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majolica's Recent CancerCompass Activity

  • Majolica has replied to a post on the message board

    Hi Steve,   Sorry to hear that you have to start treatments.  I would check out Myeloma Beacon or IMF Myeloma.  There is plenty of info on ASCT there.  I wish you the very best. http://www.myelomabeacon.com/ https://myeloma.org/Main.action

    June 11 at 5:23 PM view post
    • Majolica has created a new message board discussion

      Hello,   Can anyone try and describe what a enlarged spleen feels like.  I have have discomfort there off and on for a while.  My last labs where not that good and was suppose to return to repeat them again.  I have confused doctors for years.  I have monoclonal gammopathy and AVWS.  I have been having blasts in my blood smears with elevated wbc/ monocytes, etc.

      January 07 at 2:35 PM view discussion
      • Majolica has replied to a post on the message board

         Sorry...I mean never got to read my report online.  Seems odd they only provided me details on some of my tests.

        August 21, 2014 view post
        • Majolica has replied to a post on the message board

          Hi snowbells,   I have acquired the bleeding conditions from my monclonal gammopathy 8 years ago..  TREATMENTS! Good question.  I have yet to have one doctor understand my very rare complicated bleeding disorders.  I think they think I will just go into leukemia with treatments...my guess only!  Its like talking to a brick wall with these doctors.  What bothered me is my NEW abnormal pl...

          August 21, 2014 view post
          • Majolica has replied to a post on the message board

            Hello again,   My CBC platelets are fine 314.  I did notice they are going up slowly.  It was the plt function EPI and plt function ADP that was elevated/abnormal.  My von willebrand and factor 8 levels are real low.  I am still wondering if they where looking for ET.  No one has ever gave me answers to any of my problems.  Do you people with ET have bone pain?

            August 19, 2014 view post
            • Majolica has replied to a post on the message board

              Hi Hometypist,   Thanks for the response.  They did a Chromosome Analysis. All was normal.  Which is good.  Do you also have abnormal platelet function tests?  I could not read my bmb results on the mychart site.  The nurse said they don't give patients that info but I could get a copy my next visit.  I thought that was odd I can only read a few of the test result details...hmmm&n...

              August 18, 2014 view post
              • Majolica has created a new message board discussion

                Hello,   I have been on a rollar coaster ride for the last 8 years.  I have Acquired Von WIllebrand syndrome (AVWS) not inherited and low factor VIII levels and monclconal gammopathy as well.  I have had a increase in bruising/hematomas recently.  I went to a new hemo doc last month and they did a bmb and genenic tests.  What was NEW with my condition was abnormal platelet function EPI, and ...

                August 14, 2014 view discussion
                • Majolica has replied to a post on the message board

                  Hi Anna,   So sorry to hear about your dad.  You where of great support for him as well as us on this forum.  Take care! Majolica

                  July 30, 2013 view post
                  • Majolica has replied to a post on the message board

                    Hi pcotter,   Sorry to hear about your recent mgus diagnoses.  I had to chim in again about truefictions comments.  Not good advise! Yes, mgus can remain symptomless or it may cause alot of problems.  Some very serious like what I have experienced.  Most never progress to myeloma..thats good news.  But, yearly monitoring is very important.  Please visit Beacon Myeloma for your bes...

                    July 09, 2013 view post
                    • Majolica has replied to a post on the message board

                      I guess we all get a few lumps with our sugar.  Take care!

                      June 27, 2013 view post
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                      About majolica

                      Multiple Myeloma

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