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jaycc's Recent CancerCompass Activity

  • jaycc has created a new message board discussion

    Hi, Asking for another EC Survivor, is anyone on Interluekin 10 Study ? 

    July 25 at 5:18 PM view discussion
    • jaycc has created a new message board discussion

      ramucirumab(RAM) - ANYONE ON TREATMENT by jaycc on Thu May 01, 2014 12:40 PM Quote | Reply Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

      May 01 at 4:41 PM view discussion
      • jaycc has created a new message board discussion

        Dear All, RAM was justed released in US. Anyone from Eupore or other countries on this treatment, how are you doing ? Ask for several EC patient/survivors looking to connect. Jaycc

        May 01 at 4:40 PM view discussion
        • jaycc has replied to a post on the message board

          Cyndi20 To directly answer your question - Yes my husband wanted to know. Stage IV mets to liver at time of dx. There are a few new  treatments since he passed, so keep strong, positive, surround yourself with medical people who believe in trying. (Ramucirumab(RAM)) just released in US.    My husband doc held back information, that I'm now just reading in reports. It made the last months very hard. ...

          May 01 at 4:37 PM view post
          • jaycc has created a new message board discussion

            Hi, Anyone use Dr. Stacey Su  (PA area)? here's the update: Based on her initial review she needs more information from my cardiologist to determine if I fit a surgical profile.  My current PFT is borderline but acceptable.  referred to cardiologist.  The tests are this Friday and meet with the cardiologist May 2.  Then the Dr. Su and anesthesiologist need to confirm the results are accept...

            April 25 at 1:51 PM view discussion
            • jaycc has created a new message board discussion

              Known Lymphoma, just got news found Squamous cells in Lung , they are calling it lung cancer. Anyone have these, or any experience with this dx ??

              April 15 at 3:26 PM view discussion
              • jaycc has created a new message board discussion

                Have Lymphoma, now they found spot on lung, bio states squamous lung cancer, next scan this week. Need second opinion and surgeons fast.  Where are good places for Lung ?

                April 15 at 3:23 PM view discussion
                • jaycc has replied to a post on the message board

                  Dear Ladies,Don't know if it will help but here's some things we did Stage IV. Each day is a journey, keep positive people around you. Ask doctor about feeding tube, even for awhile. He also got steriods with treatments gave him some strength.  take 20 minutes a day at least, and talk or think about something unrelated to cancer.  You can always ask for an extra Pet Scan if you need it, but what it will sh...

                  January 10 at 2:02 AM view post
                  • jaycc has replied to a post on the message board

                    Suggest you get a second opinion , and quick jobruce. Very few people really understand EC Stage IV. I wish we had.

                    January 10 at 1:35 AM view post
                    • jaycc has replied to a post on the message board

                      My husband was 50, with EC Stage IV mets to liver. He was on Docetaxel/Paclitaxel with Xyosplatin(sorry sp). He made it clear he wanted to try anything and everything. Unfortunately the doctors gave up before he did. So I would suggest, go with your gut, what does he want, what are his immediate goals. Does he want a feeding tube to help him, does he want to go home or be in hospital ? What is acceptable life ? Its n...

                      January 10 at 1:30 AM view post
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                      About jaycc

                      Caregiver
                      Esophageal Cancer
                      Cancer Nutrition, Chemotherapy, Clinical Trials and Research, Emotional Support, Lifestyle, Recipes, Side Effects

                      My husband John had EC with spread to the liver, diagonised Dec 2010.dcd Sep 2011. We have 3 kids. I'm a night owl ,so looking for some other nite owls that like to share. Unfortunately I'm no stranger to cancer this is my 4th experience with immediate family member, including mother diagnosised when I was 12.

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