kmooshian

kmooshian's Recent CancerCompass Activity

• kmooshian has created a new message board discussion

  My husband started having seizures about a week after having a 2nd crainiotomy.  He was on 1000mg of Keppra a day (preventative) when they started.  He was combative and confused, but his sodium levels were a little low so they blamed it on that.  A few days ago, he started having tremors and staring off into space and it became obvious he was having seizures.  They upped the Keppra, but he still ...

  July 08 at 10:54 PM view discussion

• kmooshian has created a new message board discussion

  Does anyone have any experience with Novocure?

  June 22 at 2:56 PM view discussion

• kmooshian has replied to a post on the message board

  My concern with Avastin is I've heard it either works really well or not at all and also other things tend not to work as well once you've tried Avastin.  It just feel like we should try something else first.

  June 22 at 2:55 PM view post

• kmooshian has created a new message board discussion

  My husband just came home from the Hospital after surgey to have his tumor removed for the 2nd time. What different treatments have any of you used?  We want to know everything that is out there and how other people did to make the best choice.  I know Avastin w/ Temodar is the first thing recommended by doctors, but we are not sure this is the best option. Thanks- Kathleen

  June 21 at 9:19 PM view discussion

• kmooshian has replied to a post on the message board

  I totally get your feelings.  I am coming from the spouse side though.  My husband has a brain tumor.  He did really well for over a year and has recently had a recurrence and seems so miserable from the chemo.  I try to be supportive, but I get so scared sometimes about losing him and I feel like I close myself off from him. We have 5 children in their 20s and a 7 year old. I worry about the poss...

  June 07 at 4:38 PM view post

• kmooshian has replied to a post on the message board

  I don't have any statistics on ABT-888, but our Neuro Oncologist thinks it's the best treatment option at this time for my husband. She's very happy with the early results and is doing a Phase II trial at Fox Chase.  A Neuro Oncolgist my sister knows in Saly Lake City also recommended it and is now trying to start a Trial of his own. My husband is now on daily Temodar and Claravis (the same as Accutane).  ...

  June 07 at 3:57 PM view post

• kmooshian has created a new message board discussion

  I feel a little ridiculous aking this, but does any one else have a spouse who moans and groans constantly? I feel so bad, he has GBM and does daily chemo and gets stomach cramps.  He says the groaning makes him feel better.  But does he have to do it all the time and so loudly? I don't even think he knows he does it anymore. I've asked him to please be quieter, but he just gets mad at me. From comments he ...

  June 06 at 3:53 PM view discussion

• kmooshian has replied to a post on the message board

  I hear good things about it.  We were signed up for the trial and our Insurance Company denied coverage.  We were very upset!

  June 06 at 3:36 PM view post

• kmooshian has replied to a post on the message board

  Thank you!!!

  May 15, 2012 view post

• kmooshian has replied to a post on the message board

  I can only find 6x Calc. Phos. on the Homeopathis site.  Is that ok?

  May 14, 2012 view post