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johngiustino's Recent CancerCompass Activity

  • johngiustino has replied to a post on the message board

    They moved my ablation up to today at noon.  I am glad to get started on the path forward. Some of you asked if it left burned tissue behind.  I was told not. If you think about the cells of the tumor being water balloons, the ablation pops the balloon and spills the contents.  Not sure what does the clean up, but no, there is nothing burnt left behind. Until later -JG

    Yesterday at 4:05 PM view post
    • johngiustino has replied to a post on the message board

      Is he on decadron (dexamethasone) ?  If so to me, that could be the cause  Many people become distant and angry on this drug (I did) -Kevin

      August 26 at 7:05 PM view post
      • johngiustino has replied to a post on the message board

        As we all know, there are risks to any surgery or surgery like procedure.  I was informed of those.  For example, infection and so on. However, I was told the procedure is generally safe and I read up on it quite a bit and that is my impression.  The result of heating the tissue is a bit like cauderization but I have seen before and after MRI pictures in published journal articles and whatever might r...

        August 26 at 4:06 PM view post
        • johngiustino has replied to a post on the message board

          I would strongly consider pd-1.  

          August 23 at 5:41 PM view post
          • johngiustino has replied to a post on the message board

            I am curious why cryopreservation would have an advantage over flash freezing. I am not familiar with storing your tumor this way.  What do you plan to do in the future with it. Also, how much does it cost? I am asking without have any knowledge of the area. Thanks, JG

            August 23 at 5:38 PM view post
            • johngiustino has created a new message board discussion

              I recently had my 3rd resection starting in November 13.  It is my 4th overall considering the first post diagnosis on Oct 3, 2010. All have been done by the best neurosurgeons in southern CA in my opinion. The last had a very high degree of resection but there was some residual left behind, not unexpected even in the best of resections.  To clean up the rest, I have opted for laser (or thermal) ablation w...

              August 22 at 8:58 AM view discussion
              • johngiustino has replied to a post on the message board

                In SoCal, I recommend my NO, Dr. Kesari (UCSD).  He is a compassionate doctor who doese not limit his concern for you to 9 to 5 hours.  He brings in trials and treatments that he believes will help his patients and is a truly experienced and respected expert in his area.  He is part of a larger team of talented surgeons and NOs that make up the brain tumor unit at UCSD. They coordinate their efforts we...

                August 08 at 3:09 PM view post
                • johngiustino has replied to a post on the message board

                  As a patient I can relate as well.  I was the same way with my wife, she would often threaten to take the kids to her inlaws way out of town. And I don't blame her. In hindsight I feel terrible, worse than terrible over how I treated all of them during that time. I am sure your husband does and probably will to. I have another surgery coming up and I will dose myself down off the dex if my doctor does not do so...

                  July 24 at 2:13 PM view post
                  • johngiustino has replied to a post on the message board

                    Dexamethasone can supress your immune system and make you susceptible to serious infections like pneumonia.  You should talk to your doctor about this possibility.  Dexamethasone has a lot of side effects - overeating, horrible mood changes, and the above. Dexamethasone (decadron or dex) is a very important in treating inflammation of the brain and edema on the brain which can be very serious if not ...

                    July 23 at 4:36 AM view post
                    • johngiustino has replied to a post on the message board

                      The first time around the temador can be hard on you - it could be that.  After each 5 days of th 5/23 cycle.  I felt really crummy which included feeling exhausted..  I imagine she also just finished her radiotherapy which has a way of sneaking up on you.  I was told that you don't really feel the effects of radiation until about a month or so after you finish which was my experience exactly. Tho...

                      July 23 at 1:40 AM view post
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                      About johngiustino

                      Survivor
                      Brain Cancer
                      Cancer Treatments, Clinical Trials and Research, Supplements

                      46 year old father and husband diagnosed October 2010 with GBM. 99+% resection, radiation/Temador and a clean MRI until October 2013 with a recurrence. Entered into a dendritic cell clinical trial in November 2013 after a resection.

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