Loading...

kat54's Recent CancerCompass Activity

  • kat54 has replied to a post on the message board

    I was diagnosed GBM in 1993 and went on social security disability  then medicare in 1995. I got a supplemental policy from aarp. I have lived in several states, now in OK.  We lived in ST Croix for 7 years. I continue to see my original surgeon and seldom have any out of pocket expenses.  kathleen

    July 19 at 12:40 AM view post
    • kat54 has replied to a post on the message board

      dr's said it calmed the nerves to help itching pretty large dose don't remember exact strength. just remember us talking about large amount.

      July 15 at 3:39 AM view post
      • kat54 has replied to a post on the message board

        dr's gave my dad ativan for itching. he had pancreatic cancer that spread to liver.  he did not do chemo. said itching was from liver involvement.

        July 14 at 12:17 PM view post
        • kat54 has replied to a post on the message board

          I don't cry any more either.  I think mine comes from anti deptessants or seizure meds.  I also don't feel real joy just level emotions no ups or downs.

          July 13 at 1:21 AM view post
          • kat54 has replied to a post on the message board

            Try not to get too hung up on statistics for GBM.  I was diagnosed at 38 in 1993!! many are surviving long term. the younger people seem to do much better.  prayers for strength and successful treatment.  kathleen

            July 10 at 1:37 PM view post
            • kat54 has replied to a post on the message board

              brainhospice.com is a good site for information

              July 07 at 12:50 PM view post
              • kat54 has replied to a post on the message board

                People do say the strangest things.  when I was first diagnosed in 1993 with GBMIV.  the Drs. said the usual 6-9 months.  people actually asked my husband of 16 years if he was going to put me in a home and divorce me so he could get on with his life!! We celebrate 37 years in July!! he has been there every step of the way for me.

                May 29 at 4:19 PM view post
                • kat54 has replied to a post on the message board

                  I kept a notebook handy and wrote question as I thought of them and took it too all apointments then asked de to spell words and talk slowly. i wrote down everything. 21 years later I still use same notebook. 

                  May 19 at 11:51 AM view post
                  • kat54 has replied to a post on the message board

                    I've been thinking about you both and praying for strength and patience for you both.  There are lots of shoulders here to share your load.  Remember to take care of yourself. Kathleen

                    May 06 at 3:31 AM view post
                    • kat54 has replied to a post on the message board

                      you get the disability right away but must wait 2 years for medicare.

                      May 02 at 12:27 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About kat54

                      Survivor
                      Brain Cancer
                      Support

                      Tell everyone a little bit about yourselfDiagnosed Jan. 1993 at the age of 38 with GBMIV located in right temporal lobe had resection followed by radiation then stereotactic radiosurgery at Brigham & Women's. had recurrence in May 1995 followed by resection June 1, 1995. No further treatment. followed yearly by MRI

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.