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lsmith's Recent CancerCompass Activity

  • lsmith has replied to a post on the message board

    We are vegan.  We are typically mostly raw (do not cook food above 118 degrees) We have been 100% raw in the past for as long as 2 years.  Honestly, I think you need to be at least 75% to see it make a difference.  In my opinion. We juice (Carrot & green juice usually which is mostly organic celery & cucumber and some kale or spinach and lemon).  He is really good about green smoothies. &...

    32 minutes ago view post
    • lsmith has replied to a post on the message board

      My husband will hit the 11 year mark in may.  He had a glioblastoma that was supposedly not operable too.  Although Allan did do the surgery.  As far as I know Ted Kennedy had the same protocol my husband did.  He lasted 18 months.   My husband has been cancer free since December 2003 per the doctors at Duke and later the former doctor at Duke that we followed when he went to CT.  We ac...

      Tuesday at 3:47 PM view post
      • lsmith has replied to a post on the message board

        He used 3 different chemo drugs... CPT11, temodar & another. He was supposed to do another year of something else (typical protocol) but opted out because by that time he (we) were convinced it was about building up your immune system with diet & lifestyle & not about destroying it with chemo drugs & radiation. Quite frankly, there were/are plenty of people who followed the drug protocol and didn't make it past 2 y...

        December 21 at 1:49 PM view post
        • lsmith has replied to a post on the message board

          I felt compelled to respond to this conversation even though I noticed it started back in 2011. My husband & my experiences with Duke & Drs. Henry & Allan Friedman were nothing but positive & I must admit anything negative actually surprised me & I felt I should share.    Our experience started in May of 2003 when my husband was life flighted to Toledo St. Vincent Hospital following th...

          June 06 at 2:28 PM view post
          • lsmith has replied to a post on the message board

            When our doctor moved from Duke, we followed him to yet another state as he seemed to "get" our choices. My best friend died of breast cancer 2 years ago.  She initially changed to a raw vegan diet with juicing and was doing amazingly!  Everyone commented on how radiant she looked and she felt great.  Her first oncologist told her to find someone new when she began questioning amounts of chemo and alte...

            June 05 at 2:53 PM view post
            • lsmith has replied to a post on the message board

              I have to chime in here... Mainly out of frustration, not for myself and my husband (a 10 year cancer free GBM survivor) but for others who might be looking at this particular post. While I can't imagine anyone doing a water fast during chemo (but I haven't read the studies and I'm sure if I really believed it was a good idea I might) I was completely blown away be the comment that diet hasn't been shown to have any...

              June 05 at 12:10 PM view post
              • lsmith has replied to a post on the message board

                It's been a long time since he did any chemo but I am sure he did CPT-11, maybe Avastin and another I don't remember... it was Duke's protocal at the time. (There were 3 over a one year period of time) They wanted us to do another for at least another year per their typical protocal but my husband opted out. We are mostly raw vegans.  We have been vegan for about 9 1/2 years.  We eat mostly organic and we ...

                June 03 at 2:39 PM view post
                • lsmith has replied to a post on the message board

                  As someone else mentioned GBMs are always grade 4. (Although I have heard some doctors call grade 3 mixed with 4 a GBM but I guess that would make sense).  My husband was treated at Duke.  His surgeon (he had one surgery (unless you count his 2 biopsies as surgeries) was/is Dr. Allan Friedman who was also Ted Kennedy's surgeon. (Ted had virtually the same treatment my husband had but lasted 18 months & ...

                  June 03 at 12:08 PM view post
                  • lsmith has replied to a post on the message board

                    My husband was diagnosed 10 years ago (in a large Toledo Hospital) and told by his initial doctor that his tumor was inoperable, did not respond well to treatments and that he had 3-6 months at best with treatment but that he would not recommend doing treatment due to lack of effectiveness and resulting quality of life. My husband was 39.  We got a second opinion in house who agreed. We did our own research and...

                    May 30 at 2:35 PM view post
                    • lsmith has replied to a post on the message board

                      My husband hit the 10 year mark in mid May. He has been cancer free since December of 2003. He opted out of continued chemo in the summer of 2004. He hasn't taken any meds except anti-seizure meds since then. He was treated at Duke for his GBM. Prior to that he had been given 3-6 months. His only issues are side effects from brain radiation. We eat a crazy healthy mostly raw vegan diet. There is hope. Do your res...

                      May 30 at 3:24 AM view post
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                      About lsmith

                      Caregiver
                      Brain Cancer
                      Cancer Diagnosis, Cancer Nutrition, Cancer Prevention, Chemotherapy, Diet, Radiation, Side Effects, Spiritual Support, Alternative Treatments

                      My husband was diagnosed with a grade 4 Glioblastoma in May of 2003. He is a 9 1/2 year survivor. He went Duke. While we love the caring wonderful doctors and nurses there and looking foward to our every other yearl visits, we know that it was our change in diet that has kept him here. We have watched multiple brain tumor patients die over the past 9 years and the one thing none of them were willing to do... diet and lifestyle. We are convinced that it is our diet and lifestyle that has kept my husband cancer free, illness free and healthy for the past 9 years. It is all about what you put in your body.

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