2006's Recent CancerCompass Activity

  • huxley2006 has replied to a post on the message board

    Oh, My surgeon was Dr John  Hu at cedars Sinai. Hux...

    February 25 at 9:12 PM view post
    • huxley2006 has replied to a post on the message board

      I had a surgeon who also resected the extra margins. It’s been 4 years since my last surgery. I can’t say for sure if this made a difference but based on everything I have heard and been told the more they remove the better. You can also ask them if they are going to take sample biopsies around  the margin as well. They did this for me and it gave them an idea if the tumor had infiltrate...

      February 25 at 9:10 PM view post
      • huxley2006 has replied to a post on the message board

        The best way to help is to respect her needs, keep here happy and positive and get her the best medical advice possible. Try to accompany here on all Docter visits and keep notes. Secondary and tertiary opinions are super important . Probably most importantly keep telling her you love her. Huxley.....

        February 21 at 11:15 AM view post
        • huxley2006 has replied to a post on the message board

          I think the most important thing to do is to keep happy. As diet has not been proven to help in any appreciable manner  the last thing you want to do is force a  eating regiment on someone who is already in the midis of a terrifying disease. If this regiment provides them hope and makes them happy then it’s the right thing to do. It’s really about the patient. I think the primary job of the c...

          February 19 at 3:24 PM view post
          • huxley2006 has replied to a post on the message board

            You have a much better chance of being killed in a car crash or falling down and breaking your neck.  Wouldn’t worry about Brain tumors there are many more likely ways that person can succumb. Hope I don’t sound insensitive but that’sthereality.   Hux...

            February 18 at 3:07 PM view post
            • huxley2006 has replied to a post on the message board

              Think it depends on the situation. If you are capable of having a near total resection I would think twice about avastin? If there is significant swelling and a substantial tumor present Avastin at a minimum should help reduce the swelling and provide a better quality of life. I think the jury is still out as to whether avastin can prevent brain tumors but think there is a lot of documented proof that avastin ca...

              February 18 at 2:54 PM view post
              • huxley2006 has replied to a post on the message board

                  Think eat, drink, have an occasional cigar, maybe a Xanax now and then and relax. All too often people who have a condition like this think a life of monk like deprivation, stringent exercise/eating regiments and devoted religious observance is the answer to the "punishment" that has befallen us.   These are all good things but an evening of drinks, friends and fatty foods (and general deba...

                December 23 at 3:38 PM view post
                • huxley2006 has replied to a post on the message board

                  Optune or the Novocure treatment is something that is getting some press right now. It had some (relatively) good results in there clinicals . You can read up on it. It is a fairly invasive device that needs to be worn most of the day.  Stubbs (of the Stubbs protocol) had some positive things to say about. I don’t think there would be an issue with using both Avastin and Optune concurrently. They are very ...

                  December 05 at 2:30 PM view post
                  • huxley2006 has replied to a post on the message board

                    I don’t know anything about this tapping technique but an Occasional Xanax really helped take the edge off during (and after) my treatments.   Hux......  

                    December 03 at 9:08 PM view post
                    • huxley2006 has replied to a post on the message board

                      I will say that Dr Kaley at SK is my NO and he has been Wonderful. I would highly recommend.    Hux....  

                      November 11 at 7:10 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About huxley2006

                      Brain Cancer

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.