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ourVictory's Recent CancerCompass Activity

  • ourVictory has replied to a post on the message board

     slighthly worked for me more or less 4 months ago now i am doing avastin with bcnu which is more toxic bcnu plus novocure burns and needs to be diluted an introduced slowly which las time took around 5 hours but dimish the effects considerable,  next month i mighth have an mri that shows what it did to my tumor

    January 15 at 1:36 AM view post
    • ourVictory has replied to a post on the message board

      i was given 6 months in witing, devastating but decided to make it beyond which is over 3 years now not easy but doable, see you in a 100 years , since i already cursed no more than one doctorabout his death sentence which i believe was on purpose after i saw his happy reaction and him noticing that i was not ready to accept defeat wuthout me doing my best to overcome cancer.

      January 04 at 6:26 PM view post
      • ourVictory has replied to a post on the message board

        i'll be at j rudnicks office around 2;30pm om monday 1/6/14 john and at taper at 145 roberto cancer center around 5;00pm

        January 02 at 5:42 PM view post
        • ourVictory has replied to a post on the message board

          as a patient and responding  what to me is confusing information that you are providing. medications being reduced migth be a good sign.  about his temper i believe most of us go trough them,  sick or not but yes we the ones with the gbm go to horrible anger episodes in my case cursing to caring people around me.which i regret...call it medication, deppression but it doesn't helps anyone...

          December 30 at 5:15 PM view post
          • ourVictory has replied to a post on the message board

            yes, in my case i was cursing at people who helped the most at the beginining i believe i am doing a lot better with my agressiveness; but not as much as i need to... i am also hungry as ever or even more than before my surgery...dexamethasone ?

            December 24 at 4:44 AM view post
            • ourVictory has replied to a post on the message board

              i started with 50 than 100 and now 150 mg twice a day and my unbalance is only at wake up time i personally take it with food is that helping not being as dizzy as you seem to express?i don't know so i can't tell, let us know if you get the answer...

              December 24 at 4:35 AM view post
              • ourVictory has replied to a post on the message board

                not all angels  are in heaven you are a magnificent angel on earth specially with your husband my blood related females are scared and or i scared them away, but i still appreciate their support whenever they could even when they left me... thank you for being next to one of us.

                December 19 at 10:57 PM view post
                • ourVictory has replied to a post on the message board

                  in my case 54 dx 8/2010 yr old male aboout  a year ago i got avastin with irinotecan and it got rid of more than half of what was showing up before this combo after i kept doing avastin and then avastin with ccnu and next avastin  with bcnu which gave a mixed result growth over here, shrink over here but nothing significant , remember all of us are different and i am not a doctor, i have alwa...

                  December 19 at 10:51 PM view post
                  • ourVictory has replied to a post on the message board

                    my gbm iv are on my right temporal and parietal brain sections does this means mine is deep inside and affecting the left side or...?

                    December 18 at 10:51 PM view post
                    • ourVictory has replied to a post on the message board

                      mine are not extreme but i take kepprs 3000 at night, plus 150 vimpat and 150 vimpat again dwith breakfast and occassional and mild seizures excpet 5 months ago that i had to to the er.

                      December 18 at 10:45 PM view post
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                      About ourVictory

                      Patient, Survivor
                      Brain Cancer

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