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lucyat24's Recent CancerCompass Activity

  • lucyat24 has replied to a post on the message board

    Yes, I noticed slow decline while the MRI's were stable on Avastin.  I truly believe the Avastin "faked" the good MRI's until it was suddenly very bad.

    May 29 at 12:49 PM view post
    • lucyat24 has replied to a post on the message board

      Correct, since there was significant growth during Temodar, after 2 years, we stopped.  Avastin kept things stable for a little over 6 more months, then again, significant growth.  Things are happening very, very rapidly.  He is tired, very tired and didn't want to spend one more minute in a doctor's office or MRI machine, or hooked up to an IV in the hospital.  

      May 28 at 9:41 PM view post
      • lucyat24 has replied to a post on the message board

        My husband had a gross total resection in October of 2010.

        May 25 at 2:09 PM view post
        • lucyat24 has replied to a post on the message board

          Yes, after two years he had a recurrence and we stopped the Temodar and went straight to Avastin.  After the first 2 Avastin treatments the tumor shrunk, after the next several it stayed stable.  Last week's MRI showed it more than doubled in size, we knew, we could tell things were not going well before we even got the results.

          May 25 at 2:08 PM view post
          • lucyat24 has created a new message board discussion

             I have not posted in quite some time.  Things went great for almost 3 years since the GBM.  My husband was taken off of Temodar after 2 years because of a recurrence.  He then started Avastin and it worked for 6 months.  Now, his new tumor is growing, more than doubled, and we have stopped Avastin and called in Hospice.  I feel blessed because we really were one of the lucky ones and my...

            May 25 at 1:10 AM view discussion
            • lucyat24 has replied to a post on the message board

              My husband always broke out in a rash the week before he started his monthly temodar like clock work.

              March 18, 2013 view post
              • lucyat24 has replied to a post on the message board

                My husband was on Temodar for 2 years.

                March 18, 2013 view post
                • lucyat24 has replied to a post on the message board

                  My husband is also methylated.  He did very well on tmz, almost exactly 2 years and just had a recurrence.  He too, is on Avastin now.  I don't believe methylation matters with Avastin.  I haven't seen any studies.

                  January 21, 2013 view post
                  • lucyat24 has replied to a post on the message board

                    My husband was clear for 2 years after diagnosis.  He started experiencing symptoms the same as when he was originally diagnosed.  He has started Avastin and has had 4 treatments. His first MRI is in 2 weeks since starting Avastin.  He was on Temodar the entire 2 years, stopped when the recurrence happened. Wish you the best.

                    January 06, 2013 view post
                    • lucyat24 has replied to a post on the message board

                      As all the others said, GBM is an automatic approval.  Very fast too.  My husband was approved within two weeks.  Very easy to apply.  Do not worry about an attorney.  Best wishes.

                      January 02, 2013 view post
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                      About lucyat24

                      Caregiver
                      Brain Cancer

                      My husband, at age 48, was diagnosed with Glioblastoma Multiforme. The main reason for me joining this site is to keep informed about proven treatments with others who share the same characteristics as my husband's cancer because outcomes vary so greatly. I also hope to help others who may benefit from our experiences.

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