Loading...

karenhasch's Recent CancerCompass Activity

  • karenhasch has created a new message board discussion

    Hi Everyone, I'm having surgery on Friday, to remove my oligo.  I keep reading that seizures are very likely after surgery and can last a long time.  Is there anyone out there who just started having seizures after surgery?  I have never had seizures before and now I'm very worried.  Thank you for your responses. Karen

    October 27 at 3:13 PM view discussion
    • karenhasch has replied to a post on the message board

      Thank you so much for letting me know this.  I am so up in the air about doing this that it is driving me crazy.  I've had so much go wrong already that I'm always thinking the worse.  It is so refreshing to hear you are doing good for 9 years now? I hope this is the case! Thank you again and my thoughts and prayers are with you. Karen

      October 16 at 8:40 PM view post
      • karenhasch has replied to a post on the message board

        Thank you for your response.  I just am so afraid to have the wafers.  My surgeon says he uses them but another surgeon said he would never use them because the risks outweigh the benefits.  I am so confused on what to do.  I will go the the websites you mentioned.  Thank you.

        October 16 at 2:19 AM view post
        • karenhasch has replied to a post on the message board

          So nice to hear!!!!! I'm so happy for him.  What a blessing that they have worked for him.  

          October 15 at 3:38 PM view post
          • karenhasch has replied to a post on the message board

            Thank you for your reply.  I asked my dr. about them again yesterday and he told me that he was in on the trial of the wafers about 10 years ago and he has had only one person get an infection.  I forgot to ask him about the delayed wound healing but I will.  Now I'm really freaked out because I keep reading the same things that you just said. Thank you............. Karen

            October 15 at 2:55 PM view post
            • karenhasch has created a new message board discussion

              Hi everyone, I'm having surgery in a few weeks and was trying to find out some info on the gliadel wafers that are implanted in your brain at the same time of the removal of your tumor.  I keep reading about the side effects and am very afraid to get them now.  They contain the chemo drug BCNU.  Any comments would help tremendously.  Thank you. Karen

              October 10 at 6:20 PM view discussion
              • karenhasch has replied to a post on the message board

                I was diagnosed about 8 yrs. ago with a low grade tumor, oligodendroglioma.  Still alive!  I've taken temodar, chemo drug, pill form.  It helped me for awhile and then I had radiation, now it's back so I'm going to do surgery.  Have you not gone to an oncologist or neurosurgeon?  There are lots of options for her and she should do very well.  Please take care and have hope! Karen

                October 09 at 5:08 PM view post
                • karenhasch has replied to a post on the message board

                  Hi Denise, I had such a bad rash after my first month of Temodar it just about drove me nuts.  My dr. prescribed dexamethasone, the steriod.  I took it the day before I started the Temoda, during, and the day after the last dose.  It helped tremendously, I never had the rash or itching again. Take Care, Karen

                  September 30 at 3:34 PM view post
                  • karenhasch has created a new message board discussion

                    Hi Everyone: I've had an oligodendroglioma for about 9 years now.  I've had Temodar, and radiation.  The last round of Temodar gave me ITP and my platelets went down to 1, it was a nightmare.  So I did radiation last summer.  In January of 2014 my oligo started to show up again on my MRI in the right frontal lobe and has progressed slowly all year.  I'm now going to get surgery to try and re...

                    September 30 at 3:29 PM view discussion
                    • karenhasch has created a new message board discussion

                      Hi Everyone, I've had radiation, temodar (2x) and now I might have to take Procarbazine w/CCNU.  Can I get some feedback on the Procarbzine w/CCNU in comparison to the temodar?  I'm reading about it but it sounds pretty scary to me since I've had a bout with ITP, (low platelets) which hospitalized me.  I'm also on a blood thinner now.  I'm really starting to get depressed whereas I just want to g...

                      February 18 at 9:39 PM view discussion
                      Loading...
                      Load more activity
                      Loading more activity

                      About karenhasch

                      Patient
                      Brain Cancer
                      Chemotherapy, Radiation

                      My doctors tell me that I have a low-grade glioma that I've had for about 5 years now and it's starting to spread so I'm getting a biopsy in a few weeks. He also told me that I would have radiation for about 5 weeks. I'm afraid it's going to effect by thinking and other things.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.