huxley2006

huxley2006's Recent CancerCompass Activity

• huxley2006 has replied to a post on the message board

  When I had my tumor removed for many weeks after I was very sensitive to the smell of Garlic. Smelled it on my wife several hrs after she had Pizza and smelled it just about everywhere else. I couldn’t go near an Italian restaurant without becoming nauseas. It subsided once the swelling went down.     Hux....  

  March 05 at 6:12 PM view post

• huxley2006 has replied to a post on the message board

  It normally takes several MRI's to determine if there is true growth. There is no definitive way for doctors to distinguish between treatment effect and growth initially as things get pretty messy once treatment begins. It’s a case of letting the dust settle before they can get a truly accurate reading.   Hux...          

  February 07 at 4:54 PM view post

• huxley2006 has replied to a post on the message board

  Hello Glitzy, So soon after radiation it would difficult to nearly impossible to definitively distinguish pseudo -progression from actual recurrence. Normally the Doctors need to see several successive scans that demonstrate significant growth before they can be sure there is growth. I would be skeptical and get another Dr to look at your husbands scans. Hux...  

  February 06 at 10:03 PM view post

• huxley2006 has replied to a post on the message board

  Hello Lee, Welcome. On this board you will find many others like yourself. There are no dumb questions here. You will find many knowledgeable people who will do their utmost to help. This can be a very confusing and very manic time for you.  Feel free to reach out to us for help. Hux...   Hux....  

  February 06 at 5:57 PM view post

• huxley2006 has replied to a post on the message board

  I experienced pain on the top of my foot and some minor aches in my hands. If I touched or pressed on my foot it was pretty severe pain. I had it for several years.  I came off Kepra approx 6 - 8 months ago and the hand aches are completely gone and the foot pain is about 90% better.   Can’t say for sure what that it was the Kepra but it may be worse asking.   Thanks Hux  

  January 28 at 9:14 PM view post

• huxley2006 has replied to a post on the message board

  Thanks all for the response. I will do what I can to help. Hux...

  January 18 at 10:58 PM view post

• huxley2006 has replied to a post on the message board

  I second John Yu at Cedars. Most of the people mentioned thus far are surgeons not NO's. Think Dr Hu is the NO at Cedars...I think For NO I would recommend Dr Kaley at Sloan. He is hopeful, good humored and generally good natured. In my opinion NO’s are more less cheerleaders. They try something if it doesn't work they try something else. I could probably be my own NO for the most part.  There aren't th...

  January 18 at 8:51 PM view post

• huxley2006 has replied to a post on the message board

  I also would be interested in knowing how she is doing if anyone has information please pass it on.   Hux...  

  January 18 at 8:37 PM view post

• huxley2006 has replied to a post on the message board

  I had that and a GBM Diagnosis. Coming up on 20 years since my initial diagnosis in 93. Maybe one of the better malignant brain tumor diagnosis’s one can have.   Hux...  

  January 08 at 5:59 PM view post

• huxley2006 has replied to a post on the message board

  Caregivers or victims are not really in the best position to know or advise on something like this. This is what our researches and doctors need to find out.

  January 03 at 3:05 PM view post