lsv12

lsv12's Recent CancerCompass Activity

• lsv12 has replied to a post on the message board

  My hubby is also very itchy from his clinical trial on yervoy.  They prescribed an every 8 hour drug called atarax. It seems to help him pretty good. 

  February 25 at 3:04 PM view post

• lsv12 has created a new message board discussion

  Well, hubby has gotten his second dose of his yervoy trial at moffitt.  So far only side effect has been very itchy. We will see the results up till now on March 11. This will be his first scans since the start of trial. On the 12th he is receive the 3rd dose. I hope this is a good sign for success of the drugs.

  February 25 at 2:51 PM view discussion

• lsv12 has replied to a post on the message board

  Even though it has not changed in color or size, because he is always picking at it. I would have it looked at.  With melanoma it is better to be safe than sorry.

  February 06 at 11:16 PM view post

• lsv12 has replied to a post on the message board

  Monica, The doctor can also prescribe something for appetite it is called megestral acetate taken once a day. A friend of mine was given that during her bout with AML.

  January 17 at 3:38 PM view post

• lsv12 has replied to a post on the message board

  My husband has stage 4. It has metastized to his liver, kidney, salivary gland, lung, abdomen and his  right tibia. He showed no symptons for any of them.  They were all just picked up on a PET scan and CT scan.  My husband felt the same way you did by worrying about everything little thing. Be diligent and know what is going on and just make note.Please do not allow this disease to control your l...

  January 16 at 2:31 AM view post

• lsv12 has replied to a post on the message board

  We are currently awaiting eligibility for another clinical trail at moffitt in Tampa.  It is Yervoy and another drug together. The Zelboraf is for BRAF.  I will keep you posted.

  January 16 at 2:19 AM view post

• lsv12 has created a new message board discussion

  My husband just finished a clinical trail for Zelboraf and a MEK drug at Moffitt cancer center in Tampa, FL.  He was on the trial since Jan. 2012.It stopped working after 10 months.  He had spots on his rt tibia,right salivary gland, 1 on left bicep where it all started,3 on his lungs, 1 on kidney, liver and one in abdomen cavity.  They all decreased in size by 38%.  Only side affect he ...

  December 27 at 2:24 PM view discussion

• lsv12 has replied to a post on the message board

  My husband has been on the Zelboraf /PK drug since the beginning of January at Moffitt. He is stage 4 metastic melanoma with tumors on his salivary gland, left lower lobe, small spot on kidney & liver also on right tibia.  He has to take Zometa to keep his bones strong once a month. He has not had any side effects, just a little more tired than usual.  He has also had scans done after 8 months...

  October 11 at 12:49 AM view post

• lsv12 has replied to a post on the message board

  My husband is currently on that clinical trail and so far he has not had any side effects from it.  He has been on it since January.  All previous lesions have decreased or are no longer evident. I will mention about the resistance after 9-10 and see what the response is.    

  June 06 at 11:59 PM view post

• lsv12 has replied to a post on the message board

  Sorry to hear about brain mets.  How long has he been diagnosed and original site?  My husband has been on the Zelboraf /PK drug since the beginning of January.  He has not had any side effects, just a little more tired than usual.  He has also had scans done after 8 weeks being on it and all tumors have schrinked more than half there size. He is at a 38% progression.  I pray your boyfr...

  April 05, 2012 view post