kathye

kathye's Recent CancerCompass Activity

• kathye has created a new message board discussion

  Original dx 11/06' 85% resection, followed by 21 months of Temodar. Never got a clear MRI, but they remained stable until Oct. 1st, those dreaded words after almost 6 years, progression. New growth is inoperable, not a candidate for rads. Neuro-oncologist has offered Temodar again (I have both deletions, oligo ll) or Avastin. Could I get some input . They want me to start by next Wed. I have been off the boards f...

  November 15 at 3:18 AM view discussion

• kathye has created a new message board discussion

  1st in nov. 2006 dx with Oligo ll, surgery, 21 rounds Temodar, back to work, the remaining tumor stayed "stable" until this month, when definite progression is showing up. The MRI in May was still showing stable. The only reason one was scheduled this quickly is because I was going in for a 5 day EEG. My seizures have been uncontrollable with AED's, since DX. Surgery is being considered to remove the seizure focus, ...

  October 22 at 1:32 AM view discussion