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miamib's Recent CancerCompass Activity

  • miamib has created a new message board discussion

    http://youtu.be/dib0gKJiq-U This was on news a few days ago. Of course a call must be mad

    February 22 at 9:50 PM view discussion
    • miamib has replied to a post on the message board

      Johns Hopkins is doin trial involving re radiation. I'm looking into getting more info

      February 22 at 9:46 PM view post
      • miamib has created a new message board discussion

        i've heard that when you stop the tumor returns stronger than ever.  has anyone heard or experienced this? thanks!

        February 18 at 5:35 PM view discussion
        • miamib has created a new message board discussion

          i've heard this is now an option for some.  anyone hear abou this?

          February 18 at 5:26 PM view discussion
          • miamib has replied to a post on the message board

            i cannot have another surgery.  i heard that once you start avastin you cannot stop.  then again if it's working hy stop? thanks

            February 18 at 4:18 PM view post
            • miamib has replied to a post on the message board

              YES I'VE HAD 2 SURGERIES AND THIONE IS INOPERABLE.  MY OTHER no SUGGESTS AVASTIN & CCNU.  I'M SORRY IT CAM BACK FOR YOUR HUBBY.  DID IT COME BACK BECAUSE HE STOPPED IT?  THANKS I

              February 17 at 2:25 PM view post
              • miamib has created a new message board discussion

                MY AA HAS RECURRED AND IS LIKELY NOW A GBM. MY NO SAYS only AVASTIn asap.  i respond that i am afraid of avastin.  he laughs and asks why.  is there anyone here that disagrees with either of us?  thanks GoD bless!

                February 17 at 2:05 PM view discussion
                • miamib has created a new message board discussion

                  and timewith my daughter will be my cocktail now that my tumor has recurred.  i realize avastin/ccnu is the next moveper doctor's standadrd of care  so maybe I'm a moron but I'm not thrilled about what this MAY do for me.  I feel good about this decision and it makes my wife very happy so that's always goo and these delicious juices will keep on coming  (: thoughts? thanks

                  February 13 at 3:08 AM view discussion
                  • miamib has created a new message board discussion

                    i had a recurrence and doctor wants me to start ccnu and avastin.  I don't want to.  any thoughts?  any alternatives? Thanks!

                    February 04 at 9:27 PM view discussion
                    • miamib has created a new message board discussion

                      yes it sucks and is scary.  doctor wants me to start avastin.  I've read about the scary side effects.  Has nyone had any bad side sffects?  Thanks

                      February 04 at 9:24 PM view discussion
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                      About miamib

                      Patient
                      Brain Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Radiation

                      I have a grade ii glioma. i was diagnosed in march 2012 and had crainiotomy which removed half of my tumor. the tumor is ingrained near some critical areas and I'm currently on wait and see approach. The wait and see approach ended when i had tumor growth and a second surgery in April 2013. I have finished radiation and a year of temodar. I am also taking seizure prevention medicine.

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