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jaycc's Recent CancerCompass Activity

  • jaycc has replied to a post on the message board

    Words can't say how are it is. My husband died 3 years ago. Same we could not keep him in house. Hang in there, try to some air, or doing something for yourself each day just to keep moving. I'm sending you a link to a group of us.

    Yesterday at 8:01 PM view post
    • jaycc has created a new message board discussion

      I'm one of the caregivers for a wonderful young man only 27 newly diagnosis-ed with CNS lymphoma. anyone out there can you tell me where you get treated, can you tell me where the experts are ? I'm a tough cookie so go ahead and talk to me straight

      February 06 at 4:34 PM view discussion
      • jaycc has created a new message board discussion

        Asking for 25 year old . we are looking at diagnosis of CNS lymphoma. have a comprised ammune system. MRI and scans are negative. Brian scan not conclusive enough for doctors. heading for brain biopsy. low CP4. Where are the specialists, what should we be asking the doctors. I'm a tough cookie so feel free to talk reality. all suggestions welcomed.

        January 29 at 3:43 AM view discussion
        • jaycc has replied to a post on the message board

          So sorry to hear. The road of Stage IV. Is a  rollacoaster and lots of information. My husband had stage iv.   A few Things. esphogeal cancer(ec) s a rare cancer make sure to have doctors or a team that is experienced in EC.  There are specialist in the US. Everybody is different but there are some treatments oncologist follow. I'm not a doctor but I look at chemo as the min. Treatment for stage iv....

          September 22 at 2:56 AM view post
          • jaycc has created a new message board discussion

            Hi, Asking for another EC Survivor, is anyone on Interluekin 10 Study ? 

            July 25 at 5:18 PM view discussion
            • jaycc has created a new message board discussion

              ramucirumab(RAM) - ANYONE ON TREATMENT by jaycc on Thu May 01, 2014 12:40 PM Quote | Reply Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

              May 01, 2014 view discussion
              • jaycc has created a new message board discussion

                Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

                May 01, 2014 view discussion
                • jaycc has replied to a post on the message board

                  Cyndi20 To directly answer your question - Yes my husband wanted to know. Stage IV mets to liver at time of dx. There are a few new  treatments since he passed, so keep strong, positive, surround yourself with medical people who believe in trying. (Ramucirumab(RAM)) just released in US.    My husband doc held back information, that I'm now just reading in reports. It made the last months very hard. ...

                  May 01, 2014 view post
                  • jaycc has created a new message board discussion

                    Hi, Anyone use Dr. Stacey Su  (PA area)? here's the update: Based on her initial review she needs more information from my cardiologist to determine if I fit a surgical profile.  My current PFT is borderline but acceptable.  referred to cardiologist.  The tests are this Friday and meet with the cardiologist May 2.  Then the Dr. Su and anesthesiologist need to confirm the results are accept...

                    April 25, 2014 view discussion
                    • jaycc has created a new message board discussion

                      Known Lymphoma, just got news found Squamous cells in Lung , they are calling it lung cancer. Anyone have these, or any experience with this dx ??

                      April 15, 2014 view discussion
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                      About jaycc

                      Caregiver
                      Esophageal Cancer
                      Cancer Nutrition, Chemotherapy, Clinical Trials and Research, Emotional Support, Lifestyle, Recipes, Side Effects

                      My husband John had EC with spread to the liver, diagonised Dec 2010.dcd Sep 2011. We have 3 kids. I'm a night owl ,so looking for some other nite owls that like to share. Unfortunately I'm no stranger to cancer this is my 4th experience with immediate family member, including mother diagnosised when I was 12.

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