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maxxschiken's Recent CancerCompass Activity
My wife's neuropathy never got bad even after 19 rounds of folfirinox. She did have some slight tingling sensations on her finger tips but nothing that prevented her from moving about and staying active.
July 15 at 9:00 AM
Praying for your sister!
July 15 at 8:58 AM
Well my wife was initially diagnosed with Type 2 diabetes in 2006 and began metformin back then. She continued taking 850mg 2x daily until she was about 5 months into inoperable stage 4 adenocarcinoma pc at which time she had some fluctuations in her blood sugar and they increased the dosage one additional 850mg tablet daily.
Indeed studies since about 2011 have shown the use of metformin in conjuction w...
July 15 at 8:56 AM
Indeed stage 4 with liver metastisis is a terrible predicament to be in but her journey may give you and your loved one HOPE!
My wife Annie was NEVER a candidate for surgery as she was diagnosed with inoperable stage 4 adenocarcinoma pancreatic cancer with mets to her liver 4th of July weekend in 2011 at the age of 57. Her first PET/CT found a 5cm tumor on the body of her pancreas and two lesions on her liver me...
July 01 at 11:20 PM
Goodness Cathy! 40 treatments continuous without a break to keep your Mom stable sounds trecherous! What regimen is she on? Hopefully she can have a long break from treatment to recouperate. My wife Annie has had 29 rounds of treatment but after the first 19 rounds of folfirinox, this brought her to remission for almost 21 months with no treatments then with a rec...
June 26 at 10:30 AM
Forgot to mention, folfox is much easier to tolerate than the full regimen and you won't lose your hair. Annie's hasn't lost a strand and is just in the middle of her 11th round now.
June 17 at 12:04 PM
Keeping you in my thoughts and prayers Karen. Have you thought about trying FOLFOX and eliminating the IRINOTECAN for now to see if it is just as effective. Annie's been on folfox for 11 rounds now and her tumor markers went from 9000 to almost normal. Her PET/CT last week came up clean! Liver, pancreas have been clean since May 2012 and with the recurrance of metabolic activity in the lumbar ...
June 17 at 12:03 PM
My wife Annie was NEVER a candidate for surgery as she was diagnosed with inoperable stage 4 adenocarcinoma pancreatic cancer with mets to her liver back in July 2011 at the age of 57. Her first PET/CT found a 5cm tumor on the body of her pancreas and two lesions on her liver measuring just under 1cm each along with lymph node activity. They gave her 3-6 months without treatment and possibly 8-10 months IF she tolera...
June 17 at 11:58 AM
I'm so sorry to hear your Dad's situation progressed to the liver. My wife Annie was NEVER a candidate for surgery as she was diagnosed with inoperable stage 4 adenocarcinoma pancreatic cancer with mets to her liver back in July 2011 at the age of 57. Her first PET/CT found a 5cm tumor on the body of her pancreas and two lesions on her liver measuring just under 1cm each along with lymph node act...
June 17 at 11:56 AM
My wife did 19 round of Folfirinox in the period of ten consecutive months, no breaks, no interruptions as her blood work never indicated a need for it to treat inoperable stage 4 adenocarcinoma PC with liver mets. They stopped all treatment I'm May 2012 during almost two years of being in remission with no evidence of new or progressive metastatic disease and no tumor recurrence. Her liver panels became normal afte...
May 14 at 10:25 PM
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Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support
Greetings! My name is Jeff, primary caregiver to my wife Annie seen in the profile picture taken on last October 24 in Los Angeles celebrating our 34th wedding anniversary.
On July 7, 2013 we celebrated 2 years post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and it has now been over 1 year since stopping all treatment with stable full liver panels, CA19-9's and CT scans revealing no evidence of new or progressive metastatic disesse and no tumor recurrence. Annie will be 60 years of age this coming December 1, 2013.
A timeline of her journey thus far:
07/2011 - wife at age 57 diagnosed with inoperable stage 4 pc; 5cm tumor/body, two spots on liver, CA19-9=21,000+
08/2011 - begins folfirinox chemotherapy at a rate of one 48hr infusion every other week.
01/2012 - CT: spots on the liver gone, tumor now 4mm, CA19-9 normal at 17.
06/2012 - completed 9.5cycles/19 sessions of treatment. 4mm tumor necrozed/scar tissue with no metabolic activity. ALL CHEMO STOPPED. CTscan reveals No evidence of progressive metastatic disease and no tumor recurrence. All liver panels normal and CA19-9 stable at 35. The only medication taken is Metformin to treat her Type 2 Diabetes.
09/2012 - CT: NED with all liver panels normal and CA19-9 stable at 35.
12/2012 - CT: NED. Runs a 10 kilometer race.
02/2013 - CT: NED with all liver panels normal and CA19-9 stable at 35. Re-instated fitness center membership and now worksout 5x weekly 3 hours daily.
03/2013 - Consultation at UCSF with Dr. Andrew Ko who after being reminded the prognosis he gave us in July 2011 of 3-6 months of life left without treatment said, "you proved us all wrong, you are doing amazingly well, continue to LIVE LIFE."
On December 1, 2013 Annie will celebrate her 60th birthday. A milestone considering she would not have lived too much passed her 58th birthday with this prognosis and without treatment.
Our journey can also be found at www.cancerforums.net username: hiyasofsj and I also contribute in the John Hopkins University pancreatic cancer forum.