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ktophermac's Recent CancerCompass Activity

  • KtopherMac has replied to a post on the message board

    I do a few speaking type things...and I watch these boards here or there.  The best things someone with cancer can have are hope and perspective.

    June 12 at 9:05 PM view post
    • KtopherMac has replied to a post on the message board

      D, I firmly believe it was my approach that helped saved my life.  I was willing to die trying, rather than just being reserved to dying.  In August/Sept it will be 4 years since the last little bit of cancer was cut out of me....4 Years NED.  Thanks for the kind words.  I dont play the lottery, but I share my story to give others hope and I try to raise awareness.  It's important to questio...

      June 12 at 4:30 PM view post
      • KtopherMac has replied to a post on the message board

        My case was a little complicated.  I had to get to lung resections done after the liver resection.  They happened a few days after that crest in recovery from liver resection.  They were easier and recovery was quick.  It is safe to say after a surgery that it could be as long as 8-10 weeks.  If her chemo includes Avastin, the 8 weeks is a minimum to allow recovery and alleviate bleeding risk...

        June 11 at 1:05 PM view post
        • KtopherMac has replied to a post on the message board

          I went through this!  I was diagnosed at stage 4 in Nov of 2009, after all of the surgeries and pre and post op chemo rounds I beat it.  I had 75% of my liver removed, but had 2 portal vein embolizations first.  I had that fatigue post liver resection, it takes a lot for your body to regenerate it.  I had my most challenging day, and then it crested and I bounced back.  It is a tough surgery ...

          June 11 at 12:44 PM view post
          • KtopherMac has replied to a post on the message board

            I do c/t scans to watch over things...a pet scan is the best when it comes to fast growing cells that show a big uptake of sugars/dyes. MRI is also a great alternative, and I know some people who have MRI to watch. The c/t scan can be of varying slices, and it depends on how new the machine itself is as well. The center I go to uses a very new machine and they typically do 32 slice views. The pet scan uses a dye...

            October 03, 2013 view post
            • KtopherMac has replied to a post on the message board

              I ate what tasted good to me, and with chemo that changed a lot.  I was not one of the folks that limited my diet to items free of sugar, organic, juicing or any other hollistics style approach.  I did stop eating red meat intially but now limit drastically to maybe 2 times a month, limit any items cooked on a grill with any char'ing.  I ate fruits, vegetables, salads, lots of chicken, rice (white, bro...

              October 01, 2013 view post
              • KtopherMac has replied to a post on the message board

                Hi,   Avastin has bleeding issues and should be held off if surgery is going to be done.  They would also require an 8 weeks wait between Avastin does and surgery.  Avastin is quite strong, it is actually not chemo therapy in the tradtional sense.  It works with certain growth factors by targeting them and not allowing blood vessel formation to feed tumors, rather than targeting fast growing cel...

                October 01, 2013 view post
                • KtopherMac has replied to a post on the message board

                  Kathy,   I completely agree with the exercise.  It helps keep energy levels up and promotes circulation during chemo (which studies have shown helps its effectiveness).  I did lear a valuable lesson when I took that a little overboard...wearing the chemo pump to the gym isnt easy on a treadmill and sweating with that pump on is also not a great idea.  Obviously wanting to hit every angle needs s...

                  September 27, 2013 view post
                  • KtopherMac has replied to a post on the message board

                    I had the same reaction to my last dose of oxaliplatin.  I had read the info on the drug and as soon as they started the infusion I felt the weird feeling in the back of my throat and stopped it and called the nurse over.  I went into a seizure and then woke up 3hrs later stable.  It was a horrible event for my partner who was with me, I got to basically get drugged up and sleep through it.  I am ...

                    September 27, 2013 view post
                    • KtopherMac has changed their profile photo
                      September 25, 2013
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                      About ktophermac

                      Survivor
                      Colon Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Side Effects, Surgery

                      Stage 4 Colon Cancer Survivor: Mets to Liver, Lymph and Both Lungs

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