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kat54's Recent CancerCompass Activity

  • kat54 has replied to a post on the message board

    I  am sorry for you and your Dad.  I was diagnosed GBM 1993  in Louisiana and flew several times to Boston for radiation treatments. flying was no problem in all these years I have flown many tmes.  I hope you find a successful treatment. There are many long term survivors out here.  I wish you the best. kathleen

    Monday at 12:03 PM view post
    • kat54 has replied to a post on the message board

      21 year survivor here.  prayers for treatment success for your husband.  my story is at my profile.  Sorry you are on this path.  kathleen

      September 03 at 4:06 AM view post
      • kat54 has replied to a post on the message board

        Jon, I'm so sorry for you.  Your wife was blessed to have you by her side fighting with her every step of the way.  Prayers for strength and comfort for you.  kathleen

        August 22 at 1:12 PM view post
        • kat54 has replied to a post on the message board

          I am so sorry to read this. I saw something in a previous post you wrote and have been hoping I was misreading it. You and Jeff both fought so hard. I know you did everything humanly possible as a mother to help him in this struggle. Please try to take care of yourself . I am praying for strength and comfort for you during this terribly difficult time. So many of us have come to care for Jeff through your words. My t...

          August 16 at 2:42 PM view post
          • kat54 has replied to a post on the message board

            I was 38.  you can see my story if you look at my profile, kathleen

            August 12 at 12:52 PM view post
            • kat54 has replied to a post on the message board

              Let her sleep.!  I am a 21 year GBM survivor.  I slept like that in the beginning too. please read up on traumatic brain injury and healing. stimulation of any kind wears one out. the brain only heals when it can rest. I am sorry you all are facing this and will pray for successful outcome with treatment.  be patient her brain has been sliced and diced, marinated and now fried!  I felt like a tar...

              August 12 at 2:35 AM view post
              • kat54 has replied to a post on the message board

                I was diagnosed GBM in 1993 and went on social security disability  then medicare in 1995. I got a supplemental policy from aarp. I have lived in several states, now in OK.  We lived in ST Croix for 7 years. I continue to see my original surgeon and seldom have any out of pocket expenses.  kathleen

                July 19 at 12:40 AM view post
                • kat54 has replied to a post on the message board

                  dr's said it calmed the nerves to help itching pretty large dose don't remember exact strength. just remember us talking about large amount.

                  July 15 at 3:39 AM view post
                  • kat54 has replied to a post on the message board

                    dr's gave my dad ativan for itching. he had pancreatic cancer that spread to liver.  he did not do chemo. said itching was from liver involvement.

                    July 14 at 12:17 PM view post
                    • kat54 has replied to a post on the message board

                      I don't cry any more either.  I think mine comes from anti deptessants or seizure meds.  I also don't feel real joy just level emotions no ups or downs.

                      July 13 at 1:21 AM view post
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                      About kat54

                      Survivor
                      Brain Cancer
                      Support

                      Tell everyone a little bit about yourselfDiagnosed Jan. 1993 at the age of 38 with GBMIV located in right temporal lobe had resection followed by radiation then stereotactic radiosurgery at Brigham & Women's. had recurrence in May 1995 followed by resection June 1, 1995. No further treatment. followed yearly by MRI

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