Loading...

marfunk84's Recent CancerCompass Activity

  • marfunk84 has replied to a post on the message board

    Hello, I'm curious who you've spoken to at Penn, if you don't mind me asking. My husband's AA3 and we've been at Penn throughout most of his treatment. We did a short stint at Jefferson which didn't work out well. 

    Yesterday at 12:21 AM view post
    • marfunk84 has replied to a post on the message board

      Oh, Distancerunner--I've followed your brutally honest posts for a while now. I also noted your absence from this site and assumed a few reasons....I never assumed the reason you just provided. I'm glad to hear you're healthy and your wife is in a place that will address her needs. I'm in a MUCH less severe, but a similar situation to you. My husband's issues(diagnosed 3/2008) were fine until we opted for add...

      June 05, 2013 view post
      • marfunk84 has replied to a post on the message board

        My husband became too anxious on Ritalin, but is responding well to a drug called Provigil(modafinil). It works differently than a Ritalin or Adderal in that it's not a traditional "stimulant", so most people don't feel the usual CNS side-effects. Provigil does a good job keeping him awake--getting him motivated to do something other than watch "The Price is Right"---well, that's a different story(seriously...

        May 25, 2013 view post
        • marfunk84 has replied to a post on the message board

          Jeff. As a "young-ish" caregiver and parent to a 9 year old, I feel so horribly for you. My husband's journey has been much different than your wife's--his has been a slow and steady decline over the last year. There are no words for such an unexpected loss, but I echo what a few others have written. This is a brutal disease. It is unfair, unjust and ugly. Very few people probably understand what you're going...

          May 04, 2013 view post
          • marfunk84 has replied to a post on the message board

            Fascat-- Was just about to post since my husband is also a young AA3 survivor( he was diagnosed at 40, 5 years ago) when I read your status update. I am so very sorry for your loss. This is a horrific disease. I hope you have support systems, but if not, there are many compassionate people on here.

            April 26, 2013 view post
            • marfunk84 has replied to a post on the message board

              Husband was diagnosed with AA3 on 3/14/2008. Went through standard treatment of Temodar, radiation, resection(never gave us a %of resection, but it wasn't total) Over the next few years, he had 2 more surgeries, gamma knife, clinical trial, and another round of Temodar. As bad as that may sound,he accomplished most of this while still working full-time, playing competitive soccer, working out and living a gener...

              March 17, 2013 view post
              • marfunk84 has replied to a post on the message board

                Kathleen.. If you don't mind me prying--as a long-term survivor, what's your functioning level? You mentioned you were worse initially but recovered. Can you work? Do you feel "normal"? My husband battled hard for 4 years and lived an almost normal life, but the last year had been rough. Our NO has said that the longer he goes without improvement, the less likely it is he will improve. Did you prove otherwis...

                March 15, 2013 view post
                • marfunk84 has replied to a post on the message board

                  My husband's NO referred to radiation as "the gift that keeps on giving". He was originally diagnosed with AA3 almost 5 years ago at the age of 40. He's since gone through Temodar, radiation, 3 craniotomies, Gamma knife, clinical trial, Avastin, meningitis and hydrocephalus. His tumor has been stable for the past year, yet he continues to show cognitive decline. His short-term-memory is shot, his speech is o...

                  March 15, 2013 view post
                  • marfunk84 has replied to a post on the message board

                    That's what I thought--something triggered an OCD tendency. He doesn't know why he does it; it simply pops into his head. He thinks that his brain is no longer active like it used to be when he was working, so it engages in this repetitive action. His tumor originated in the left frontal lobe, but has spread through corpus collusum and into right frontal lobe.

                    January 21, 2013 view post
                    • marfunk84 has created a new message board discussion

                      Ok, in the grand scheme of things, this is by far an innocent/benign symptom of my husband's almost 5 yr battle w/ AA3, radiation, gamma knife, Temodar, clinical trial, 3 craniotomies and Avastin, but I find this intriguing--he counts all the time-- with varying patterns, but usually following a sing-songy pattern(ex...when he walks, he'll count each step like, "1,2,3,4 and-uh-5,6,7,8 and -uh-1,2,3,4..... Th...

                      January 21, 2013 view discussion
                      Loading...
                      Load more activity
                      Loading more activity

                      About marfunk84

                      Caregiver

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.