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jalind's Recent CancerCompass Activity

  • jalind has replied to a post on the message board

    Hi JohnnyVery glad you're progressing with recovery and doing well! The first thing one should do for recurrence prevention is ceasing or eliminating anything in their lifestyle or environment that are **scientifically** linked to their cancer. May or may not reduce their current risk level, but will prevent increasing it. There's a lot of mumbo-jumbo with misguided speculation, misinformation, and disinformation abo...

    February 06 at 4:50 AM view post
    • jalind has replied to a post on the message board

      Re lemon-water and lemons . . . Salivation Stimulants:The Citric Acid in the lemon juice stimulates the salivation. Nearly all fruits contain Citric Acid, especially citrus fruits. Any food or drink containing some amount of citric acid will have similar effect. I take a couple clementine/mandarin oranges to work in my briefcase to eat during the day. They're small, seedless (rare, but have encountered some with a f...

      December 06 at 7:06 PM view post
      • jalind has replied to a post on the message board

        Johnny, The immediate post-treatment "depression" (as you characterized it) is entirely normal. A big part of what you're feeling now is related to the fact there isn't much you can control at this point. Treatment decisions were made and the treatments executed. Very nearly everyone feels this as there's nothing more to be done but wait and watch, wait some more, and watch some more. You will fatigue more easily fo...

        May 27 at 8:08 PM view post
        • jalind has replied to a post on the message board

          Steph . . . I've wondered also . . . and hoping he's OK as well and that it's simply other things like living life fully and thriving that are occupying his time. Congrats on the upcoming 4 years; that's wonderful. John

          April 19, 2012 view post
          • jalind has replied to a post on the message board

            You mentioned an otolaryngologist and doing another biopsy. Is there no surgery planned? That would usually be done first, before a combination of chemo+radiation together. There are exceptions for specific cases that would have something compelling to preclude surgery . . . such as tumor locations (original plus metastases) that may make it too risky . . . or other medical conditions in addition to the cancer that i...

            April 18, 2012 view post
            • jalind has replied to a post on the message board

              If what you're referring to is the same link showing up repeated many dozens of time in a posting that's quoted, that is a flaw in this bulletin board system, not the person posting the message or the original author. Only happens up when a link is embedded in a posting that is then quoted in another one . . . the original will have it once and the quote will have it replicated 30-40 times. I've seen the same thing ...

              April 18, 2012 view post
              • jalind has replied to a post on the message board

                Should have written: . . . and it's going to get a good portion of it from places you should be keeping it (notably muscle mass).

                April 14, 2012 view post
                • jalind has replied to a post on the message board

                  Should have written: . . . and it's going to get a good portion of it from places you should be keeping it (notably muscle mass).

                  April 13, 2012 view post
                  • jalind has replied to a post on the message board

                    Merien,I'm not surprised you got multiple lectures about maintaining body weight. Whatever you currently weigh, whether it's considered overweight or obese or not, the goal is maintaining current weight. Part of the weight you lose is your body robbing what it needs to repair the daily rad damage from elsewhere, and it's not going to get a good portion of it from places you should be keeping it (notably muscle mass)....

                    April 13, 2012 view post
                    • jalind has replied to a post on the message board

                      John, I didn't have a PEG either, but was wondering how wise that was about the middle of week 3. Your docs are quite right; some folks become too dependent on the PEG, and must learn how to eat and swallow again afterward. That can take a long time; many months and well over a year for some folks. I believe my docs had similar thoughts regarding PEG dependence, and if there was a good probability someone would be a...

                      March 31, 2012 view post
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                      About jalind

                      Patient, Survivor
                      Head and Neck Cancer, Skin Cancer - Basal Cell, Skin Cancer - Squamous Cell, Squamous Cell Cancer
                      After Treatment, Cancer Diagnosis, Cancer Nutrition, Cancer Treatments, Chemotherapy, Conventional Treatments, Image Enhancement, Radiation, Surgery

                      Stage IV SCC originating from SCC skin cancer on neck. IMVHO the staging for mine is anomalous due to rigid, somewhat simplistic staging rules, and is actually closer to Stage III (under prior rules it would have been classed Stage III). A modified radical neck dissection removed the original skin lesion near back of jaw, 22 regional lymph nodes, and the parotid gland on that side. Pathology found original skin lesion (already knew this from punch biopsy) plus 6 regional lymph nodes involved with SCC (we already knew about 2 of them from fine needle biopsies). Surgery was followed by 31 daily sessions of adjuvant radiation therapy which was finished mid-April 2010. Coping with various, very long-term and/or permanent radiotherapy side effects including some ongoing fatigue (the thyroid is still functioning well) and major xerostomia (lack of saliva) which causes numerous dental and eating issues and is a general PITA.

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