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ktophermac's Recent CancerCompass Activity

  • KtopherMac has replied to a post on the message board

    I do c/t scans to watch over things...a pet scan is the best when it comes to fast growing cells that show a big uptake of sugars/dyes. MRI is also a great alternative, and I know some people who have MRI to watch. The c/t scan can be of varying slices, and it depends on how new the machine itself is as well. The center I go to uses a very new machine and they typically do 32 slice views. The pet scan uses a dye...

    October 03 at 5:11 PM view post
    • KtopherMac has replied to a post on the message board

      I ate what tasted good to me, and with chemo that changed a lot.  I was not one of the folks that limited my diet to items free of sugar, organic, juicing or any other hollistics style approach.  I did stop eating red meat intially but now limit drastically to maybe 2 times a month, limit any items cooked on a grill with any char'ing.  I ate fruits, vegetables, salads, lots of chicken, rice (white, bro...

      October 01 at 6:29 PM view post
      • KtopherMac has replied to a post on the message board

        Hi,   Avastin has bleeding issues and should be held off if surgery is going to be done.  They would also require an 8 weeks wait between Avastin does and surgery.  Avastin is quite strong, it is actually not chemo therapy in the tradtional sense.  It works with certain growth factors by targeting them and not allowing blood vessel formation to feed tumors, rather than targeting fast growing cel...

        October 01 at 12:35 PM view post
        • KtopherMac has replied to a post on the message board

          Kathy,   I completely agree with the exercise.  It helps keep energy levels up and promotes circulation during chemo (which studies have shown helps its effectiveness).  I did lear a valuable lesson when I took that a little overboard...wearing the chemo pump to the gym isnt easy on a treadmill and sweating with that pump on is also not a great idea.  Obviously wanting to hit every angle needs s...

          September 27 at 12:14 PM view post
          • KtopherMac has replied to a post on the message board

            I had the same reaction to my last dose of oxaliplatin.  I had read the info on the drug and as soon as they started the infusion I felt the weird feeling in the back of my throat and stopped it and called the nurse over.  I went into a seizure and then woke up 3hrs later stable.  It was a horrible event for my partner who was with me, I got to basically get drugged up and sleep through it.  I am ...

            September 27 at 12:09 PM view post
            • KtopherMac has changed their profile photo
              September 25 at 8:33 PM
              • KtopherMac has replied to a post on the message board

                Bryan,   I am happy to answer questions, share my experience. I did 8 doses of chemo after my surgeries and then have not had any since.  I went to C/T scans every 3 months and am now at C/T scans every 6 months.  NO recurrence.  The first 12 months after surgeries to remove tumors is the time at greatest risk of recurrence, that lung nodule may have been microscopic and "hiding out" for a lack...

                September 25 at 7:36 PM view post
                • KtopherMac has replied to a post on the message board

                  kathy, weird mention of chocolate.  I was a huge fan of chocolate until chemo...but during chemo i discovered Dark Chocolate was actually pretty good, but my standard milk wasn't as good any more. 

                  September 25 at 3:42 PM view post
                  • KtopherMac has replied to a post on the message board

                    They can also add in magnesium and calcium to help with the nueropathy.  The 5FU is what I thought was the cause of food tasting bad, I hated things I normally loved and loved things I used to hate when on chemo.  I also wore gloves around the house as needed.  Mine dimished the day or so before each next treatment, so little break on the cold reaction.  Ensure is great, but warm its not so good.&...

                    September 25 at 2:59 PM view post
                    • KtopherMac has replied to a post on the message board

                      After surgery I had another 8 rounds of chemo/treatment.  My chemo was 5FU, oxaliplatin, luecovorin and avastin (bevacuvimab).  The oxaliplatin was replaced on the final dose with ironotecan based on a reaction to oxaliplatin during infusion (anaphylaxis...so it is important to speak up during infusion if you fee weird suddenly, in this case it felt like crystals in my throat).  The chemo rounds after ...

                      September 22 at 12:04 PM view post
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                      About ktophermac

                      Survivor
                      Colon Cancer
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Side Effects, Surgery

                      Stage 4 Colon Cancer Survivor: Mets to Liver, Lymph and Both Lungs

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