laureanneh

Would like to know how you are doing now??

I am looking for some people who have had base of tongue cancer with the surgical treatment options.  I hear of so many people who went the radiation/chemo route - I am beginning to doubt if I made the right discision?? I had my surgery on 9/3/2010.  I had 3/4 of my tongue removed and replaced with skin from my left wrist, graft from my leftleg.  Trach for a month, feeding tube about 6 weeks.  Had 19 lymph nodes removed, 1 tooth extracted, gum and jaw broked to remove tumor.  I mainly use ensure mixed with ice cream and protein powder 2-3 times a day.  I can eat soft items such as snack cakes, cakes, cookies etc - trying solid food a little each day - Have trouble moving it to the back of my throat to swallow.  Have to crush all my meds.  I would love to hear from others who had the surgery!!

I was diagnoised with tongue cancer in July 2010...After being misdiagnoised for 2 years.  Everyone said it was nothing ...some saying it was Lichen Plantis.  Do not mess around - Make sure you are under the care of a ENT -Ear,nose & Throat specialist ..and first on the list should be a PET scan.  Do you know where it is located" --Has he has a biopsy?  I am now 6 months into my treatment and would be glad to be there for you should you want questions answer ..keep posting!

LaureanneH

On Mar 22, 2011 10:31 AM juliepearson wrote:

On Mar 22, 2011 9:56 AM juliepearson wrote:

hi all my husbands dentist advised him to see a doctor as he had a couple of very small like white ulcers on the floor of his mouth the doctor told him not to worry and gave his some mouth wash to use this was last june they did not effect him so he ignored them we were getting married so guess he did not think about it anyway they started to get sore so he went back to the doctors who said he would refer us to  the hospital. letter came  for a consoltation and the doctor told us that it did not look good done the biopsy there and then which was a week ago tomorrow she booked us in for the ct scan which we are having this saturday as she said she wants the results back for when we have to go to get biopsy results next tuesday, she said that his lymph glands are swollen but the left hand side is swollen more we are currently in the uk so we do not need insurance, what was ure cancer and what were ure syptoms when i go for the ct scan will they give me any indications or will i have to wait to see the doctor at the hospital again sorry for waffling i am just trying to find out as much as i can many thanks again julie xx

just checking how i recieve my replies

Make sure that you follow up with the doctor you are seeing ...but if they say it is nothing or give you cream to use etc ....please go ASAP to a Ear Nose & Throat doctor.  I was misdiagnoised for 2 years until I was diagnoised with stage 4 tongue cancer ..I had 3/4 of my tongue removed and am still in recovery with 19 lymph nodes removed as well ...Keep us posted and if you need support/advice we are here!