loriSt

loriSt's Recent CancerCompass Activity

• loriSt has replied to a post on the message board

  Hi Gordon... I tried to email you but I got a message that the email was no longer available.  Also, I tried to find you on FB but did not know which one was you. I am soooo sorrry about ur loss.  Bless your heart!  I also have had 2 bouts with GCT.  I would love to email and learn all that you have learned.  I have researched and researched extensively... everything says something different...

  January 13 at 3:14 AM view post

• loriSt has replied to a post on the message board

  I had stage IIIc.  Two years ago.  Surgery, hysterectomy, chemo.  My Inhibin B is at 36.1  and I am 53.   Is that hig   Thank YOU. Lori

  November 21 at 5:25 AM view post

• loriSt has replied to a post on the message board

  Hi Green, I had only my left ovary and tube removed initially.  Then when it returned, it didn't go to any of my reproductive organs... it came back in the peritoneal of my abdomen!  And spread seedlings throughout my body.   Just something to think about. Lori

  May 19, 2012 view post

• loriSt has replied to a post on the message board

  http://www.gctf.org.nz/         here is the right link!  It's a foundation dedicated ONLY to GCT.  Read about the founder, she died of GCT so her husband is carrying on the research!  YOU can trust what this site says. Hope it helps, Lori

  May 18, 2012 view post

• loriSt has replied to a post on the message board

  I have NO idea why that link posted so many times!!!  It's granulosa cell tumor foundation of new zealand.... gctfnewzealand

  May 18, 2012 view post

• loriSt has replied to a post on the message board

  You are welcome!!!!  :)

  May 18, 2012 view post

• loriSt has replied to a post on the message board

  Hi Earnest One, My name is Lori. I had my last of 6 children in 1992 and I had a sharp horrible pelvic pain in the mid 1990s.  Went to emergency and had xray and ultrasound... they said it was probably just a stone passing and sent me home with a paper cone to filter the stone. Then about 2000 I went to the dr because I hadn't had a mentrual cycle in 8 yrs ( I was not concerned because I had always been soooo i...

  May 17, 2012 view post

• loriSt has replied to a post on the message board

  Hi Starry, Can u please tell me where to get more information on the diet you are following?  I have had two bouts of GCT and now two years later my Inhibin B is up to 65.0    Is that pretty high?  Or just on the way to pretty high?  Thank YOU, Lori

  May 17, 2012 view post