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huxley2006's Recent CancerCompass Activity

  • huxley2006 has replied to a post on the message board

    Optune or the Novocure treatment is something that is getting some press right now. It had some (relatively) good results in there clinicals . You can read up on it. It is a fairly invasive device that needs to be worn most of the day.  Stubbs (of the Stubbs protocol) had some positive things to say about. I don’t think there would be an issue with using both Avastin and Optune concurrently. They are very ...

    December 05 at 2:30 PM view post
    • huxley2006 has replied to a post on the message board

      I don’t know anything about this tapping technique but an Occasional Xanax really helped take the edge off during (and after) my treatments.   Hux......  

      December 03 at 9:08 PM view post
      • huxley2006 has replied to a post on the message board

        I will say that Dr Kaley at SK is my NO and he has been Wonderful. I would highly recommend.    Hux....  

        November 11 at 7:10 PM view post
        • huxley2006 has replied to a post on the message board

          I can tell you that based on my experience at Duke; I think he could have done better. The Doctors were not prepared for my visit. They never reviewed my file (which covers approx 20+years worth of documentation). The nurses were polite but not very bright and hospital administration had the audacity to send me to a collection agency when I wouldn’t pay for a test I specifically told them not to do. Th...

          November 06 at 8:19 PM view post
          • huxley2006 has replied to a post on the message board

            Have had several surgeries while battering Brain Cancer. Surgery is still one of the best options in our arsenal. That being said think pairing the surgery with a good clinical (toca or vaccine) is something you should seriously consider. Huxley

            September 07, 2013 view post
            • huxley2006 has replied to a post on the message board

              20 years since diagnosis PXA grade 2 and 3 years since reoccurrence GBM grade 4 Huxley..

              September 05, 2013 view post
              • huxley2006 has replied to a post on the message board

                Unfortunately the answer is it could change that quickly. Doesn't mean it has But it is always a possibility. Keep in mind people do live an extended period of time with multiple relapses and progression to higher grade tumors. In fact that's a highly likely scenario along the way. Statistically your much better off with an initial diagnosis of a grade 3 tumor then a GBM. Doesn't mean you won't hit challe...

                July 09, 2013 view post
                • huxley2006 has replied to a post on the message board

                  I lost my preriphersl vision on my left side after my first surgery in 1994.i still drive regularly but do let my wife drive if the area is new to me. You need to be vey careful and took me many years to get used to it and learn how to compensate for the deficiency. I was in a fender bender or two before I really learned how to handle it. This is very dangerous but with enough practice it is possible to learn to...

                  June 23, 2013 view post
                  • huxley2006 has replied to a post on the message board

                    Same experience with Dr Yu. He was wonderful!   Huc  

                    June 09, 2013 view post
                    • huxley2006 has replied to a post on the message board

                      I am skeptical of this but think on the whole marijuana can be a good thing for those suffering from Brain Cancer. It increases appetite and in general can lead to a more pleasant afternoon. That’s something that shouldn't be underestimated for those going through this Trauma. Hux....  

                      June 02, 2013 view post
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                      About huxley2006

                      Brain Cancer

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