ourVictory

ourVictory's Recent CancerCompass Activity

• ourVictory has replied to a post on the message board

  GReat advice from our fellow new comrades. A Neuro=Oncologist should be your best option I went trough two oncologists that do not pace up witha NO. I went trough deppresion=thinking about my mom and children and doing my best to be with them as much as possible, and staring at my food- I ate regardless being inapetent knowing and thinking that my body needed food. I now and then started eating even more than before ...

  Yesterday at 2:03 PM view post

• ourVictory has replied to a post on the message board

   I am on my 3rd recurrence and maybe since he can still work Your NO migth be waiting for a real need to use it. I was told almost a month ago I might be a candid. ate for the novocure deviceSame position I am taking avastin and ccnu for last month  when should I expect results if any to show up on my MRI and its possible effects diarreha or something else; until now for me bereable fatigue, thanks for...

  Monday at 2:04 PM view post

• ourVictory has replied to a post on the message board

  Being a GBM IV male patient and knowing how we affect people around us I do thank all of you who support us despite how rude we become specially  to to the ones closest to us my significant other just left me-which I believe helps both of us- for the second time this week in the last 2yrs , getting close to the 3rdyear because of my rude attitude, thank you for doing as much as you can for us...

  Sunday at 7:38 PM view post

• ourVictory has replied to a post on the message board

  ACCORDING to my nO supplements might interfere with treatment at some points he has okay some and othes told me to wait no to avoid them

  Sunday at 4:36 PM view post

• ourVictory has replied to a post on the message board

  50 mg twice daily  plus 3000 keppra for GBM facial seizures and left hand doing a little be tter with this combination but still happening

  Sunday at 4:13 PM view post

• ourVictory has replied to a post on the message board

  I agree about our enormous problems about an hour ago 1 pm on 5/16/2013my significant other just left me- for the second time in the last 2 years- I do believe it is the best course for her and myself since I now that we both can't handle it as much as we would like, specially because of my rude attitude-. I do appreciate her trying, but I am realistic about she needing a better future with someone that can...

  May 16 at 9:40 PM view post

• ourVictory has replied to a post on the message board

  What about reduction since my  side effect with avastin is diarreah for 2-3 days around the 7-10 day after my infusion

  May 16 at 4:48 AM view post

• ourVictory has replied to a post on the message board

  Same year  with both chemos avastin-irinotecan you mentioned/2012 that reduced more of 50%  of my GBMIV  by around the 3=4 infusion now avastin, CCNU,plus radiation and waiting for good news next month since I have a significant recurrence after 28 months...

  May 16 at 4:46 AM view post

• ourVictory has replied to a post on the message board

  Similar symptoms myself for the first days, weeks and months but never beyond an hour or 1 1/2 on 9-10/2010at the most therapy that I recall. I am starting my fourth type of chemo and radiation-sessions this week 5/2013 thats a blessing under current statistics for us- after last months recurrence loosing sensation and strnght on my left fingers but bereable and frustrating . Hang on they told and that...

  May 16 at 1:21 AM view post

• ourVictory has replied to a post on the message board

  LIKE OUR friends posted maybe weight but I have been skinny all my life 130 lbs right now and takinG 3000mgOF KEPPRA/ LETETARECITAM per day plus vimpat 50 mg twice a day plus my ccnu a week ago and starting a new round of radiAtion sessions tomorrow. kEEP ON POSTING IT HELPS ME GET A BETTER IDEA, GRACIAS...

  May 13 at 3:47 PM view post