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kat54's Recent CancerCompass Activity

  • kat54 has replied to a post on the message board

    PeggyW  I am sorry you and your husband are dealing with GBM.  I am a 22 year survivor Of GBM.  Please remember your husbands brain has suffered major trauma in th last few months. It takes several months to recover from general anesthetic from the surgery .  Add to that his brain has been sliced and diced, fried with radiation and marinated with chemo.  The brain heals best with little stimu...

    November 03 at 2:17 PM view post
    • kat54 has replied to a post on the message board

      I'm 23 years out from whole brain, focused and radiosurgery radiation.  I do have some problems with concentration. I am 60now and had part of my temporal lobe and frontal lobe removed. I don't know if it's age, surgery  or radiation. it bought me 23 years with GBM so I try not to complain too much. it's probably a combo of it all. I wish you and your all the best possible out comes.  kathleen

      September 21 at 3:08 PM view post
      • kat54 has replied to a post on the message board

        I have thought of you often these past months and prayed you would find some peace and comfort. I was glad to see this post and that you are moving on. Continued blessings, Kathleen

        August 05 at 1:44 PM view post
        • kat54 has replied to a post on the message board

          Marybeth look into a medicare supplement. compared to your copays the premium is not much I ave one and seldom have any out of pocket costs. kathleen

          April 24 at 7:52 PM view post
          • kat54 has replied to a post on the message board

            get a second opinion!! get a second opinion! I was told the same thing in 1993.  my GBM was in the same location. I had t removed twice 93 and 95. How old is your mother in law?  there are many long term survivors .  check out a sit...

            March 18 at 3:16 PM view post
            • kat54 has replied to a post on the message board

              Emily my surgeon is in Lafayette,Louisiana. He was 32 for my 1st surgery and 34 for my second. he graduated from Harvard, I was his 100th patient. I still see him once a year to review my MRI. My pathology slides were reviewed at Brigham & Women's in Boston, MD Aderson and Johns Hopkins so there is no doubt if my tumor was GBMIV.  Kathleen

              February 26 at 12:33 AM view post
              • kat54 has replied to a post on the message board

                Hi Emily, I am sorry about your Dad.  I am a 22 year GBMIV survivor. I had 2 surgeries for my tumor located in right temporal lobe. ist surgery in 1993. In 1995 I had a recurrence and at that time the dr removed most of my right temporal lobe to aggressively remove tumor and margins.  I had had no further recurrence and very good quality of life. right after surgery it was rough but as I healed and swelling...

                February 25 at 4:58 PM view post
                • kat54 has replied to a post on the message board

                  I am a 22 yr  gbmiv survivor and I too was only on decadron  and dilantin after surgery and soon weaned off the decadron. Iam sorry for the diagnosis but check out virtual trials.com. you will find many survivor stories and help about treatments and meds.   Prayers you find the right treatment combination.  Kathleen

                  February 14 at 4:43 AM view post
                  • kat54 has replied to a post on the message board

                    Yes it happened in 1995 that is when most of mt temporal lobe was removed. kathleen

                    February 12 at 7:39 PM view post
                    • kat54 has replied to a post on the message board

                      Paul , Sory you have joined this club.  I had radiation 22 years ago in my rt temporal/frontal lobe.  ended up having most of my temporal lobe removed. I  experienced extreme fatigue for a good while after not much else I can relate to the actual radiation treatments themselves no pain was involved. I never knew if the few problems (short term memory, confusion and left side weakness) I have experience...

                      February 12 at 2:24 PM view post
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                      About kat54

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                      Tell everyone a little bit about yourselfDiagnosed Jan. 1993 at the age of 38 with GBMIV located in right temporal lobe had resection followed by radiation then stereotactic radiosurgery at Brigham & Women's. had recurrence in May 1995 followed by resection June 1, 1995. No further treatment. followed yearly by MRI

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