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majolica's Recent CancerCompass Activity

  • Majolica has replied to a post on the message board

     Sorry...I mean never got to read my report online.  Seems odd they only provided me details on some of my tests.

    August 21 at 1:14 PM view post
    • Majolica has replied to a post on the message board

      Hi snowbells,   I have acquired the bleeding conditions from my monclonal gammopathy 8 years ago..  TREATMENTS! Good question.  I have yet to have one doctor understand my very rare complicated bleeding disorders.  I think they think I will just go into leukemia with treatments...my guess only!  Its like talking to a brick wall with these doctors.  What bothered me is my NEW abnormal pl...

      August 21 at 1:11 PM view post
      • Majolica has replied to a post on the message board

        Hello again,   My CBC platelets are fine 314.  I did notice they are going up slowly.  It was the plt function EPI and plt function ADP that was elevated/abnormal.  My von willebrand and factor 8 levels are real low.  I am still wondering if they where looking for ET.  No one has ever gave me answers to any of my problems.  Do you people with ET have bone pain?

        August 19 at 1:01 PM view post
        • Majolica has replied to a post on the message board

          Hi Hometypist,   Thanks for the response.  They did a Chromosome Analysis. All was normal.  Which is good.  Do you also have abnormal platelet function tests?  I could not read my bmb results on the mychart site.  The nurse said they don't give patients that info but I could get a copy my next visit.  I thought that was odd I can only read a few of the test result details...hmmm&n...

          August 18 at 4:28 PM view post
          • Majolica has created a new message board discussion

            Hello,   I have been on a rollar coaster ride for the last 8 years.  I have Acquired Von WIllebrand syndrome (AVWS) not inherited and low factor VIII levels and monclconal gammopathy as well.  I have had a increase in bruising/hematomas recently.  I went to a new hemo doc last month and they did a bmb and genenic tests.  What was NEW with my condition was abnormal platelet function EPI, and ...

            August 14 at 3:01 PM view discussion
            • Majolica has replied to a post on the message board

              Hi Anna,   So sorry to hear about your dad.  You where of great support for him as well as us on this forum.  Take care! Majolica

              July 30, 2013 view post
              • Majolica has replied to a post on the message board

                Hi pcotter,   Sorry to hear about your recent mgus diagnoses.  I had to chim in again about truefictions comments.  Not good advise! Yes, mgus can remain symptomless or it may cause alot of problems.  Some very serious like what I have experienced.  Most never progress to myeloma..thats good news.  But, yearly monitoring is very important.  Please visit Beacon Myeloma for your bes...

                July 09, 2013 view post
                • Majolica has replied to a post on the message board

                  I guess we all get a few lumps with our sugar.  Take care!

                  June 27, 2013 view post
                  • Majolica has replied to a post on the message board

                    Thanks for the reply mavcav,    All I know is that everyone tells me that this is just the way my spouse is dealing with it...Ah, He doesn't deal with it at all.  I can't whisper a word about my health without him getting mean & defensive.  So I choose to suck it up because that reaction just causes me more distress...I desperately want to write a book on my medical ordeals and problems that ...

                    June 26, 2013 view post
                    • Majolica has replied to a post on the message board

                      Hop,   Have a great time on your trip.  Venting is out of the question in this household.  I somehow do manage to have a sense of humor.  Its my way of staying somewhat sane.  Even thou the verdict might be still out on that issue..lol majolica

                      June 26, 2013 view post
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                      About majolica

                      Multiple Myeloma

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