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jessica4moe's Recent CancerCompass Activity

  • jessica4moe has replied to a post on the message board

    Hi Kathy and Laurie, Some time after the 5-HIAA test came back negative, my dermatologist said that I too had "rosacea" (having eliminated all other possibilities from parasites to lupus).  However, a curious thing has come to light in the last year. Last July I went strictly gluten-free for a 30-day experiment. Within a week, several positive changes happened: My IBS with diarhhea calmed down, I had more ener...

    Friday at 4:54 PM view post
    • jessica4moe has replied to a post on the message board

      Hi Julibug, do you need referrals from your primary care physician to see a specialist? Try asking for a referral to an oncologist. I'm sure with your family history, past medical history, and the symptoms you have now, an oncologist would seek out the cause post haste. Wishing you all the best, please keep us updated! Jessica

      June 19, 2014 view post
      • jessica4moe has changed their profile photo
        February 20, 2014
        • jessica4moe has replied to a post on the message board

          I just looked at the armour thyroid website and saw a statement about all doses now being available and no longer on backorder. So perhaps there was a quality or other problem with their product, and perhaps now your doctor will switch you back? Your TSH level of 116 is crazy high, *especially* for someone who has had thyroid cancer! It is possible that swithching brands may help -- after my TT surgery in 2009 (well...

          February 20, 2014 view post
          • jessica4moe has replied to a post on the message board

            I received the RAI treatment after total thyroidectomy for papillary thyroid cancer. I remember reading something about RAI treatment may increase likelyhood of bone and reproductive cancers at a later point in life.

            December 14, 2012 view post
            • jessica4moe has created a new message board discussion

              Is there anyone out there who have had RAI I-131 treatment who also has been diagnosed with other types of cancer possibly as a result of the RAI treatment? Jessica

              December 12, 2012 view discussion
              • jessica4moe has replied to a post on the message board

                Okay, so I got back my test results. Urinary 5-HIAA was in the normal range. Other tests my doctor had ordered also came back in the normal range-- Metanephrine, Normetanephrin, and Metanephrine, total. One test came back slightly elevated but I am guessing my Dr will say it is of no concern -- that was creatinine. I don't know if my endocrinologist will pursue any further testing given the normla 5-HIAA result, and...

                February 25, 2012 view post
                • jessica4moe has replied to a post on the message board

                  Hi Laurie, I also found another article that (briefly) mentioned what you said about serotonin not being the primary cause, and it also mentioned they found no correlation between flushing episodes and 5-HIAA concentrations: "Contrary to our expectations, the rates of 5-HIAA excretion were higher in the intervals without flushes than in those with flushes. This might be explained by the idea that hormones other tha...

                  February 18, 2012 view post
                  • jessica4moe has replied to a post on the message board

                    No worries, Laurie! I did the 24-hour collection yesterday and took it to the lab this morning. I asked that they mail me a copy of the results in addition to sending them to my endocrinologist. She said it probably will take 3-5 days for the results. I've been reading the articles you referred me to -- got through the short one and am about 2/3 the way through the longer one. I've also been reading "Between Me and...

                    February 15, 2012 view post
                    • jessica4moe has replied to a post on the message board

                      Thank you Lauri, that is alot of good information! I will start doing the calendar, because I noticed the symptoms peak and wane from day to day. Some days I flush a little, and some days it looks like a really bad sunburn. My flushing is always pink to red, never purple. Sometimes I get a red spot that last for hours after the flush fades. There are two places on my face where the spot comes back regularly...

                      February 10, 2012 view post
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                      About jessica4moe

                      Patient
                      Thyroid Cancer

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