One patient with glioblastoma still alive nine years later
You will feel better as soon as your white blood counts recover. I started to feel better about day + 20. I still have long ways to go before I get my earlier strength back. I still have some diarrhea issue for which I am going to see a Gastro specialist. My diarrhea issue started even before SCT because of Velcade.
I am able eat much better now. However, in smaller portions and trying to eat more then 3 times...
Today is my day plus 12, I am not on any pain meds, my last IV is running. However following two things are bothering me. (they r thinking of discharging me in a day or two
My taste bugs are totally shots. So even when try to chew a piece of toast I feel like throwing up only food I can get downs are yogurt
Any idea how long this metallic taste lost?
Also, anything I eat results into diarrhea th...
The day zero was very emotional cant put my finger on it. They gave me something to relax and slept through most of the day.
Hoping for better days and laughter
Thank you all. Today is day minus two
The melphplan will start at noon. Already working on ice
Man, this pain is the worst. Bmb seems like walk in the park. I will get admitted to hospital on 5th.
Fritz. How was harvest. How many stem cell they were able to collect. I was on revlimid for a while so that is a area of concern for me
I took my high dose cytoxan on 10/21 and started neupogen shots on 10/23. On 10/27 my WBC fell to 0.4 even though I was on neupogen also starting this morning ihave experiencing pain in my tailbone. Is this usual.? I read quite a few post regarding bone pain and neupogen
Don't worry about mobilization issues with Revlimid. I read the latest study and all it needs for the mobilization are two things.
1. 3 to 4 weeks break from Rev before mobilization
2. Give Cytaxyn (spelling) before mobilization.
Since I was on Rev for a while I have asked this question to several transplant centers (Hopkins, Univ of Pittsburg, dana farber) and all said the above two will take care of it. If nothi...
Thanks everyone for the tips. My transplant will be done inpatient at Dana farber Boston which is out of town for us (we live in washington dc area).
1. Can we bring outside food or patient are allowed to eat only hospital food.
2. Any tips for caregivers who will be staying in hotel.
3. Any tips on hotel/B&B etc in Boston area?
I sent through this decesion process. When I started my mspike was 4.2, some anemia, NO bone involvement.(I am 47 year old, generaly in good health)
I started velcade+Rev+predisone combo (Rev kept giving me rash with Dex so they changed the steriod for me). After little over a year, my spike came down to 0.6 and stayed there.
Our plan-A was, if above puts me in CR, we will freez stemcell and go on low dose rev or s...
I am 44 male, stage-I MM as per international system. I am on Rev+Velcade+Prednizone
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