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outthere's Recent CancerCompass Activity

  • outthere has replied to a post on the message board

    My husband was told to sit up for 3 hrs after eating.He does not have a problem with aspiration unless he goes to bed or lays down too soon after eating. Even reclining way back in the recliner can be a problem until the food goes down.Something he is aware of.Talk to yor dr about it. Their are so many idiosyncrasies after this surgery  

    January 28 at 11:35 PM view post
    • outthere has replied to a post on the message board

      Absolutely should go back for a scan. Why go through the worry of this terrible disease comming back. Rule it out Husband does not go to bed until 3 HOURS ATLEAST after he eats per dr. advice. It has been good for him no problems unless he breaks this rule. The coughing has stopped he used a cough medicin called "pearls"that worked very well. Also had to have a throat stretch 3 times that helped with swallowing is...

      January 03 at 11:14 PM view post
      • outthere has replied to a post on the message board

         Yes Dr Bueno at B & W was and is awsome. He saved my husbands life and gave us hope. The same diagnosis and Ivor Lewis done sept 11 2012

        September 26 at 2:56 PM view post
        • outthere has replied to a post on the message board

          I would guess that they are frustrated and perhaps angry at the diagnosis also. They too realize the same as you that he may not be there for the grand children.If you cannot talk openly and calmly with them about your fears and feelings then there is counseling through hospice or through the Hospital social workers. Don't try to handle it all by your self reach out to the above mentioned and I think what you are all...

          September 26 at 12:06 AM view post
          • outthere has replied to a post on the message board

            Does your Mom have a feeding tube (J tube)directly into the intestine? It does take awhile and when you are going through it all it is difficult to see the light at the end of the tunnel. My husband had the Ivor Lewis sept 11 2012. Only started to eat normally about the end of February.2013. He would go to the hospital to get hydrated via I V three times a week insurance covered this tx. This kept him strong as he wa...

            September 25 at 11:56 PM view post
            • outthere has replied to a post on the message board

              My husband had "ec" We were told by a friend that had cancer to make sure we never left a doctors office, wether it be the general practitioner ,oncologist ,surgeon Radiologist without getting a copy of everything that took place burned onto a cd. When we went from one Dr to another we had our cds with us we let them copy them but we always took our originals. And we found that several times this saved to day. As rec...

              September 15 at 12:00 AM view post
              • outthere has replied to a post on the message board

                 Brian, when you say the EC has shown up elsewhere you mean recurrence of cancer?? If so where did it occur? Jane  

                September 14 at 11:49 PM view post
                • outthere has replied to a post on the message board

                  Thanks for th reply Dr's have ruled this out and he is 12 years out  of surgery.

                  July 26 at 7:41 PM view post
                  • outthere has created a new message board discussion

                    Total gastrectomy 12 years ago,now legs are swelling no answers from the dr's.Anyone had this problem and what might be the cause? Appreciate your time.

                    July 26 at 6:06 PM view discussion
                    • outthere has replied to a post on the message board

                      Thanks so very much for the response and encouragement.As a care giver we worry worry worry.Good advice from you guys. And just talking to someone on the other end who has survived all this and understands is the best. I honestly think that as life changing as this ec and then the  Iver louis surg.is.That a pamphlet should be published and handed out with all the many digestive issues and big and small hurdles y...

                      June 03 at 11:18 PM view post
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                      About outthere

                      Caregiver
                      Esophageal Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Cancer Prevention

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