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maxxschiken's Recent CancerCompass Activity
Karen.... can you start of with folfox (minus irinotecan) first to see if this option can bring your CA19-9s down with the cancer showing response to it? Annie started last January with folfox only because she was a lot weaker after all the problems she had late last year.... folfox for now is working just fine with her CA19-9's declining and her pain disappeared. Her liver and pancreas are still in remis...
March 20 at 1:34 PM
Been really busy with Annie since right before the new year when she started experiencing a few conditions that really compromised her health. Her type 2 diabetes became uncontrolled with her current meds of 850mg of Metformin 3x daily. It got so out of control she was in a diabetic shock for a couple of weeks where on 12/30 her glucose number rose to 700 which in many people already puts them i...
March 04 at 3:04 PM
I would request for a PET scan as this unlike a regular CT scan will reveal anywhere on the body where cancer is active.
February 22 at 4:03 PM
We consulted with my wife's local oncologist two days ago to discuss her most recent CTscan taken last week. The scan revealved she continues to be stable with no evidence of new or progressive metastatic disease and no tumor recurrence. This month marks almost 29 months (2 and 1/2 years) post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and 19 months since she stopped all chemothera...
December 14 at 11:55 AM
So sorry it's taken me so long to see your response to this post. I'm not getting any notifications it seems. How are you doing? Hope all continues to go well for you on your treatments.
Annie's CA19-9's stated below 35 from June 2012 through this past summer and started to climb around August I think. Her oncologist while not a pancreatic cancer specialist was thinking about re...
December 11 at 2:36 PM
There is HOPE!
My wife was diagnosed in July 2011 with inoperable stage 4 adenocarcinoma pancreatic cancer with metastisis to her liver. Her primary oncologist wanted to treat my her palliatively with a very mild form of chemotherapy called Xeloda along with radiation, one where she would not suffer or even lose her hair. Why? Because statistically, she wasn't suppose to live 3-6 months without treatment and pos...
November 26 at 3:20 PM
Rooting for you all the way HARTS! Annie and I will keep you in our thoughts and daily devotions. ~jeffB
November 20 at 1:49 PM
CTCA opened their doors for my wife 2 years ago when she was diagnosed because my PPO health insurance through my employer would have covered all the expenses. Did we go with CTCA which would have taken us away from our home and support systems? NO! We chose to work with our local oncologist for administration of treatments recommended by a second opinion and direction from UCSF.
My wife is now 28 ...
November 18 at 2:20 PM
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November 05 at 12:43 PM
I've learned to accept all treatments options for stage 4 inoperable adenocarcinoma pancreatic cancer with metastisis to the liver is palliative. As of now, there is no cure for this diagnosis and the prognosis for many is still very grim.
We can't and don't know for sure how my wife would have done with Xeloda/Radiation but what we do know in our situation is Folfirinox while for many it does ...
October 24 at 11:07 PM
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Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support
Greetings! My name is Jeff, primary caregiver to my wife Annie seen in the profile picture taken on last October 24 in Los Angeles celebrating our 34th wedding anniversary.
On July 7, 2013 we celebrated 2 years post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and it has now been over 1 year since stopping all treatment with stable full liver panels, CA19-9's and CT scans revealing no evidence of new or progressive metastatic disesse and no tumor recurrence. Annie will be 60 years of age this coming December 1, 2013.
A timeline of her journey thus far:
07/2011 - wife at age 57 diagnosed with inoperable stage 4 pc; 5cm tumor/body, two spots on liver, CA19-9=21,000+
08/2011 - begins folfirinox chemotherapy at a rate of one 48hr infusion every other week.
01/2012 - CT: spots on the liver gone, tumor now 4mm, CA19-9 normal at 17.
06/2012 - completed 9.5cycles/19 sessions of treatment. 4mm tumor necrozed/scar tissue with no metabolic activity. ALL CHEMO STOPPED. CTscan reveals No evidence of progressive metastatic disease and no tumor recurrence. All liver panels normal and CA19-9 stable at 35. The only medication taken is Metformin to treat her Type 2 Diabetes.
09/2012 - CT: NED with all liver panels normal and CA19-9 stable at 35.
12/2012 - CT: NED. Runs a 10 kilometer race.
02/2013 - CT: NED with all liver panels normal and CA19-9 stable at 35. Re-instated fitness center membership and now worksout 5x weekly 3 hours daily.
03/2013 - Consultation at UCSF with Dr. Andrew Ko who after being reminded the prognosis he gave us in July 2011 of 3-6 months of life left without treatment said, "you proved us all wrong, you are doing amazingly well, continue to LIVE LIFE."
On December 1, 2013 Annie will celebrate her 60th birthday. A milestone considering she would not have lived too much passed her 58th birthday with this prognosis and without treatment.
Our journey can also be found at www.cancerforums.net username: hiyasofsj and I also contribute in the John Hopkins University pancreatic cancer forum.