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maxxschiken's Recent CancerCompass Activity

  • maxxschiken has created a new message board discussion

    Sorry I've been away. Annie's cognative impairment worsened after starting folfiri on Sept 22 so on Nov 11 we had an MRI which told us her cancer had metastisiced to her brain. I chose to keep her in the comfort of our home instead of taking her to Stanford for them to perform procedures for releaving the swelling in her brain. I basically told our oncologist, enough was enough and I did not want to subjecdt her ...

    December 04 at 11:01 AM view discussion
    • maxxschiken has replied to a post on the message board

      I never really got an explanation from the specialist at UCSF when he first used the term "dead scar tissue" when he referred it to the tumor on the body of Annie's pancreas. It was 5cm and two lesions measuring less then 1cm each on her liver when discovered in July 2011 and by December 2011 the pancreatic tumor shrank to 4mm, lesions on the liver had vanished. Incidentally, after only three treatments of Folfirin...

      October 24 at 4:44 PM view post
      • maxxschiken has replied to a post on the message board

        Three years ago I did not possess high expectations for prognosis of this disease and today, 39 months later I still do not possess high expectations but to enjoy every moment given to us to be together.  Here is our story: My wife Annie who was diagnosed with inoperable stage 4 adendocarcinoma of the pancreas with liver metastisis in July 2011.  She tolerated with exceptional results 19 rounds of fol...

        October 17 at 4:23 PM view post
        • maxxschiken has replied to a post on the message board

          No, but Annie who is turning 61 on December 1 had acute pancreatitis at the age of 19 and almost died from it.  In 1988, she was gestationally diabetic during the last trimester of pregnancy with my son and in 2006 became a type 2 diabetic and started Metformin.  In 2011 as you may already know, was diagnosed with inoperable stage 4 adenocarcinoma of the pancreas with liver mets.  She is now ...

          October 16 at 9:58 PM view post
          • maxxschiken has replied to a post on the message board

            Indeed!  My wife Annie was diagnosed with inoperable stage 4 adenocarcinoma of the pancreas with liver metastisis in July 2011.  Annie had a 5cm tumor on the body of her pancreas and two less then 1cm lesions on her liver. While her oncologists and pancreatic specialists at both Stanford Medical Center and UCSF contend there is no known chemotherapy capable of doing what it did to my wife, the fa...

            October 16 at 9:48 PM view post
            • maxxschiken has replied to a post on the message board

              My wife's very first recurrence was last January when they too found a lesion on the lumbar region of her spine. This came after being in remission with no chemotherapy treatments for nearly 21 months. The lesion caused excruciating pain to her lower back, hips and thighs where the strongest narcotics were taken but provided only a little relief. The narcotics were so strong they caused havoc to her digestive syst...

              October 14 at 9:35 PM view post
              • maxxschiken has replied to a post on the message board

                oh...i just went back and read your previous posts.  So your CA19-9's went all the way down to 80 or lower and now are back up to 9000.  I'm sure if your current chemo isn't effective at bring this number down they will change it.  Has the radiation to the hip bone cancer provided you the pain relief intended with this type of treatment? 

                October 13 at 5:48 PM view post
                • maxxschiken has replied to a post on the message board

                  Let me see if I'm understanding this correnctly.  So you have been on 5Fu alone with no other components for 11 months and this treated the pancreatic tumor correct?  Is the cancer in your hip bone the reason why you are diagnosed with stage 4?  At your initial diagnosis, where was the cancer other than your pancreas?    If your cancer antigen's are still a...

                  October 13 at 5:45 PM view post
                  • maxxschiken has replied to a post on the message board

                    Hope your brother gets better!  I spent lots of summers in Hanamaulu growing up.  My aunt worked at Sharon Sue downtown in the late 50's and 60's and my uncle worked at the golf course.  I used to eat at Saimen Sam's a lot and oh, the box lunch back then.....nothing compared to the junk you find here on the West Coast at these "wanna be" hawaiian fast food joints!  I literally hate those plac...

                    October 10 at 11:17 AM view post
                    • maxxschiken has replied to a post on the message board

                      oh okay... i didn't realize her blood counts were down and she was getting the Lunesta.  so this explains cutting back which is what her body most importantly her bone marrow to recover and give her the strength to continue treatment.  from about my wife's 6th month of folfirinox treatment until her 10th and final month of that regimen, while her blood work was always good her...

                      October 09 at 1:15 PM view post
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                      About maxxschiken

                      Caregiver
                      Pancreatic Cancer
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support

                      Greetings! My name is Jeff, primary caregiver to my wife Annie seen in the profile picture taken on last October 24 in Los Angeles celebrating our 34th wedding anniversary.

                      On July 7, 2013 we celebrated 2 years post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and it has now been over 1 year since stopping all treatment with stable full liver panels, CA19-9's and CT scans revealing no evidence of new or progressive metastatic disesse and no tumor recurrence. Annie will be 60 years of age this coming December 1, 2013.

                      A timeline of her journey thus far:

                      07/2011 - wife at age 57 diagnosed with inoperable stage 4 pc; 5cm tumor/body, two spots on liver, CA19-9=21,000+

                      08/2011 - begins folfirinox chemotherapy at a rate of one 48hr infusion every other week.

                      01/2012 - CT: spots on the liver gone, tumor now 4mm, CA19-9 normal at 17.

                      06/2012 - completed 9.5cycles/19 sessions of treatment. 4mm tumor necrozed/scar tissue with no metabolic activity. ALL CHEMO STOPPED. CTscan reveals No evidence of progressive metastatic disease and no tumor recurrence. All liver panels normal and CA19-9 stable at 35. The only medication taken is Metformin to treat her Type 2 Diabetes.

                      09/2012 - CT: NED with all liver panels normal and CA19-9 stable at 35.

                      12/2012 - CT: NED. Runs a 10 kilometer race.

                      02/2013 - CT: NED with all liver panels normal and CA19-9 stable at 35. Re-instated fitness center membership and now worksout 5x weekly 3 hours daily.

                      03/2013 - Consultation at UCSF with Dr. Andrew Ko who after being reminded the prognosis he gave us in July 2011 of 3-6 months of life left without treatment said, "you proved us all wrong, you are doing amazingly well, continue to LIVE LIFE."

                      On December 1, 2013 Annie will celebrate her 60th birthday. A milestone considering she would not have lived too much passed her 58th birthday with this prognosis and without treatment.

                      Our journey can also be found at www.cancerforums.net username: hiyasofsj and I also contribute in the John Hopkins University pancreatic cancer forum.

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