HELLO, I'm sorry to hear about your visual problems. It hits home as I have the same problem looking to the left in both eyes (thankfully I csn see straight and to right) I spoke with a friend of a friend who visited a neuro-ophalmologist who recommended prism glasses for what we have = HOMonymous hemianopsia. This worked for her.
I saw this doctor last week and he didn't mention these...
Rmp1399. What clinal trial vaccine is your wife doin? Thanks
The most promising trial I have heard of is the dcvax immunotherapyerapy vaccine. It is run by Lina Liau as chief investigator at ucla but other hospitals are now using it. It is a phase three trial.
There are 2 catches though:
1. They need fresh tissue at hospital performing trial to create vaccine. This means another surgery. For many people another surgery is not warranted at this time. For some reason frozen ...
That's wonderfull news!! I hope we hear the same news about her for the next 50 years!!
G-D bless and heal you all!!!
Duke says I should start this asap. This is an avastin based trial with me taking avastin. Does anyone have any thoughts? Thanks for your time and thoughts!
I've read promising things about this drug and understand they are now phase 2 in clinal trials. Has anyone heard anything about this?
Thanks a lot guys for the encouraging news. Kat that's amazing encouraging news. Well my first surgery left me in great shape so with G-d' s help the next surgery will be the same, maybe even better!
May G-d bless everyone here for a long and healthy life!
Has anyone had 2 surgeries in 1 year? Doctors predict that 2nd surgery won't harm me but advice aside, I am ver scared. Has anyone had 2 surgeries? Thanks for you time
Ok I spoke to MD Anderson and jacksonville and I would have to bankrupt my family to do proton therapy. Additionally 2 centers tell me it won't help.
Anyone have experience with Gamma Knife which seems like a better option from what I've read. Can Gamma Knife treat every type of tumor or are there some it won't help? Thanks
I was just told today by 2 tumor centers that my tumor has progressed. to what is unknown but one center recommends immediate surgery as it may now be grade 3. the other center says surgery isn't neccesary as risk outweighs reward.
to sum it up: It's been a terrible 2 days as i never saw this coming.
i will contact proton center but from what these 2 tumor centers have told me it's not p...
I have a grade ii glioma. i was diagnosed in march 2012 and had crainiotomy which removed half of my tumor. the tumor is ingrained near some critical areas and I'm currently on wait and see approach. I am also taking seizure prevention medicine.
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