Loading...

jaycc's Recent CancerCompass Activity

  • jaycc has created a new message board discussion

    Asking for 25 year old . we are looking at diagnosis of CNS lymphoma. have a comprised ammune system. MRI and scans are negative. Brian scan not conclusive enough for doctors. heading for brain biopsy. low CP4. Where are the specialists, what should we be asking the doctors. I'm a tough cookie so feel free to talk reality. all suggestions welcomed.

    Thursday at 3:43 AM view discussion
    • jaycc has replied to a post on the message board

      So sorry to hear. The road of Stage IV. Is a  rollacoaster and lots of information. My husband had stage iv.   A few Things. esphogeal cancer(ec) s a rare cancer make sure to have doctors or a team that is experienced in EC.  There are specialist in the US. Everybody is different but there are some treatments oncologist follow. I'm not a doctor but I look at chemo as the min. Treatment for stage iv....

      September 22 at 2:56 AM view post
      • jaycc has created a new message board discussion

        Hi, Asking for another EC Survivor, is anyone on Interluekin 10 Study ? 

        July 25 at 5:18 PM view discussion
        • jaycc has created a new message board discussion

          ramucirumab(RAM) - ANYONE ON TREATMENT by jaycc on Thu May 01, 2014 12:40 PM Quote | Reply Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

          May 01 at 4:41 PM view discussion
          • jaycc has created a new message board discussion

            Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

            May 01 at 4:40 PM view discussion
            • jaycc has replied to a post on the message board

              Cyndi20 To directly answer your question - Yes my husband wanted to know. Stage IV mets to liver at time of dx. There are a few new  treatments since he passed, so keep strong, positive, surround yourself with medical people who believe in trying. (Ramucirumab(RAM)) just released in US.    My husband doc held back information, that I'm now just reading in reports. It made the last months very hard. ...

              May 01 at 4:37 PM view post
              • jaycc has created a new message board discussion

                Hi, Anyone use Dr. Stacey Su  (PA area)? here's the update: Based on her initial review she needs more information from my cardiologist to determine if I fit a surgical profile.  My current PFT is borderline but acceptable.  referred to cardiologist.  The tests are this Friday and meet with the cardiologist May 2.  Then the Dr. Su and anesthesiologist need to confirm the results are accept...

                April 25 at 1:51 PM view discussion
                • jaycc has created a new message board discussion

                  Known Lymphoma, just got news found Squamous cells in Lung , they are calling it lung cancer. Anyone have these, or any experience with this dx ??

                  April 15 at 3:26 PM view discussion
                  • jaycc has created a new message board discussion

                    Have Lymphoma, now they found spot on lung, bio states squamous lung cancer, next scan this week. Need second opinion and surgeons fast.  Where are good places for Lung ?

                    April 15 at 3:23 PM view discussion
                    • jaycc has replied to a post on the message board

                      Dear Ladies,Don't know if it will help but here's some things we did Stage IV. Each day is a journey, keep positive people around you. Ask doctor about feeding tube, even for awhile. He also got steriods with treatments gave him some strength.  take 20 minutes a day at least, and talk or think about something unrelated to cancer.  You can always ask for an extra Pet Scan if you need it, but what it will sh...

                      January 10, 2014 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About jaycc

                      Caregiver
                      Esophageal Cancer
                      Cancer Nutrition, Chemotherapy, Clinical Trials and Research, Emotional Support, Lifestyle, Recipes, Side Effects

                      My husband John had EC with spread to the liver, diagonised Dec 2010.dcd Sep 2011. We have 3 kids. I'm a night owl ,so looking for some other nite owls that like to share. Unfortunately I'm no stranger to cancer this is my 4th experience with immediate family member, including mother diagnosised when I was 12.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.