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huxley2006's Recent CancerCompass Activity

  • huxley2006 has replied to a post on the message board

    I lost my left side peripheral in 1994 (from my first surgery. Over time I have learned to adjust and more or less drive wherever I need to go. It can be very dangerous if you don’t know how to compensate for the loss. Took me many years to get to a place where I feel more or less 100% comfortable driving more or less anywhere. I don’t know if anyone remembers this. But Bob Novak (a famous political ...

    Yesterday at 5:33 PM view post
    • huxley2006 has replied to a post on the message board

      Hello Rule Breaker,   Did you lose youperipheral vision?   Hux...

      July 21 at 6:54 PM view post
      • huxley2006 has replied to a post on the message board

        Lost partial vision in both eyes due to surgery. Was his tumor near the right occipital lobe?  Hux...  

        July 21 at 1:36 PM view post
        • huxley2006 has replied to a post on the message board

          Hello Anders, Sorry to hear about your recurrence. I would think there would be some sort of consultant or health expert who could help you with this. I imagine it would have to be a fairly specialized individual who can provide you input on proper nutrition and exercise (when going though this sort of thing). I will ask my NO at Sloan when I see him.  They seem to offer a lot of these sorts of ancillar...

          July 07 at 3:23 PM view post
          • huxley2006 has replied to a post on the message board

            The timeline is very unpredictable. There  are some broadbased averages that docters can quote to you but in the end the docter doesnt really know any more then then you. Given how little they know about this cancer each case can really be considered unique. There are many long term survivors on this board. They are no different then your husband.        

            June 29 at 7:36 PM view post
            • huxley2006 has replied to a post on the message board

              Hard to say. With a clean scan and no swelling it doesn’t sound like the tumor itself is the issue. Perhaps the steroids or some other medication?  Did he have some sort of stroke or other trauma?  Maybe necrosis from the radiation treatment. By in large Temador alone wouldn’t cause this sort of thing. Consult with another doctor. You are owed more than just "the end is near" Hux... ...

              June 23 at 6:12 PM view post
              • huxley2006 has replied to a post on the message board

                I don't believe Sloan believes in concurrent avastin. In a recent (limited) study it showed no significant benefit by adding a satin to the initial protocol. Believe it or not it really depends on what hospital you go to. NYU was a big proponent of avastin (As part of the initial regiment) few years back. Not sure if they still are. Howard fine is the head guy at NYU if you want to try them as well.

                June 19 at 10:39 AM view post
                • huxley2006 has replied to a post on the message board

                  You can call his office (given on the website) And explain your situation. They will direct you and what course of action you need to take. They may redirect you to a surgeon. A neurosurgeon is usually the first person to provide an opinion on the prior surgery.

                  June 19 at 10:31 AM view post
                  • huxley2006 has replied to a post on the message board

                    Here is a link to my NO at Sloan. https://www.mskcc.org/cancer-care/doctors/thomas-kaley

                    June 13 at 10:55 AM view post
                    • huxley2006 has replied to a post on the message board

                      I actually go to Sloan. My NO there is a good Man, if you would like a recommnedation.  

                      June 12 at 6:20 PM view post
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                      Brain Cancer

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