jaycc

Kathy,

Here is Stacey, this is a blog about Dusty, 28 with mets to liver .http://www.staceysvoice.blogspot.com/

Hi,

I'm pass the one year mark, but remember all too well the pain no words can describe in the first 6 months to a year. It probably doesn't help too much now, but day by day after about 6 months I started coming out of the fog, and the heavy pain.  

I believe there is no cancer in heaven. He is good no more pain no more sickness. n sends a warm hug when he cans to keep me warm.

My husband had mets to Liver no surgery. Seems like your husband was dedicted earlier then mine. 6-7 months good quality of life, went to work, made daughters graduation. took family trip. He would get tired, but kept it positive . Keep an eye on the liver. Also ask about proton therapy, radiation and chemo. Get a second opinion becuase the liver is very specialized on top of this already very specialized EC

My fingers and toes crossed for your granddaughter. Congrads on the Wordsmith Award, I'm sure he will be with you, in the spirtual way.

How exciting about the book. I can't wait to read it. Keep us updated on the progress.

My husband was Stage IV inoperable. I learned more after the fact that places like Mayo, Univ of Pitt, and Huston, may had offered more treatment options that our center did. He did have chemo indefinitely but no feeding tube. He got about 7 months quality of life, then sick for the last 6 weeks. I would not recommend you allowing them to tag you as pallative. Too many medical people don't take you seriously when they see pallative.  Good luck glad to hear you are talking with surgeon and Gastro doctor directly.  

Keep your armour on and don't give up hope.

Get another hospice service. I had to scream at one of the services for my husband. It is not their right or their decision to hold back treatments or not take action on the patients or POA's request. I'ld call the doctor and get another service. If your mother is not getting her wishes followed.

Eternallife,

I can only tell you the flip side. I had wished we got more second opinions. Also in my husbands case we started treatment asap. testing was done while treatment started. But he had visible mets Stage IV

Protontherapy is a possible option, but its different for everyone. Here's a link http://www.proton-therapy.org/

You are getting very specialized now, ie EC and EC with mets. If you have doubts, I would suggest you get a second opinion.

If you don't get anymore responses here, let me know I'll send you some extra discussion boards.

Here's a link to US NAPT centers Therapy Centers.

PROTON THERAPY - The National Association for Proton Therapy (NAPT) Proton Beam Therapy, 

So true, about one day. Viewings, especially cancer ones seem to be hard. It was kind of you to go.