One patient with glioblastoma still alive nine years later
I haven't been around this discussion board very much. I had my 5th recurrence ~ 3 months ago. It is causing brain inflammation and left side weakness - my left arm feels like dead meat sometimes and the inflammation makes my walking more like stumbling and I often need a cane to get around. A little less so recently where i can shuffle around on my own feet As I write this I feel like I am dizzy enough that I m...
They may put you on prophylatic seizure meds after surgery, probably Keppra. Ask in advance.
If you start having seizures at any time the right meds or combination of meds often gets them under control.
I don,t think there is any reason to immediately expect seizures after surgery. I have had 5 resections and never had problems with surgery-related seizures afterwards that I know of. But I have had seizu...
Swelling of the ankles and legs, particularly if the swelling is worse in one leg than in the other. This may indicate the presence of a blood clot in the large veins of the legs (this is called deep venous thrombosis, or DVT). The risk of DVT is quite high in patients with brain tumors. DVTs are dangerous because the clots can break off and travel to the lungs. Blood thinner pills are usually required after diagno...
I found this
Swelling of the ankles and legs, particularly if the swelling is worse in one leg than in the other. This may indicate the presence of a blood clot in the large veins of the legs (this is called deep venous thrombosis, or DVT). The risk of DVT is quite high in patients with brain tumors. DVTs are dangerous because the clots can break off and travel to the lungs. Blood thinner pills are usually required ...
Is he on dexamethasone (decadron)? Sometimes they give you a high dose post surgey
Bloating is a common side effect with dex.. I have been on an extended course of dex (18 to 3mg/day and now to 5 mg/day) for the last 2 months or so) post surgery and my ankles became very bloated and My face puffy.
My joints also ached for awhile
If so talk to your doctor about tapering off to a lower dose. Someti...
How much ginseng do you take and on what schedule?
And how do you prepare it? Do you eat it raw?
I am recently a 4 year survivor and both fortunate and grateful to be so.
I have had long stretches where I have been able to be physically active but throughout and consistently I have had seizures. I am also lucky to live near the ocean where I spend time with my sons and enjoy time with them there.
In 2012. we took a family vacation to the Big Island where I snorkeled in 10 to 100 ft fairly isolated water ...
Are you on any other medications like dexamethasone (decadron)?
For me I have always belieived that any long-term exhaustion was the result of radiation. After my first round in 2010 I needed at least short daily naps for 2-3 years.
I have had 4 resections since last November. 3 were on Thursdays and I returned to work the following Tuesday scars and all (albeit short working days). My coworkers thought I was crazy. After my last craniotomy in late July, I made severa...
Has he had his bloodwork checked in a while? (CBC) If he has neutropenia that could seriously depress his immune system.
The long term use of any chemotherapy can lower your neutrophil count leading to neutropenia. Neutrophils are your first line of defense against infections. Neutropenia can be reversed with injections of Neupogen.
46 year old father and husband diagnosed October 2010 with GBM. 99+% resection, radiation/Temador and a clean MRI until October 2013 with a recurrence. Entered into a dendritic cell clinical trial in November 2013 after a resection.
We care about your feedback. Let us know how we can improve your CancerCompass experience.