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jalind's Recent CancerCompass Activity

  • jalind has replied to a post on the message board

    One thing to keep monitoring for many years after head/neck rads is blood TSH. The pituitary produces TSH to regulate thyroid T3 and T4 production. In other words, the pituitary controls thyroid T3/T4 output. A high TSH level means the body's pituitary is kicking the daylights out of the thyroid to to do its thing (make T3 and T4) and isn't seeing sufficient results. Radiation induced hypothyroidism is one of the mos...

    August 19 at 3:03 AM view post
    • jalind has replied to a post on the message board

      missfather . . . You're exactly correct in your skepticism about sugar causing, contributing to, or "feeding" cancer. The claims that it does so are the stuff of Urban Legend, perpetuated by Bogus Science and web sites touting bogus alternative cancer treatments that claim to eliminate sugar from your body. The source of this is typically attributed to the use of very short half-life radioactive glucose as a tracer ...

      July 23 at 4:17 AM view post
      • jalind has replied to a post on the message board

        The likelihood is you have an infection of some type. Lymph nodes get swollen in the neck, under the jaw, under armpits, etc. when your body is fighting an infection. That's why physicians often palpate them (feel them) when they suspect an infection. The lymph system is part of what your body uses to fight it off. You should see a physician about the headache, neck pains and swollen nodes, and go from there. There a...

        May 08 at 2:00 PM view post
        • jalind has replied to a post on the message board

          While a lot of what you see written talks about anything over SPF 30 being overkill, they don't give the rest of the story. For clothing, that's pretty much the case. For sunscreen, remember that its effective SPF degrades with time, by sweating off, rubbing off, and/or photodegradation from solar UV. It's one of the reasons I use a very high SPF sunscreen so I don't need to continue reapplying throughout the day. If...

          May 08 at 1:44 PM view post
          • jalind has replied to a post on the message board

            Hi . . . saw this and the one other response you got which did not address your question. Remission:What this means depends on whether it's characterized as *complete* remission or *partial* remission, and how your doctor is using it. Some of the jargon that gets used and what it generally means. Complete Remission:No detectable cancer, sometimes also called "No Evidence of Disease" or NED. Also called "Complete Re...

            May 08 at 7:57 AM view post
            • jalind has replied to a post on the message board

              First of all . . . you're right . . . nobody here can diagnose anything. Second, calm down. That's a very tall order and much easier said than done. Whatever is going on with your tonsils, your uvula and the lymph node, it already is whatever it is. No amount of worry, fretting, and self-induced indigestion or insomnia is going to change it.  There are a number of possible causes, some of them relatively trivial...

              May 07 at 1:36 PM view post
              • jalind has replied to a post on the message board

                In general this is correct. External beam ionozing radition, whether or not it's fractionated into many doses over time, is very high energy X-rays, the equivalent of Gamma radiation. It **cannot** create any radionuclides (aka radioactive isotopes) inside your body. There is NO residual radiation at any time afterward, for any length of time. There are two notable exceptions. Infusion of a radioactive Iodine is ofte...

                December 31, 2013 view post
                • jalind has replied to a post on the message board

                  Dave . . . I'm no expert in interpreting your pathology report, but I'd be more concerned about the Squamous Cell Carcinoma than the Basal Cell, and attempting to have it dealt with more promptly. The issue here is how invasive the SCC is . . . if it's invaded below the epidermis into the dermis with access to spreading through they lymph and blood capillaries with the potential for metastasizing, more often through ...

                  December 31, 2013 view post
                  • jalind has replied to a post on the message board

                    Nobody can really answer your question beyond telling you that it doesn't happen overnight, or even in a week, or in less than a month. Beyond that, it's an enormous "it depends" on much too many things that can affect speed of progression. Melanoma, though, is NOT a slow cancer compared to some others (basal cell and the more common squamous cell carcinomas), and it's not one to be trifled with because of how easily...

                    December 12, 2013 view post
                    • jalind has replied to a post on the message board

                      Annie,I'm a Stage IV squamous cell carcinoma head/neck survivor and was diagnosed at age 57, 3-3/4 years ago (Feb 2010). Origin wasn't tonsil, but it had metastasized into a half-dozen lymph nodes in my neck and was forming extensions into the parotid gland on that side (a major salivary gland alongside the lower jaw). I continue to be "NED" (no evidence of disease) or more precisely, no evidence of any internal mets...

                      December 12, 2013 view post
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                      About jalind

                      Patient, Survivor
                      Head and Neck Cancer, Skin Cancer - Basal Cell, Skin Cancer - Squamous Cell, Squamous Cell Cancer
                      After Treatment, Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Chemotherapy, Conventional Treatments, Image Enhancement, Radiation, Surgery

                      Stage IV SCC originating from SCC skin cancer on neck. IMVHO the staging for mine is anomalous due to rigid, somewhat simplistic staging rules, and is actually closer to Stage III (under prior rules it would have been classed Stage III). A modified radical neck dissection removed the original skin lesion near back of jaw, 22 regional lymph nodes, and the parotid gland on that side. Pathology found original skin lesion (already knew this from punch biopsy) plus 6 regional lymph nodes involved with SCC (we already knew about 2 of them from fine needle biopsies). Surgery was followed by 31 daily sessions of adjuvant radiation therapy which was finished mid-April 2010. Coping with various, very long-term and/or permanent radiotherapy side effects including some ongoing fatigue (the thyroid is still functioning well) and major xerostomia (lack of saliva) which causes numerous dental and eating issues and is a general PITA.

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