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maxxschiken's Recent CancerCompass Activity
One 48 hour infusion is equivalent to One round.
Yesterday at 4:26 PM
Interesting! My wife is now almost 3 years and 3 months inoperable stage 4 adenocarcinoma of the pancreas with mets to her liver. She was initially diagnosed in July 2011. After 19 rounds of folfirinox she reached antigen score of below 38 and her oncologist stopped all treatments and she remained in remission from May 2012 through January 2014! The first recurrence came last January but NOT t...
Yesterday at 8:26 AM
Wow, months later and I'm just seeing this. I guess I havent been on here as much as I used to, and that could be a good thing right. Well, means I've been spending a lot more time with my wife and her journey instead. But yes, I read somewhere in the journals about Metformin around 2011 when Annie was already almost done with her first 19 rounds of folfirinox. During her remission of almost 20...
Wednesday at 8:17 AM
I'm just PAINED waking up to this news! Karen and I go way back.... almost to July 2011 when my wife was first diagnosed. We shared and kept close up until just this mid-June and to hear this just gives me a heavy heart right now. I will say this, in my opinion Karen DID NOT LOSE HER FIGHT but became VICTORIOUS in her journey with this adenocarcinoma. She was an incredible woman who did not le...
August 19 at 7:46 AM
Great to hear you all found someone who you feel comfortable with and who was open to consult regarding everything about conventional and non-conventional treatment options. Annie and I too like to feel that assurance of knowing someone who we place our trust and respect with has the compassion and desire to share their expertise as much as possible.
Annie just finished her 12th round of Folfox ju...
August 14 at 5:29 PM
I agree it is very much a "crapshoot" and "it's like walking a tightrope" situation when moving forward with this type of cancer and especially in my wife's case being given only 3-6 months of a prognosis without treatment for stage 4 inoperable adenocarcinoma of the pancreas and mets to her liver. One bad choice, one poor decision not just in treatment options but also with regard to interpretation and actions...
August 04 at 8:21 AM
We have no experience with Gemzar/Abraxane or any clinical trials. They offered clinical trials back in 2011 but my wife and I wanted to go with what was proven for some to be a successful regimen.
19 rounds in 10 months of Folfirinox without any breaks because my wife tolerated the treatment well gave her almost 2 years of remission! She was 57 at the time of diagnosis in July 2011. She was ...
August 01 at 10:43 AM
19 rounds in 10 months of Folfirinox without any breaks because my wife tolerated the treatment well gave her almost 2 years of remission! She was 57 at the time of diagnosis in July 2011. She was diagnosed with inoperable stage 4 adenocarcinoma pc with liver metastisis.
When my wife had her first recurrence just this passed January 2014, her liver and pancreas were still showing no evidence of new...
August 01 at 8:55 AM
My wife's neuropathy never got bad even after 19 rounds of folfirinox. She did have some slight tingling sensations on her finger tips but nothing that prevented her from moving about and staying active.
July 15 at 9:00 AM
Praying for your sister!
July 15 at 8:58 AM
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Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support
Greetings! My name is Jeff, primary caregiver to my wife Annie seen in the profile picture taken on last October 24 in Los Angeles celebrating our 34th wedding anniversary.
On July 7, 2013 we celebrated 2 years post diagnosis with inoperable stage 4 adenocarcinoma pancreatic cancer and it has now been over 1 year since stopping all treatment with stable full liver panels, CA19-9's and CT scans revealing no evidence of new or progressive metastatic disesse and no tumor recurrence. Annie will be 60 years of age this coming December 1, 2013.
A timeline of her journey thus far:
07/2011 - wife at age 57 diagnosed with inoperable stage 4 pc; 5cm tumor/body, two spots on liver, CA19-9=21,000+
08/2011 - begins folfirinox chemotherapy at a rate of one 48hr infusion every other week.
01/2012 - CT: spots on the liver gone, tumor now 4mm, CA19-9 normal at 17.
06/2012 - completed 9.5cycles/19 sessions of treatment. 4mm tumor necrozed/scar tissue with no metabolic activity. ALL CHEMO STOPPED. CTscan reveals No evidence of progressive metastatic disease and no tumor recurrence. All liver panels normal and CA19-9 stable at 35. The only medication taken is Metformin to treat her Type 2 Diabetes.
09/2012 - CT: NED with all liver panels normal and CA19-9 stable at 35.
12/2012 - CT: NED. Runs a 10 kilometer race.
02/2013 - CT: NED with all liver panels normal and CA19-9 stable at 35. Re-instated fitness center membership and now worksout 5x weekly 3 hours daily.
03/2013 - Consultation at UCSF with Dr. Andrew Ko who after being reminded the prognosis he gave us in July 2011 of 3-6 months of life left without treatment said, "you proved us all wrong, you are doing amazingly well, continue to LIVE LIFE."
On December 1, 2013 Annie will celebrate her 60th birthday. A milestone considering she would not have lived too much passed her 58th birthday with this prognosis and without treatment.
Our journey can also be found at www.cancerforums.net username: hiyasofsj and I also contribute in the John Hopkins University pancreatic cancer forum.