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lsv12's Recent CancerCompass Activity

  • lsv12 has replied to a post on the message board

    My husband has stage 4 metastatic melanoma. Has tumors all through-out his body.

    April 16 at 11:34 PM view post
    • lsv12 has replied to a post on the message board

      He has now been on this trial for exactly one year!!!! His scans have shown up to this point a 78% shrinkage of all tumors with no new evidence.  We pray everyday it still keeps working. No real side effects, fatigue, itching ,and some pain. But he has had those symptoms all along.

      April 16 at 6:06 PM view post
      • lsv12 has created a new message board discussion

        Well hubby is now on his 4th trial medication. Yervoy did not work.  After just 3 doses there was no shrinkage.  Got first dose of PDL-1 on Tuesday, I pray this is the miracle drug they keep saying it is.  He will get an infusion every 2 weeks. Please keep us in your prayers.  Getting weaker more every day. Just got approved for disability due to fatigue.  Can only work 3 5-hour days. It...

        May 23, 2013 view discussion
        • lsv12 has replied to a post on the message board

          My hubby is also very itchy from his clinical trial on yervoy.  They prescribed an every 8 hour drug called atarax. It seems to help him pretty good. 

          February 25, 2013 view post
          • lsv12 has created a new message board discussion

            Well, hubby has gotten his second dose of his yervoy trial at moffitt.  So far only side effect has been very itchy. We will see the results up till now on March 11. This will be his first scans since the start of trial. On the 12th he is receive the 3rd dose. I hope this is a good sign for success of the drugs.

            February 25, 2013 view discussion
            • lsv12 has replied to a post on the message board

              Even though it has not changed in color or size, because he is always picking at it. I would have it looked at.  With melanoma it is better to be safe than sorry.

              February 06, 2013 view post
              • lsv12 has replied to a post on the message board

                Monica, The doctor can also prescribe something for appetite it is called megestral acetate taken once a day. A friend of mine was given that during her bout with AML.

                January 17, 2013 view post
                • lsv12 has replied to a post on the message board

                  My husband has stage 4. It has metastized to his liver, kidney, salivary gland, lung, abdomen and his  right tibia. He showed no symptons for any of them.  They were all just picked up on a PET scan and CT scan.  My husband felt the same way you did by worrying about everything little thing. Be diligent and know what is going on and just make note.Please do not allow this disease to control your l...

                  January 16, 2013 view post
                  • lsv12 has replied to a post on the message board

                    We are currently awaiting eligibility for another clinical trail at moffitt in Tampa.  It is Yervoy and another drug together. The Zelboraf is for BRAF.  I will keep you posted.

                    January 16, 2013 view post
                    • lsv12 has created a new message board discussion

                      My husband just finished a clinical trail for Zelboraf and a MEK drug at Moffitt cancer center in Tampa, FL.  He was on the trial since Jan. 2012.It stopped working after 10 months.  He had spots on his rt tibia,right salivary gland, 1 on left bicep where it all started,3 on his lungs, 1 on kidney, liver and one in abdomen cavity.  They all decreased in size by 38%.  Only side affect he ...

                      December 27, 2012 view discussion
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                      About lsv12

                      Caregiver
                      Melanoma
                      After Treatment, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support

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