Fiber-based formulations appear to lower the odds for the disease, non-fiber products seem to raise them
I am recently a 4 year survivor and both fortunate and grateful to be so.
I have had long stretches where I have been able to be physically active but throughout and consistently I have had seizures. I am also lucky to live near the ocean where I spend time with my sons and enjoy time with them there.
In 2012. we took a family vacation to the Big Island where I snorkeled in 10 to 100 ft fairly isolated water ...
Are you on any other medications like dexamethasone (decadron)?
For me I have always belieived that any long-term exhaustion was the result of radiation. After my first round in 2010 I needed at least short daily naps for 2-3 years.
I have had 4 resections since last November. 3 were on Thursdays and I returned to work the following Tuesday scars and all (albeit short working days). My coworkers thought I was crazy. After my last craniotomy in late July, I made severa...
Has he had his bloodwork checked in a while? (CBC) If he has neutropenia that could seriously depress his immune system.
The long term use of any chemotherapy can lower your neutrophil count leading to neutropenia. Neutrophils are your first line of defense against infections. Neutropenia can be reversed with injections of Neupogen.
I wouldn't worry about his death I would make sure he has the best life he can have, no matter if that is 10 years or 10 months.
I know you are in a serious situation and I am not trying to be glib. Noone knows their time or place. I used to worry a lot about when and how I would die after I was diagnosed with GBM. A lot.To the point where I would wake up in the middle of the night crying for my family and mys...
About a month ago I was sitting on a bench outside my local library in Del Mar, CA
The topic of my cancer came up when the lady next to me saw the surgical scar on my head.
But then I was shocked when she told me she was diagnosed with a terminal form of cancer recently , decided to not take any chemo or radiation,etc... and to die at home where she had lived with many wonderful memories for years. I ta...
in my experience 40 mg/day is high. I had been on 18 mgs per day prescribed by one doctor because my left side was very weak and I was stumbling a lot. My NO said that was too high then tapered me down to 2 mg/day but the stumbling got really bad so then 6 mg/day and my gait got better. I am now on 4 mg/day and holding steady sort of through radiation.
The lesson is that your NO should be adjusting based on ...
I had radiation 4 years ago and in fact I lost some hair on the other side of the head where the beam passed through. The directly hit area is an oval shape 2x3 inches. It has ever been since somewhere between thinning and bald. I don't ever expect it to be any different.
W/R/T the size of the beam determining the area of hair loss - I would talk to the staff or your doctor.
I had the standard therapy which I am now repeating because my NOs believe I responded so well to it the first time. Since my first I have had 4 resections and participated in 3 clinical trials (DC vaccines) and ANG1005. I am always asked if the vaccine trials worked. My standard answer for any of the trials is that if I live to be 101 or for 101 more days I will never know. I was pulled from each trial because...
An alive day is the date of an anniversary of a very close escape from death.
After a horrible headache at work I went to urgent care.They took me from urgent care by ambulance to a larger hospital in San Diego with an ER. They said if I had gone home to sleep instead I would have never woken up.
I had air show tickets for the next day. I looked out the ambulance window and saw jets flying...
46 year old father and husband diagnosed October 2010 with GBM. 99+% resection, radiation/Temador and a clean MRI until October 2013 with a recurrence. Entered into a dendritic cell clinical trial in November 2013 after a resection.
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