I was diagnosed with a brain tumor in June 2006, I was 22 years old single mother of a 2 1/2 year old, after having a grand mal seizure, I was told that I had a brain tumor that needed to be removed immediately... I Flew to Boston to the Dana Farber Cancer institute with my 2 1/2 year old son and boy friend ... The surgery was successful... they were able to remove 95% of the tumor that was as big as a twix candy bar. The biopsy report was scary, turned out it was a stage 4 malignant glioblastoma multiforme ... I was told that i had 3 years to live...
I've been through a lot these past 6 and a half years, BUT I AM STILL HERE !!!!
After surgery i was put on chemo called Temodar and avastin along with radiation... it made me feel so horrible but it was worth it, about a year later... the rest to the tumor shrank, and i was in remission for 18 months and started temodar and CPT 11... however this aggressive cancer regrew with chemo so I needed a second craniotomy March 4, 2011 and was able to have 100% removed.... then entered myself into a Clinical trial... study that doesn't even have a name yet but it is called "E7080" My tumor has not grown since i started treatment. I get regular MRI's every 2 months. So far, all is clear, also some scar tissue has dissolved. meds still have a side effect but life is worth it! I have a smart little man and a hubby that need me.
I will beat this!! Unfortunately, my trial with the E7080 ended in September 2012 due to a regrowth... I started a new trial in October called BKM120 taken daily along with IV avastin once every other week ...
as of 3-29-13... I stped the BKM120.. because MRI showed another regrowth... very small, but enough to kick me off the study....
With a thirst for life I continue to do my best taking care of my family and dealing with all of this crap.
Starting another study "D.A.G" on $-17-13... it will be Intravenous 3 consecutive days every 3 weeks...I was told that the first 2 days will take 6 hours... another study failed tumor still growing...only finished 2 and 1/2 rounds. back on Avastin and CPT 11.. kicked off more chemo... not knowing what to do nest, they started me on chemo for leukemia and lymphoma ... Dr's told me it is either this or nothing...seriously think i'm going to choose to do nothing??? ha
With faith, prayer,and a positive attitude I continue fighting this horrible disease... I WILL NEVER GIVE UP!!! my faith is in God's hands... and I am still here and fighting!!!
Yesterday is history,
Tomorrow is a mystery, but today is a gift. That is why it is called the present.