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lilyislove's Recent CancerCompass Activity

  • Lilyislove has replied to a post on the message board

    Hi everyone, I was reading this post about appetite stimulants.  Marinol is $1,000.00??!!  And it is marijuana based?  Oh please!  The cost of these drugs is just one more stress that those dealing with cancer just don't need.  Soapbox time:  What the hell?  A person gets cancer and in the space of just a couple of months they have to worry about if making the mortgage or having c...

    April 23, 2012 view post
    • Lilyislove has replied to a post on the message board

      To mooshy36, I just read your post of yesterday.  It sound like your dear husband is experiencing some rough side effects and I am sorry. Is the 4th week of solid sleep and being very tired something more new?  Were his fatigue side effects less earlier on?  I see that your husband is quiite young.  So is my brother (57). My brother has RCC and had his kidney removed in 2009.  Masses h...

      April 23, 2012 view post
      • Lilyislove has replied to a post on the message board

        Hi Everyone on Fatigue with Sutent. mrbuck, Wow, how wonderful that your husband does not have the extreme fatigue that it seems many do while taking Sutent.  Would I be out of line to ask how old your husband is?  Is he able to continue working?  I know my brother is hopeful to be one of the few who will not have the extreme fatigue and really hopes he can continue to work. From what I read here on...

        April 23, 2012 view post
        • Lilyislove has created a new message board discussion

          My brother is to start sutent for stage 4 kidney cancer.  Kidney removed Feb. 09 and doctor's thought they got it all.  Now has spread to the sigmoid sinus and lymph nodes in chest, (which I am to understand is rare) and to lymph nodes in chest. The sinus tumor is vascular in nature.  He is told life expectancy is 4-6 months without treatment.  He is very concerned about the side effects of sute...

          April 14, 2012 view discussion
          • Lilyislove has replied to a post on the message board

            My brother is to start sutent for stage 4 kidney cancer.  Kidney removed Feb. 09 and doctor's thought they got it all.  Now has spread to the sigmoid sinus, which I am to understand is rare. The tumor is vascular in nature.  He is very concerned about the side effects of sutent and quality of life.  Is anyone on sutent able to continue working?   

            April 14, 2012 view post
            • Lilyislove has replied to a post on the message board

              Hi jjccbb, When your kidney cancer was called at Stage 4, how long was the life expectancy you were given?  My brother is stage 4 and they say 4-6 months without treatment. You say you've been on chemo drugs since May of 2010.  What kind of side effects have you had and are you still able to go to work?  He is being prescribed a couple cycles of sutent.  Thanks. Lilyislove  

              April 14, 2012 view post
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