I am Jon with wife Jan. I am 57.
I had Glioblastoma multiforme 4 surgery JUNE 15, 2010. I had radiation & chemo after surgery.
I am off Temodar after 24 months now, Sept. 2012.
I feel fair at best, but have lost a lot of my cognitive skills and the fatigue factor is increasing quickly from the chemo.
I am looking for someone close in age (prognosis age dependent), same cancer (Glioblastoma multiforme IV. Thanks!!
Fatigue factor, short term memory and leg, foot and hand pain worsening.
Symptoms described above are consistent. I have a choice of prolonged lifespan with a compromise in the quality of life, or death. I am comfortable evaluating both options.
I will continue palliative treatments and prolonged life at this time.
I have to mention that I am a picky industrial engineer. Critical thinking is extremely important with this terminal illness.
I am truly annoyed by uninformed ignorant opinions and speculations that I read here so often.
Anyone with this type of cancer has to look at it seriously and not snivel or base thoughts on ignorance. There are HUGE resources on the internet to allow most to understand this, the options, side effects and treatments. The MOST important knowledge points are the many factors that are involved with this cancer. Research and learn them. Use your intelligence to its best degree. Avoid ignorance and speculation as much as possible. There are just too many variables with this cancer.
Otherwise these forums become sniveling posts. Okay for some people who really need their hand held for this ugly time in life.