Loading...

jay2010's Recent CancerCompass Activity

  • Jay2010 has replied to a post on the message board

    You will feel better as soon as your white blood counts recover.  I started to feel better about day + 20. I still have long ways to go before I get my earlier strength back. I still have some diarrhea issue for which I am going to see a Gastro specialist. My diarrhea issue started even before SCT because of Velcade. I am able eat much better now. However, in smaller portions and trying to eat more then 3 times...

    December 20, 2011 view post
    • Jay2010 has created a new message board discussion

      hi there Today is my day plus 12, I am not on any pain meds, my last IV is running. However following two things are bothering me. (they r thinking of discharging me in a day or two My taste bugs are totally shots. So even when try to chew a piece of toast I feel like throwing up only food I can get downs are yogurt Any idea how long this metallic taste lost? Also, anything I eat results into diarrhea th...

      November 20, 2011 view discussion
      • Jay2010 has created a new message board discussion

        The day zero was very emotional cant put my finger on it. They gave me something to relax and slept through most of the day. Hoping for better days and laughter Jay

        November 09, 2011 view discussion
        • Jay2010 has replied to a post on the message board

          Thank you all. Today is day minus two The melphplan will start at noon. Already working on ice Cheers

          November 06, 2011 view post
          • Jay2010 has created a new message board discussion

            Normal 0 false false false EN-US X-NONE X-NONE MicrosoftInternetExplorer4 ...

            November 04, 2011 view discussion
            • Jay2010 has replied to a post on the message board

              Man, this pain is the worst. Bmb seems like walk in the park. I will get admitted to hospital on 5th. Fritz. How was harvest. How many stem cell they were able to collect. I was on revlimid for a while so that is a area of concern for me Jay

              October 29, 2011 view post
              • Jay2010 has created a new message board discussion

                hi friends, I took my high dose cytoxan on 10/21 and started neupogen shots on 10/23. On 10/27 my WBC fell to 0.4 even though I was on neupogen also starting this morning ihave experiencing pain in my tailbone. Is this usual.? I read quite a few post regarding bone pain and neupogen Jay

                October 29, 2011 view discussion
                • Jay2010 has replied to a post on the message board

                  Don't worry about mobilization issues with Revlimid. I read the latest study and all it needs for the mobilization are two things. 1. 3 to 4 weeks break from Rev before mobilization 2. Give Cytaxyn (spelling) before mobilization. Since I was on Rev for a while I have asked this question to several transplant centers (Hopkins, Univ of Pittsburg, dana farber) and all said the above two will take care of it. If nothi...

                  September 27, 2011 view post
                  • Jay2010 has replied to a post on the message board

                    Thanks everyone for the tips. My transplant will be done inpatient at Dana farber Boston which is out of town for us (we live in washington dc area).

                    1. Can we bring outside food or patient are allowed to eat only hospital food.

                    2. Any tips for caregivers who will be staying in hotel.

                    3. Any tips on hotel/B&B etc in Boston area?

                    Best Regards,

                    Jay

                    September 26, 2011 view post
                    • Jay2010 has replied to a post on the message board

                      I sent through this decesion process. When I started my mspike was 4.2, some anemia, NO bone involvement.(I am 47 year old, generaly in good health) I started velcade+Rev+predisone combo (Rev kept giving me rash with Dex so they changed the steriod for me). After little over a year, my spike came down to 0.6 and stayed there. Our plan-A was, if above puts me in CR, we will freez stemcell and go on low dose rev or s...

                      September 26, 2011 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About jay2010

                      Patient
                      Multiple Myeloma
                      Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Diet, Emotional Support, Supplements

                      I am 44 male, stage-I MM as per international system. I am on Rev+Velcade+Prednizone

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.