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kat54's Recent CancerCompass Activity

  • kat54 has replied to a post on the message board

    I'm glad you got a little relief today.  my prayers for strength through this are with you and your family.  kathleen

    16 hours ago view post
    • kat54 has replied to a post on the message board

      I am so sorry to read this. Your son has fought so very hard and I know you have searched for every possible treatment. What does your son want to do regarding shunt surgery  at this point?  I have no suggestions but want you to know you will be in my thoughts and prayers that God will hold you both close and you can have some peace knowing you tried everything possible.  as a mother too my heart is b...

      16 hours ago view post
      • kat54 has replied to a post on the message board

        I am 21 year GBM IV survivor that did not do chemo.  when dx in 1993 chemo did not cross the brain blood barrier effectively.  I opted to save it for last resort. I did 36 radiation treatments followed by stereotactic radiosurgery. I wish you success in your treatment, kathleen

        Wednesday at 2:08 PM view post
        • kat54 has replied to a post on the message board

          In January, 1993, at the age of 38 I was diagnosed with GBM. In Oct. 1992, I began to notice little changes in my mental capacity. Difficulty in solving problems, taking longer to complete tasks and terrible short term memory. At first I thought it was the pressure of starting a new job. I was a paralegal for a chapter 7 bankruptcy trustee and preparing for my first trip to Europe to meet my husband on his temporary...

          April 09 at 2:05 PM view post
          • kat54 has replied to a post on the message board

            In January, 1993, at the age of 38 I was diagnosed with GBM. In Oct. 1992, I began to notice little changes in my mental capacity. Difficulty in solving problems, taking longer to complete tasks and terrible short term memory. At first I thought it was the pressure of starting a new job. I was a paralegal for a chapter 7 bankruptcy trustee and preparing for my first trip to Europe to meet my husband on his temporary...

            March 26 at 3:11 AM view post
            • kat54 has replied to a post on the message board

              I stayed with my same hometown  (Lafayette Louisiana)surgeon.  still see him now after 21 years GBM survival.  He had just graduated from Harvard  and still associated with Brigham & Women's hospital and Dana Farber Cancer clinic in Boston.  my slides were reviewed in Boston and at MD Anderson in Houston.  as long as your dr and hospital can communicate with larger facilities I see n...

              March 20 at 10:30 PM view post
              • kat54 has replied to a post on the message board

                In January, 1993, at the age of 38 I was diagnosed with GBM. In Oct. 1992, I began to notice little changes in my mental capacity. Difficulty in solving problems, taking longer to complete tasks and terrible short term memory. At first I thought it was the pressure of starting a new job. I was a paralegal for a chapter 7 bankruptcy trustee and preparing for my first trip to Europe to meet my husband on his temporary...

                March 13 at 4:02 PM view post
                • kat54 has replied to a post on the message board

                  I am sorry for you all I am responding  regarding your  son.  my son was 16 when I was diagnosed with GBMIV brain cancer and given only 6-9 months.  today 21 years later he is 37, married, a teacher and college football coach.  we told him everything from the beginning  even took him ti dr, visits.  he never felt like we withheld anything from him. he says it was easier than not kno...

                  March 08 at 6:14 PM view post
                  • kat54 has replied to a post on the message board

                    prayers will be with you .  let us know outcome, kathleen

                    March 04 at 3:09 AM view post
                    • kat54 has replied to a post on the message board

                      Margo, I did all the wrong things according to today's standards.  I ate lots of chocolate, drank real coke, slept days at a time. did not do chemo because at the time it did not cross the brain blood barrier.  all I can say is God granted us a miracle.  lots  of prayer.  my full story  is at yasg.com under bios kathleen rhodes

                      March 04 at 12:06 AM view post
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                      About kat54

                      Survivor
                      Brain Cancer
                      Support

                      Tell everyone a little bit about yourselfDiagnosed Jan. 1993 at the age of 38 with GBMIV located in right temporal lobe had resection followed by radiation then stereotactic radiosurgery at Brigham & Women's. had recurrence in May 1995 followed by resection June 1, 1995. No further treatment. followed yearly by MRI

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