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patriciaw's Recent CancerCompass Activity

  • patriciaw has replied to a post on the message board

    My heart goes out to the caregiver: The only one that can answer that is the patient.  I went through brain cancer with my husband.  I always said to him that whatever he decided I would stand by him what ever he wanted to do. There is no right or wrong decision.  It is up to the individual. My prayers are with you both

    August 13 at 9:27 PM view post
    • patriciaw has created a new message board discussion

      Has anyone had any success with the VA on claims dealing with GBM and agent orange? My husband died about a year ago and I promised I would keep on fighting for him.  We started fighting back in oct 2011 and so far have not gotten anywhere.   Thanks for any assistance on this.  He had headaches from the time he came back from Viet Nam.  He went to the VA and they told him it was all in his he...

      February 06 at 7:47 PM view discussion
      • patriciaw has replied to a post on the message board

        Hi, I lost my husband to gbm1V after 15 months going through surgery,kemo and radiation. It went good for awhile until the tumor returned.  Then we started the avastin that was okay but then it was suggested to try more radiation a more intense treatment.  It was downhill from there.  I will not advise anyone to do that.  You don't know until you try it. He began losing his sight and got very wea...

        November 03, 2013 view post
        • patriciaw has replied to a post on the message board

          hi, My husband was diagnosed with gbm over a year ago. He is a marine that served in Viet Nam during the agent orange. He came back from there back then when a granade went off on him and was sent back to the US and was granted 50% disability then.  Since all this has come about we began fighting again with the VA.  He has always had bad headaches but just kept on taking bc's so that he could continue work...

          December 30, 2012 view post
          • patriciaw has created a new message board discussion

            Has anyone else known of the tumor traveling to another area?  When my husband was first diagnosed with this they checked to see if it started anywhere before the surgery on the brain and it was determined that was the only place.  It was no where else. 

            October 31, 2012 view discussion
            • patriciaw has replied to a post on the message board

              Hi Angie: My husband is stage 4 glioblastoma on the right temporal. He was diaganosed a year ago. We have done the surgery,radiation and the temodar. When the tumor came back we are now on the avastin.  We have recently gone to Duke cancer center in Durham NC and done a form of radiation called stereotactic radiosurgery. He did that for 5 days straight.  Now the dr says since the avastin is showing signs o...

              October 22, 2012 view post
              • patriciaw has replied to a post on the message board

                Hi After the GBM tumor came back once he had had the surgery,radiation and being on the temodars , they had suggested another surgery or the avastin.  My husband said immediately no more surgery but that he was willing to try the avastin.  He felt like if the tumor wasn't gotten the first time than that was not an option to try again. His tumor was on the right temporal.  He has had 7 treatments ...

                October 18, 2012 view post
                • patriciaw has replied to a post on the message board

                  My husband served in Viet Nam during the Agent Orange and he was diagnosed with GBM stage 4 a year ago. We have submitted a claim to VA but they say that this has not been proven yet.  The VA representative said to submit the claim because they are slowly saying these different cancers are related and then the VA will have to back pay once it has been proven.  So worth a try.

                  October 17, 2012 view post
                  • patriciaw has replied to a post on the message board

                    I forgot to add this since this last radiosurgery they call it they are now decreasing the steroids is now down to 1mg a day and then next wk to one half and then none week after that

                    October 15, 2012 view post
                    • patriciaw has replied to a post on the message board

                      My husband has done 7 treatments Of Avastin only. He just did also stereotactic radiosurgery which is radiation a week ago which consisted of 5 consecutive days.  We go back to the dr this week. It was suggested we add cpt-11 with the avastin when we do that every 2 wks.  Guess we will see what his dr says about that.  From what I have read on this website from different ones I do not feel good about a...

                      October 15, 2012 view post
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                      About patriciaw

                      Caregiver
                      Brain Cancer

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