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maxxschiken's Recent CancerCompass Activity
There is HOPE!
My wife was diagnosed in July 2011 with inoperable stage 4 adenocarcinoma pancreatic cancer with metastisis to her liver. Her primary oncologist wanted to treat my her palliatively with a very mild form of chemotherapy called Xeloda along with radiation, one where she would not suffer or even lose her hair. Why? Because statistically, she wasn't suppose to live 3-6 months without treatment and pos...
November 26 at 3:20 PM
Rooting for you all the way HARTS! Annie and I will keep you in our thoughts and daily devotions. ~jeffB
November 20 at 1:49 PM
CTCA opened their doors for my wife 2 years ago when she was diagnosed because my PPO health insurance through my employer would have covered all the expenses. Did we go with CTCA which would have taken us away from our home and support systems? NO! We chose to work with our local oncologist for administration of treatments recommended by a second opinion and direction from UCSF.
My wife is now 28 ...
November 18 at 2:20 PM
maxxschiken has changed their profile photo
November 05 at 12:43 PM
I've learned to accept all treatments options for stage 4 inoperable adenocarcinoma pancreatic cancer with metastisis to the liver is palliative. As of now, there is no cure for this diagnosis and the prognosis for many is still very grim.
We can't and don't know for sure how my wife would have done with Xeloda/Radiation but what we do know in our situation is Folfirinox while for many it does ...
October 24 at 11:07 PM
In remission for 17 months with no treatments:
We met with our pancreatic specialist at UCSF yesterday. He looked at my wife having not seen her for a few months and said "REMARKABLE." He looked at her last 2 months of lab work and said while her CA19-9 is rising her full liver panels were completely normal and did not feel any urgency to begin treatment anytime soon especially after reviewing her last 3 ...
October 24 at 4:47 PM
We met with our pancreatic specialist at UCSF yesterday. He looked at my wife having not seen her for a few months and said "REMARKABLE." He looked at her last 2 months of lab work and said while her CA19-9 is rising her full liver panels were completely normal and did not feel any urgency to begin treatment anytime soon especially after reviewing her last 3 quarterly CTscans showing stability. He examined her b...
October 24 at 4:42 PM
yay! so good to hear scan was clear. will keep you always in my prayers! ~jeffB
September 12 at 9:57 AM
Harts! I can still remember running across your posts when I first joined the forum 2 years ago. I believe you were 7 or 8 months post diagnosis when Annie was diagnosed.
I'm thankful for your contributions and positive support for everyone here and for you to continue with your encouraging words and advice after 33 months into this disease is AMAZZZZING! It gives me more and more hope for An...
September 05 at 9:53 AM
I read about Bob Brown's passing on the john hopkins forum around mid month as well and yes, the message there indicated it was complications from the NanoKnife and the same Bob Brown who wrote the book.
August 28 at 10:58 AM
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Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support
Greetings! My name is Jeff, primary caregiver to my wife Annie seen in the profile picture taken on last October 24 in Los Angeles celebrating our 34th wedding anniversary.
On July 7, 2013 we celebrated 2 years post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and it has now been over 1 year since stopping all treatment with stable full liver panels, CA19-9's and CT scans revealing no evidence of new or progressive metastatic disesse and no tumor recurrence. Annie will be 60 years of age this coming December 1, 2013.
A timeline of her journey thus far:
07/2011 - wife at age 57 diagnosed with inoperable stage 4 pc; 5cm tumor/body, two spots on liver, CA19-9=21,000+
08/2011 - begins folfirinox chemotherapy at a rate of one 48hr infusion every other week.
01/2012 - CT: spots on the liver gone, tumor now 4mm, CA19-9 normal at 17.
06/2012 - completed 9.5cycles/19 sessions of treatment. 4mm tumor necrozed/scar tissue with no metabolic activity. ALL CHEMO STOPPED. CTscan reveals No evidence of progressive metastatic disease and no tumor recurrence. All liver panels normal and CA19-9 stable at 35. The only medication taken is Metformin to treat her Type 2 Diabetes.
09/2012 - CT: NED with all liver panels normal and CA19-9 stable at 35.
12/2012 - CT: NED. Runs a 10 kilometer race.
02/2013 - CT: NED with all liver panels normal and CA19-9 stable at 35. Re-instated fitness center membership and now worksout 5x weekly 3 hours daily.
03/2013 - Consultation at UCSF with Dr. Andrew Ko who after being reminded the prognosis he gave us in July 2011 of 3-6 months of life left without treatment said, "you proved us all wrong, you are doing amazingly well, continue to LIVE LIFE."
On December 1, 2013 Annie will celebrate her 60th birthday. A milestone considering she would not have lived too much passed her 58th birthday with this prognosis and without treatment.
Our journey can also be found at www.cancerforums.net username: hiyasofsj and I also contribute in the John Hopkins University pancreatic cancer forum.