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miamib's Recent CancerCompass Activity

  • miamib has created a new message board discussion

    call me superstitous but I haven't held a cel phone to my ear since I was diagnosed in March 2012.  I don't think it's a coincidence that my tumor was in my right temoral lobe above the ear where I held my phone to for over 10 years.  Even the cel phone companies admit there is radiation and even note this in the owner's manual (which nobody reads) and in the legal section of settings on iphones.  I sm...

    January 07 at 4:17 PM view discussion
    • miamib has created a new message board discussion

      Half the pathologists considered it a grade 3 after my 2nd surgery with the other half GBM. what is the next step and any recommendationsfor doctors I should speak to about this next step? Thanks

      January 05 at 2:30 AM view discussion
      • miamib has created a new message board discussion

        Has anyone had this?  My doctors are starting to consider it for me.  Can someone describe their experience.  Thanks

        December 23 at 8:09 PM view discussion
        • miamib has replied to a post on the message board

          Thanks for responding to me.  I am 38 and only thinning in the area that is next to the area that had the radiation.  The radiated area is bald with dead follicles.  I assume it will not grow back.  But the all of a sudden thinning is puzzling.

          December 23 at 8:07 PM view post
          • miamib has created a new message board discussion

            I am 1.5 years since finishing radiation.  My hair fell out in the area that was blasted away with high beams.  It never grew back and the follicles are dead so it likely never will.  My question is why are some hairs in the neighborhood starting to either fall out or get thinner?  Anyone have any thoughts or experience. I realize hair is the least of my problems but every time I look in mirror...

            December 22 at 9:12 PM view discussion
            • miamib has created a new message board discussion

              I'm the one who finished my year of temodar last month. My wife is healthy and I have an aa. I realize it's not very responsible of us to consider having another child but I guess we're optimistic about my prognosis. Any advice on how long we should wait if we choose to have the baby? Thanks and G-d bless you all

              September 19 at 2:10 AM view discussion
              • miamib has replied to a post on the message board

                I too have peripheral vision loss in left eye.  It's very annoying but this should be the worst of my problems.  There are prism glasses that may be able to help you.  They take your current glasses and put 4 prisms on each lens.  It was very confusing to me so I didn't give it a long chance but it may help you.  See a neuro-oncologist to discuss.   Regarding driving, I am not driving...

                June 23, 2013 view post
                • miamib has replied to a post on the message board

                  Thanks for getting back to me.  I hope these drops help you out and that your next MRI shows a skrinking tumor (if not disappeared tumor).  Keep me posted.  I'm only reading good things about CBD and the fact that UCSF will be starting clinial trials using it means something to me.

                  June 18, 2013 view post
                  • miamib has created a new message board discussion

                    I reaf that the University of California will be beginning clinical trials on humans using cannabidiol.  Apparently this has worked extermely well with mice and seems very exciting (tough to use that word here).  In additon Israel has done similar tests with the same results.   Has anyone ever heard of these trials and/or have tried it?  

                    June 17, 2013 view discussion
                    • miamib has replied to a post on the message board

                      What is the best way to buy it and use i? Is it edible or should be vaporized and inhaled to get effect needed to fight cancer?

                      June 02, 2013 view post
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                      About miamib

                      Patient
                      Brain Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Radiation

                      I have a grade ii glioma. i was diagnosed in march 2012 and had crainiotomy which removed half of my tumor. the tumor is ingrained near some critical areas and I'm currently on wait and see approach. The wait and see approach ended when i had tumor growth and a second surgery in April 2013. I have finished radiation and a year of temodar. I am also taking seizure prevention medicine.

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