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oakisland's Recent CancerCompass Activity

  • oakisland has replied to a post on the message board

    Hi kelly, I know exactly how you feel. I wish I could tell you that it gets better, but it doesn't.  It has been 2 years and 14 days since I lost the best part of me.  I find that I laugh and cry at the same time on a daily basis..I laugh because something reminds me of the life we had, then I cry because I am alone.  We all do what we have to do to function all by ourselves. We go to work, clean our ...

    September 09 at 12:56 AM view post
    • oakisland has replied to a post on the message board

      Hi Stephen, I am no specialist, it has been almost 2 years since I lost the best of me and I am still not ready for normal..not the normal that is going to be now, I want the normal back that it was before this stupid cancer. I work all week and everyday is different, but it will never be normal agian.  We can never get that back.  And afraid of losing my life, used to be scared to death, but like you I am ...

      July 17 at 12:20 AM view post
      • oakisland has replied to a post on the message board

        Thanks to all . I hope that someday no one will feel our pain. But , then again for every tear I can feel a warm hug and a happy memory to take it's place. 

        July 08 at 1:21 AM view post
        • oakisland has replied to a post on the message board

          Thank you Sara I know all about you and your husband. I read all your memories and they are beauitful. Sound a lot like mine. I go and talk to My Rog at his resting place on a dalily basis, sometimes I choke down a milkshake (his favorite) while i am there. I wish that somehow I could make this terrible BC go away, so that no one else ever has to lose . My husband went from being the smartest man on earth to a r...

          July 04 at 11:30 PM view post
          • oakisland has created a new message board discussion

            It will 2 years on August 24th since I lost the best part of my life. We had 35 glorious years together and raised 2 beauitful children. His brain cancer journey was very short (which I am grateful for). By the time he was dx his thought process was so shot that he didn't have a clue as to what was happening to him. It was a short, but very painful journey that I will probaly keep reliving as long as I live. Most pe...

            July 04 at 2:23 PM view discussion
            • oakisland has replied to a post on the message board

              So great to hear that you are doing so well.  Keep the positive attitude and faith.. 

              October 23 at 12:28 AM view post
              • oakisland has replied to a post on the message board

                keeping you in my prayers

                September 12, 2013 view post
                • oakisland has replied to a post on the message board

                  If her steroid dosage had been lowered there may be swelling that really confuses them, check with her doctor. Wishing for the best.

                  September 11, 2013 view post
                  • oakisland has replied to a post on the message board

                    My prayers are with you. Each day will be a new beginning. I wish you peace. 

                    August 14, 2013 view post
                    • oakisland has replied to a post on the message board

                      That's what you do Sarah, I lost my sweet husband one year ago next month. I come here a lot and have read all your posts. You were truly amazing working through this struggle, and you will continue to do so.  I will not lie and tell you that it gets easier with time, time just goes by and we hurt everyday..it might always seem like yesterday or a hundred years ago.  The pain of losing your best friend is ...

                      July 19, 2013 view post
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                      About oakisland

                      Caregiver
                      Brain Cancer
                      After Treatment, Clinical Trials and Research, Emotional Support, Lifestyle

                      My husband and I are both 53. We have been together since we were 14. He has always been healthy until May. It has been a long hard ride since then. Surgery is not an option per local doctors and the doctors at Duke. He has just finished his 1st round of treatment, we go back to Duke in Sept. for the next step. My husband passed away on August 24th after suffering massive seizures, which started the day he finished his last chemo/ radiation treatment Please God Bless and Protect anyone who has to face this.

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