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jaycc's Recent CancerCompass Activity

  • jaycc has replied to a post on the message board

    In my post journey I found very few doctors understand the markers. Suggest you google it. This is a tough question. I'm no expert, but Univ of Michigan seems to understand them. I'll be back if I can found out more.

    December 28 at 8:08 PM view post
    • jaycc has replied to a post on the message board

      Can you explain "Pink Tonic". My husband also had Stage IV (2010) with mets to liver. I can share you the flip side of lessons learned. We did not move fast enough for second opinions. You got to get informed fast. He only recieved Chemo, had 6 good months but then suddenly declined. He was very sick, but did respond well after the second chemo treatment. We never got to radiation. Keep asking questions, there are ...

      December 28 at 7:59 PM view post
      • jaycc has replied to a post on the message board

        Hi, I would suggest you make some calls fast. Here's the ECEF hotline number. http://fightec.org/services/hotline/ I'm not a doctor, but keep looking to you find people with heart and experience. EC is a tricky rare cancer, not all people know how to handle it. Also repost, entitled - I need help in ....... can people recommend places.

        December 28 at 7:55 PM view post
        • jaycc has replied to a post on the message board

          sorry forgot the Survivors List link. Also I think this site let's you match by stage. http://www.ecaware.org/ecsurvivor/survivors/ over 20 Stage IV, survivors. Jay

          December 28 at 7:46 PM view post
          • jaycc has replied to a post on the message board

            Hi Dan, Glad you got responses. This is a good place for conversations. You can also see Stage IV stories on the EC Survivor's list. On the search select Stage IV. Keep going, you all are an inspiration. Jay

            December 28 at 7:44 PM view post
            • jaycc has created a new message board discussion

              Hi, Asking for my dear friend, like a brother. Recently diagnosed with Bladder cancer, have biopsy, and PET Scan. We know its in the bladder and in the muscle. Local doctor keeps saying "aggressive cancer" He is in New York area. Where do you go where are some of the good doctors ? How rare is bladder cancer ? Are informed doctors hard to find? Thanks Jaycc 

              November 20 at 6:15 AM view discussion
              • jaycc has created a new message board discussion

                Asking for another. Anyone with heart condition that was then diagnosed with EC ? wanted to talk about how you approached treatments

                October 15 at 1:56 AM view discussion
                • jaycc has created a new message board discussion

                  Hi, Asking for another, any EC survivors in San Antonio TX area ?

                  July 14 at 3:19 PM view discussion
                  • jaycc has replied to a post on the message board

                    Words can't say how are it is. My husband died 3 years ago. Same we could not keep him in house. Hang in there, try to some air, or doing something for yourself each day just to keep moving. I'm sending you a link to a group of us.

                    July 04 at 8:01 PM view post
                    • jaycc has created a new message board discussion

                      I'm one of the caregivers for a wonderful young man only 27 newly diagnosis-ed with CNS lymphoma. anyone out there can you tell me where you get treated, can you tell me where the experts are ? I'm a tough cookie so go ahead and talk to me straight

                      February 06, 2015 view discussion
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                      About jaycc

                      Caregiver
                      Esophageal Cancer
                      Cancer Nutrition, Chemotherapy, Clinical Trials and Research, Emotional Support, Lifestyle, Recipes, Side Effects

                      My husband John had EC with spread to the liver, diagonised Dec 2010.dcd Sep 2011. We have 3 kids. I'm a night owl ,so looking for some other nite owls that like to share. Unfortunately I'm no stranger to cancer this is my 4th experience with immediate family member, including mother diagnosised when I was 12.

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