Loading...

kat54's Recent CancerCompass Activity

  • kat54 has replied to a post on the message board

    Sabrina I am sorry about your mom.  this month is my 22nd year survivor ship GBMIV. I was 38. My son was 15 when I was diagnosed. I know both sides of how you feel.  Click on my name to read my whole story and profile.  I wish the best for your mom and successful treatment.  I did everything wrong when it came to diet. I have no clue why I did so well.  Don't get too stuck on statistics.&nbs...

    Yesterday at 2:31 AM view post
    • kat54 has replied to a post on the message board

      congratulations on your success.  I am 22 years out GBMIV.  I have heard the pineal gland which regulates melitonin may have been damaged by radiation therefore we sleep alot.  it does get better wiith time. keep up the good fight kathleen

      January 08 at 3:08 PM view post
      • kat54 has replied to a post on the message board

        I am sorry for your husband's diagnosis.  Try not to focus on prognosis statistics too much there are many long term survivors out here. I am 22 years this month. my full story is under my profile just click on my name to see it. also check out virtual trials.com for survivor stories.  Prayers for strength and courage for you both and successful treatment.  kathleen

        January 06 at 5:44 AM view post
        • kat54 has replied to a post on the message board

          Angeluv, I am sorry for your husband's diagnosis.  I just want to encourage you not to get too focused on statistics and prognosis.  Jan. 1993 I was told 6-9 months diagnosis with GBMIV.  In May 1995 my family was told not to expect me to live through the weekend.  My diagnosis was confirmed by Johns Hopkins, MD Anderson, Dana Farber and Brighem & Women's in Boston.  Only God knows when...

          January 01 at 4:27 PM view post
          • kat54 has replied to a post on the message board

            In 1993 after 1st surgery and GBM diagnosis  I only did 6 weeks radiation then stereotactic radiosurgery.  2nd surgery in 1995. no chemo because back then nothing crossed the brain blood barrier. I chose to save chemo for last and so far have not needed it.  wish you the best and much success with your treatment.  kathleen

            October 30 at 1:34 AM view post
            • kat54 has replied to a post on the message board

              I was 38 when diagnosed. just turned 60.  my profile has my full story.  Kathleen

              October 19 at 5:28 PM view post
              • kat54 has replied to a post on the message board

                I flew from Louisiana to Boston and back three months after my first GBM surgery in 1993.  In the 21 years since I have flown many times short and long distance (12 hours) flights. have had no problems.  I hope you trip is wonderful! ENJOY!  Kathleen 

                October 18 at 6:20 PM view post
                • kat54 has replied to a post on the message board

                  glad they are finally revising the numbers. I'm a 21 year GBM survivor and there are several more even longer out here!  Kathleen

                  October 18 at 6:11 PM view post
                  • kat54 has replied to a post on the message board

                    Forry you are here. See my profile. 21 years here in GBM world.  Kathleen

                    October 16 at 12:17 AM view post
                    • kat54 has replied to a post on the message board

                      This is a good convrsation!  I am 21 year GBM survivor diagnosed in 1993.  Started at 38 just turned 60 last week.  My son was 15 I was blessed to see him Graduate HS, College get Married and am now Great Grandma to our great grandbabies provided by grandchildren of my husbands 4 older children. My first surgery radiation, radiosurgery and recovery was fairly easy eventhough I haven't been a...

                      October 14 at 9:10 PM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About kat54

                      Survivor
                      Brain Cancer
                      Support

                      Tell everyone a little bit about yourselfDiagnosed Jan. 1993 at the age of 38 with GBMIV located in right temporal lobe had resection followed by radiation then stereotactic radiosurgery at Brigham & Women's. had recurrence in May 1995 followed by resection June 1, 1995. No further treatment. followed yearly by MRI

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.