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j5onv's Recent CancerCompass Activity

  • j5onv has replied to a post on the message board

    Hi Andi,   I was also diagnosed in October 2012 with PTCL NOS.  Mine manifested itself on my spine,  I had a new regime of chemo called IVE MTX  sometimes referred to as the newcastle regime.  It put me into remission, but the cancer came back a few months later.   I had a stem cell transplant using my own cells  Last July, and have had two completely clear scans since and feel very...

    May 27 at 10:29 AM view post
    • j5onv has replied to a post on the message board

      Hi Sorry to here about your husbands diagnosis,   T cell is not the one to have but it is now more beatable than some of the prognosis studies on google may suggest.  I was diagnosed in November 2012,  mine presented in my t 12 verterbrea and the first I knew about it was my back actually breaking!  I had 6 courses of chemo, which put me into remission but it came back after just a couple of month...

      March 22 at 2:35 PM view post
      • j5onv has replied to a post on the message board

        Hi,  I also have ptcl.  I was put on a new regime cale ive mtx,  it got me into a complete remission and i was due to have a stem cell transplant later this month. if you want any specific info just ask. kind regards, jason

        May 03, 2013 view post
        • j5onv has replied to a post on the message board

          Hi thanks for the message. I finished my chemo (ive mtx) in jan and it put the cancer into complete remission.  I was due to have a stem cell transplant using my own stem cells later this month.  However, have had a pain in the side for last couple of weeks, and pretty sure the cancer has returned to my t10 verterbre.... i had a pet scan today to confirm and will get results on tuesday.   If its pos...

          May 03, 2013 view post
          • j5onv has replied to a post on the message board

            Hi Dora,  Mine started with a tumor on my spine,  almost put me in a wheelchair but caught it just in time and surgeons managed to decompress it with the help of a few titanium rods. it then took around 8 weeks for them to narrow my cancer down to nhl t cell nos....  I've just started on a regimen called ive mtx sometimes also known as the newcastle regime, 12 weeks then down for a stem cell transplan...

            October 24, 2012 view post
            • PM25yrsnowthis

              PM25yrsnowthis Jason, do you have any lymphnodes involved??

              November 11, 2012
          • j5onv has changed their profile photo
            October 21, 2012
            • j5onv has created a new message board discussion

              Hi I'm new to group,  have just been diagnosed with t cell nos lymphoma.  it's stage four and have three lesions on my vertebrae,  one which was partially collapsed and had to have some titanium rods put in to save my spine.  I'm only 38 and live in the uk. i have my first round of chemo tomorrow and believe the regimen is called I've - mtx  sometimes known as the newcastle regimen. Wou...

              October 21, 2012 view discussion
              • j5onv has replied to a post on the message board

                Hi,  have just been diagnosd with t cell nos.   im 38 and live in london.  i have my first chemo tommorrow and cant say im looking forward to it.    would be great to hear your experiences  thanks jason

                October 21, 2012 view post
                • j5onv has created a new message board discussion

                  Hi I'm new to group,  have just been diagnosed with t cell nos lymphoma.  it's stage four and have three lesions on my vertebrae,  one which was partially collapsed and had to have some titanium rods put in to save my spine.  I'm only 38 and live in the uk. i have my first round of chemo tomorrow and believe the regimen is called I've - mtx  sometimes known as the newcastle regimen. Wou...

                  October 21, 2012 view discussion
                  • j5onv has created a new message board discussion

                    Hi I'm new to group,  have just been diagnosed with t cell nos lymphoma.  it's stage four and have three lesions on my vertebrae,  one which was partially collapsed and had to have some titanium rods put in to save my spine.  I'm only 38 and live in the uk. i have my first round of chemo tomorrow and believe the regimen is called I've - mtx  sometimes known as the newcastle regimen. Wou...

                    October 21, 2012 view discussion
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                    About j5onv

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                    Lymphoma

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