mimi7

mimi7's Recent CancerCompass Activity

• mimi7 has created a new message board discussion

  I am an advance colon cancer stage 4. I have been fighting this monster for 12 years. I had tried all kinds of chemo. I was upset to try on Perifosine. My tumor had grown to 200% and a 2cm tumor in liver that was none before. So I have to stop taking this drug. Now my Onc recommend me to try new drug in clinical trial Regorafenib . Is anyone try it before, does it work on you? How bad is the side effects? Please sh...

  June 15 at 3:37 AM view discussion

• mimi7 has replied to a post on the message board

  Dear chemosabe, I love what you had said in last reply. You really encouraged many folks who are on the crossroad that has a thinking to go nowhere and a feeling to give up. I have the same situation. I am a stage 4 colon cancer for 12 years. Had colon resection in 2000, chemo 58 rounds, radiation 30 session, remission for a while and come back with more spread out to lungs, rib bones, and abdomen . I had tried ev...

  January 29, 2012 view post

• mimi7 has replied to a post on the message board

  Have you ever read about these two new drug Perifosine and Rogorafenib, both are new drugs good for advance colon cancer, especially for those who had failed the standard chemo. They are not on market yet, just been through phase Iii clinical trial. It is known of very least side effects and easy manageable. I have the same situation like your brother. I got compassionate use of Perifosine through my doctor and dir...

  January 05, 2012 view post

• mimi7 has replied to a post on the message board

  Dear Elkspirit, Please tell us your story in this board. I have several cancer friends who has different cancer also like to know how you was treated in CTCA. What drug did you use ? Or simply on special nutrition program? I am out of country on travelling. Only can assess through Internet or Skype. I am eager to know your healing story. Please describ in detail. Thanks.

  January 05, 2012 view post

• mimi7 has replied to a post on the message board

  Haliluya! ! Praise to the lord. God bless you. What did CTCA had done on you!? What did you do in their site in Zion? You stayed all the times in their hospital or not? I like to go too but I worry the whole cost. Did your insurance cover it? Mimi

  January 04, 2012 view post

• mimi7 has replied to a post on the message board

  Thank you for the reply. Now I learn a lot from the experience of your wife. Other cancer patients who have same situation may also feel good to learn more. Your wife is a great warrior. It is not easy to being through those 5 clinical trials. What a days!!! I am impress that you have done lots of research in this field. Keep on studying, there certainly new drug will come out that will help her. Please tel...

  January 04, 2012 view post

• mimi7 has replied to a post on the message board

  Thank you very much. Your reply message is very helpful. I had read all and the link ttothe result of phase two clinical trial. I stored it in my I-book book shelf so I can read again. I just wonder what else clinical trial your wife had been through? You said she went 6 months TTP time to progression. After that what to do then? And this Perifosine was only first clinical trial she had. Did she try the new drug Reg...

  December 26, 2011 view post

• mimi7 has created a new message board discussion

  Perifosine is a very new drug suppose good for colon cancer breast, lung and blood cancer. It has been through phase 3 clinical trial. If the data show well, it may be on market when FDA give approval. I got compassionate use of perifosine when all possible chemo treatments of my stage 4 cc were failed. I am going to start this week perifosine 5 mg a day plus 1500 mg xeloda twice a day, both orally. I wonder how is t...

  December 23, 2011 view discussion

• mimi7 has created a new message board discussion

  I am a long term colon cancer fighter. Also can be said a 11 years long stage IV survivor. I enjoyed 7 years remission and then suffer on and off recurrent since 2007. I beat this cancer monster in bay, but it did come out to bite me again and again. After 6 months of remission from Nov 2010 to May 2011, my recent PET scan shows I have more spots come out in lung and abdoman. I had tried...

  May 12, 2011 view discussion