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jdykllr's Recent CancerCompass Activity

  • jdykllr has replied to a post on the message board

    What you are going through with your Mom is very challenging for sure but just hang in there & know that this is NOT her but the illness that caused her to be that way. My husband got quite few hallucinations that I can remember. One of the very few that I never forget was one morning I made scramble eggs with cut up ham in it. He was half way done with his breakfast and he told me this..." there's a baby's ...

    March 10 at 2:26 PM view post
    • jdykllr has replied to a post on the message board

      I agree with you Randy1958! I remembered when Steve was still hospitalized at UW Medical, one evening before I left to go home he told me..." don't forget about me over here, I can get pretty lonley" ....breaks my heart everytime I think of that. It's been little over a week since he left us. I miss him greatly:-(

      March 10 at 1:55 PM view post
      • jdykllr has replied to a post on the message board

        So sorry to hear all this:-( I told quite few of my friends that out of all Cancers, I think Brain Cancer is the most challenging because we have to deal with all this stuff like hallucinations,personality changes, moods swings etc. My husband passed away on Feb-28-13. He left us 12 months after he got diagnosed....it was the most difficult year and it was so heart breaking to see how this monster took him down in su...

        March 10 at 1:47 PM view post
        • jdykllr has replied to a post on the message board

          I went to pick him " His Urn" from the Funeral home yesterday. It was hard....I started crying as soon as the guy brought him in the room:-( I took him for a drive around the neighborhood afterwards, I was talking to him I know & believe his spirit is listening.......and I was also playing the CD that has all those songs we were listening to while we were dating many years ago which was back in the early 1990's. ...

          March 09 at 4:20 PM view post
          • jdykllr has replied to a post on the message board

            I just wanted to THANK EVERYONE on here for all your thoughts & Prayers during this difficult time. Friday was extra hard all day because I kept on having flash back during our last moments with him. I knew he was very close to the end....I was holding his hand tight.... I looked at his face told him how much I love him.....I told him don't worry about me & the Boys....We'll be o.k and that it is o.k for him ...

            March 03 at 4:54 PM view post
            • angel1959

              angel1959 Hope you are doing ok the flash backs will be with you for a while i lost mine 4 months ago and it is just something you don't forget sometimes the only thing that keeps me going is i know i will be with him someday and for now i know he is in the arms of god safe and free from pain and suffering

              March 03 at 7:30 PM
          • jdykllr has created a new message board discussion

            I lost my Beloved  Husband and Best Friend of 19 years years at 2:10pm Washington State time today after an 12 months courageous battle with deadly Brain Tumor GBM. I miss him greatly, but am thankful that it is over and he is free from cancer, suffering , pain and now resting in the arms of Jesus. I have learned so much about the Brain, Life and Death through this difficult journey. I am thankful that I was abl...

            March 01 at 7:48 AM view discussion
            • jdykllr has created a new message board discussion

              I talked my husband's Doctor head Nurse at University of Washington Medical today. She called & talked to me right after she got done talking to Dr. Mrugala. Dr. Mrugala said they have done all they could for Steve & there is NOTHING more they could do for him at this time. So we were advised to just put Steve in Hospice care and make him as comfortable & pain free right time & let this Tumor eventual...

              February 13 at 7:18 AM view discussion
              • jdykllr has changed their profile photo
                January 08 at 11:19 PM
                • amydibello

                  amydibello beautiful picture Judy...yes...please please add me on facebook by same name as I am on here...holding you both in my heart

                  January 24 at 8:47 PM
              • jdykllr has replied to a post on the message board

                I would love to hear any success news on Lomustine. My husband will be on it soon along with Avastin. He had recurrance just had his second brain surgery on Dec-7-12

                December 24 at 6:16 AM view post
                • jdykllr has replied to a post on the message board

                  It's so nice to be able to read what you all are going through and makes me feel I'm NOT alone. My husband got diagnosed GBM 4 early this year. It's been a very difficult year for us all as a family. We just found out on his last MRI Nov-14 that the " monster" is back so my husband will be going in for another brain surgery this coming Friday. It sure is so sad to see that he is NOT the same person that he was before...

                  December 05 at 5:54 AM view post
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                  About jdykllr

                  Caregiver
                  Brain Cancer
                  Support

                  My Husband got diagnosed with brain cancer Glioblastoma stage 4 early Feb of 2012 on his Right Temperol Lobe. He had 7 weeks long of Radiation Treatments along with Tumodar Chemo pills. He lost alot of weight during that Treatment, somedays he got very sick in his stomach from the Tumodar & woke up so many nights with BAD headache!! I feel so sorry for him...wish I could just take all those pains away from him...it's just so hard to see someone you love going through pain like that:-( May 31st, he had his MRI at UW Medical saw Dr. Mrugala his Neuro-Oncologist up there and the Result of the 1st round of treatment wasn't good. Dr. Mrugala told us that the swelling in the brain is down but the cancer is back and that's NOT good, he said:-( So he is now on his 2nd round of treatment Avastin & Carboplatin. He will be going to UW Medical Center next Wednesday July 11 for his 6 weeks MRI at 3pm & will see his Neuro-Oncologist Dr. Mrugala at 4:30pm. Will continue to pray for some kind of good news. We have 2 boys age 15 yrs old & the younger one, he will be 10 years old on July 17. My Husband retired from the US Navy January of 2010 after 22 years in service. We were looking forward to have new life outside the Military but now found ourselves dealing with Steve having Brain Cancer:-(

                  Latest update from MRI this past Wednesday July=11-2012....Dr. Mrugala walked into the room with a great big smile on his face & told us that the MRI looks very good and that the Treatment of Avastin & Carboplatin is working. We are very happy & thankful to hear the wonderful news. Today is October-20-2012. So far his last 3 MRI came out good. Next MRI will be November 14-12.
                  MRI on November 14 showed that the Original Tumor is still stablized but there is a new " Spot" in the same area where the big tumor was taken out during his brain surgery on January 30-2012. Still waiting for the call from his Neuro-Oncologist up at UW Medical to see if Steve will go for another brain surgery. What a long difficult road!!
                  The MONSTER is back so Steve will be going for another Brain Surgery on December-7-2012 at University Of Washington Medical.
                  Surgery on December-7-2012 went well. His Neurosurgeon Dr. Silbergeld removed 90% of the tumor.
                  Today is December-29-12.Steve is recovering good but "slow" from his last surgery. His balance seems to be getting worse:-( and I have noticed that his short term memory is not too good now. In the past few days, he has had few falls. I have to help him with almost every basic things now.
                  Today is January-30-13. Steve had MRI on Jan-23-13. MRI imaging showed rapid progression of tumor and new tumor by the brain stem area. Friday Jan-25-13, I was told the dreaded news by his Neuro-Oncologist that my beloved husband of 19 years has less than 6 months to live:-(

                  I lost my Beloved Husband and Best Friend of 19 years years at 2:10pm Washington State time today after an 12 months courageous battle with deadly Brain Tumor GBM. I miss him greatly, but am thankful that it is over and he is free from cancer, suffering , pain and now resting in the arms of Jesus. I have learned so much about the Brain, Life and Death through this difficult journey. I am thankful that I was able to fulfill his wishes and tried my very best to provide the very best care & loved him through his last breath today February-28-2013. I Love you Honey....together we have build a very good life together. You have been a Great husband to me & Dad to our 2 sons Jon 15 and Austin 10 years old. I will always forever Love you & Cherish all the great memories we have shared together.

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