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huxley2006's Recent CancerCompass Activity

  • huxley2006 has replied to a post on the message board

    An ecapsulated tumor or one with clearly defined boarders is better then one that is less defined.  Usually an encapsulated tumor is associated with lower grade tumors as a more diffuse tumor is associated with higher grade tumors. Necrosis is also associated with higher grad tumors. Usually means the tumor is growing faster than it can feed itself (which causes cell death) Could also be remnants from ra...

    August 28 at 3:15 PM view post
    • huxley2006 has replied to a post on the message board

      90 - 95% chance of surviving the surgery isn’t all that bad. Many people can’t have any sort of surgery and would sell their soul for those odds. Not trying to minimize things but sometimes a different perspective is helpful. HUX....            

      August 19 at 5:14 PM view post
      • huxley2006 has replied to a post on the message board

        Hello Melissa, There are many long term survivors on this site. Circumstances vary  from person to person. Although there are some characteristics (of patient and tumor behavior/location) that suggest  a better chance  to a long term survivorship it is still more or less a mystery why some GBM's are 'less aggressive" and people live significantly more than the averages suggest. There are man...

        August 10 at 2:32 PM view post
        • huxley2006 has replied to a post on the message board

          It is a little inconvenient to utilize. Basically wearing a fairly visible head apparatus something like 18 hrs a day and believe there is a heavy battery  that needs to accompany it. Couldn’t see myself going to work in it (for example) There are definitely some quality of life concerns for. That however may not be a big issue depending on the situation. From what I have read it sounds like it h...

          August 06 at 3:39 PM view post
          • huxley2006 has replied to a post on the message board

            I lost my left side peripheral in 1994 (from my first surgery. Over time I have learned to adjust and more or less drive wherever I need to go. It can be very dangerous if you don’t know how to compensate for the loss. Took me many years to get to a place where I feel more or less 100% comfortable driving more or less anywhere. I don’t know if anyone remembers this. But Bob Novak (a famous political ...

            July 28 at 5:33 PM view post
            • huxley2006 has replied to a post on the message board

              Hello Rule Breaker,   Did you lose youperipheral vision?   Hux...

              July 21 at 6:54 PM view post
              • huxley2006 has replied to a post on the message board

                Lost partial vision in both eyes due to surgery. Was his tumor near the right occipital lobe?  Hux...  

                July 21 at 1:36 PM view post
                • huxley2006 has replied to a post on the message board

                  Hello Anders, Sorry to hear about your recurrence. I would think there would be some sort of consultant or health expert who could help you with this. I imagine it would have to be a fairly specialized individual who can provide you input on proper nutrition and exercise (when going though this sort of thing). I will ask my NO at Sloan when I see him.  They seem to offer a lot of these sorts of ancillar...

                  July 07 at 3:23 PM view post
                  • huxley2006 has replied to a post on the message board

                    The timeline is very unpredictable. There  are some broadbased averages that docters can quote to you but in the end the docter doesnt really know any more then then you. Given how little they know about this cancer each case can really be considered unique. There are many long term survivors on this board. They are no different then your husband.        

                    June 29 at 7:36 PM view post
                    • huxley2006 has replied to a post on the message board

                      Hard to say. With a clean scan and no swelling it doesn’t sound like the tumor itself is the issue. Perhaps the steroids or some other medication?  Did he have some sort of stroke or other trauma?  Maybe necrosis from the radiation treatment. By in large Temador alone wouldn’t cause this sort of thing. Consult with another doctor. You are owed more than just "the end is near" Hux... ...

                      June 23 at 6:12 PM view post
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                      Brain Cancer

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