mapesuma

mapesuma's Recent CancerCompass Activity

• mapesuma has replied to a post on the message board

  Hi. I had my surgery in August 2008. I can eat just about anything now, though small quantities which I don't think will ever change. I rarely dump any more but if I do it is usually related to sugar or coffee, especially if I eat them together. The further you get from surgery the easier it gets. As far as wind is concerned I found it helped to only eat sitting at a table. Sit up very straight, but relaxed, so...

  April 02 at 7:37 PM view post

• mapesuma has replied to a post on the message board

  Thanks Aoife, You are the only one I have heard of except for myself. It is nice to be drug-free, but as you say, sometimes I wonder if it is the best thing. I don't suppose it is possible to be free of questions. I think you are amazing to have two children after the surgery. I have done far more after surgery than I ever expected to when I decided to go ahead but it is all nothing compared to you. Many happ...

  March 05 at 8:29 PM view post

• mapesuma has replied to a post on the message board

  I think that maybe your age and the fact that they did not do a biopsy probably indicate that there is not a serious issue at the moment. However there is obviously the beginings of something going on so grasp this as an opportunity to sort it out before it gets more serious. Stress can give you a lump in your throat that seems completely real - mine does anyway. I don't understand the American health system, but ge...

  March 05 at 5:50 PM view post

• mapesuma has replied to a post on the message board

  Hi Denhux, I had my surgery in August 2008. What you describe is what I had, what just about everyone gets. The early days are dreadful. I think they don't tell the full story because they desperately want us to go through with the op because that if the best path for beating the cancer. As time goes on it gets better and better. Its slow. There is no point in expecting it to go rapidly. It goes at its own pace, di...

  March 05 at 5:37 PM view post

• mapesuma has replied to a post on the message board

  Thank you for replying. Everyone I have spoken to has been put back on some drug or other. Having spent all my life avoiding drugs whenever I can I was just relieved to be totally drug free after the op. I have never queried it, I think to avoid triggering them to prescribe it. However I think this may be the wrong thinking and I will ask next doc visit. Hope all is well with you. I really can't complain - my reco...

  March 05 at 5:20 PM view post

• mapesuma has replied to a post on the message board

  Hi Linda, Mine was a stage 1 adenocarcinoma and I had the op in August 2008. Everyone is right . it is slow - much slower than the docs say. but it does get better. I am still improving and have a very good life now - 2 months ago we went on a transatlantic flight to antigua for our 40th wedding anniversary. Just after the op I thought i would never holiday again. The whole slow journey is really worthwhile. I am n...

  February 19 at 8:42 PM view post

• mapesuma has replied to a post on the message board

  Hope that things are good with you. I often think of you and Pat, along with many others on the board, even though I rarely visit now. Best wishes for peace and happiness, Sue

  February 19 at 8:21 PM view post

• mapesuma has created a new message board discussion

  Before my op 4 years ago I was taking Nexium to reduce acid production. This has never been restarted, and even though I do not get much reflux as serious as stuff coming right back up into my mouth, I do, nearly all the time, have a stinging burny sensation. At first it was only in my throat but now it is the whole mouth. I have also started to have trouble with my teeth. Does anyone know what proportion of people ...

  February 19 at 6:08 PM view discussion

• mapesuma has replied to a post on the message board

  After my op I swung back and fore between diarrhoea and constipation for a good while. The hospital docs gave me various medicines to cope with the constipation, none of which helped much. I went to my GP during one bad constipation bout and she had a good feel around, external over my whole abdomen and internal as well. she said there was no problem anywhere except for the final bit of the gut where she said there ...

  February 19 at 6:03 PM view post

• mapesuma has replied to a post on the message board

  There is lots of good information on Cathy's ec cafe www.eccafe.org alsowww.fightec.org. In the UK there is the oesophageal patients associationwww.opa.org I am an ec survivor, having had oesophagectomy in 2008. It is a long journey but it is a fight that can be won. My life is good again now. Don't give up hope, stay positive. Sue

  March 07, 2012 view post