I have colorectal cancer (diagnosed and surgery performed on May 14th) with liver mets. I'm seeking any support or advice from anyone that is trying or has used any alternative treatments with any long term success.
I went in with both feet for the Folfox treatment, which I've completed five treatments. I was then given a break since I'd developed paralysis in my hands and strange unexplainable numbness in my face. After the three weeks break I was given a CT scan and the two liver mets were gone and my CEA count went down to 1.3, so I went into remission and didn't continue with the chemo (my own choice).
Since then I have been trying every alternative treatment I have heard about and am now (within the last month)seeing an alternative MD for guidance which has been wonderful.
I feel like a human dynamo with more life and well being than I've had in many years, but alas my CEA numbers are up to 18 now and my onc. is really lobbying for the chemo (without the oxaliplatin this time). I experienced such a bad chemo experience that every ounce of my being doesn't want to do it. I could sense a thousand small deaths while on it. I had intense anxiety while on it. It feels so very counter intuitive to me, I can't get behind it as a cure.
I've heard and read so much about cancer by now and know that with alternatives it takes time and I'm scared that I don't have the time. I don't want to loose my health, sense of well being and sanity. Alternative treatments also are very limited after one has damaged their body with chemo.
I'm sending out an SOS... please share any stories or guidance. I promise to weigh my options carefully and not jump on any bandwagons. I need to hear from anyone that can even just relate...