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paularae's Recent CancerCompass Activity

  • paularae has replied to a post on the message board

    I had the swelling and I used ice and heat to help. It is the radiation side effect. It does go away with time. Paula

    February 19 at 12:30 AM view post
    • paularae has replied to a post on the message board

      I lost my hearing soon after my treatment. I went to my ENT who suggested that I get tubes put in my ears. I was amazed that it worked. Paula

      February 12 at 4:08 PM view post
      • paularae has commented on a news story

        I unsdertastand that breast cancer is very serious, but as a head and neck cancer survivor I see that breast cancer patients get reconstructive surgery paid for by insurance. We get nothing. As my teeth begin to decline from dry mouth. My jaw is that of an eighty year old. The skin on my face is bumpy and wrinkled and I get nothing paid for to make me fell beautiful again.

        February 05 at 1:02 PM view news story
        • paularae has replied to a post on the message board

          I have had jaw pain and l was not able to open very wide. I did go to an oral maxiofacial doctor and he said my jaw joint looks like that of an 80 year old. Since I have had radiation, surgery is not an option. I have had the therabite and it did not work. I then had braces to improve my bite. I have done the exrcises to keep the trismus at bay. I cannot eat anything hard or that need a lot of chewing. I have dry mou...

          January 22 at 1:14 AM view post
          • paularae has replied to a post on the message board

            If you want a natural way of controlling mucus. I have used the netti-pot with sodium and warm water. If you want more pressure behind it, you can get a squeeze bottle. Just do daily after a warm shower. Does wonders. I take salagen to stimulate saliva, but one of the side effects is that wonderful mucus. I think I get more of the mucus than saliva. Just my luck. Eh. I grew up in Northern Minnesota, we always say eh ...

            October 15 at 10:56 PM view post
            • paularae has replied to a post on the message board

              This is my fifth year, so welcome to the club. It is hard to grasp that I am now cured. Cheers to us all. Paula

              October 02 at 3:34 AM view post
              • paularae has replied to a post on the message board

                I wish I had been told of the option of tomotherapy. I just went with what the doctors were telling me. I suffer from a severe dry mouth. My only hope is a clinical trial for gene therapy and then it will only be one parotid gland. Better than nothing I guess. Life has changed. Talking, eating and doing physical activities are affected. I was only 47 when I was diagnosed with NPC. I deal with a soar throat every day....

                October 02 at 3:29 AM view post
                • paularae has replied to a post on the message board

                  Jen, I see that you are in Pittsburgh. If you want a third opinion, my ENT doctor is Dr. David DeMarino. He has extensive experience. He will give you an honest diagnosis and what should be done. Try not to worry. You have no lymph node involvement. I hope you get your questions answered. Paula

                  September 04 at 3:47 AM view post
                  • paularae has replied to a post on the message board

                    I have a friend that has throat cancer. He had robotic surgery twice and over 70 lymph nodes taken out. He feels that they got it all and does not want to do chemo or radiation. I am a five year survivor of NPC. I live with a constant dry mouth. But, I am alive. I have tried to tell him he needs this treatment. I will tell him what you said about know not having the lymph sytem to contain the cancer cells if it does ...

                    September 04 at 3:31 AM view post
                    • paularae has replied to a post on the message board

                      Caroline, I am a five year survivor of nasophayngeal carcinoma. I had the three chemos and had horibble nausea. The amend was given for only three days. I would go back for hydration and antnausea meds between my chemo's. It really helped. I lost my hair after chemo 2. I shaved it off and when and bought a nice synthetic wig. You can get them with parts that look like natural. I would wear a cotten beeni under to ab...

                      August 21 at 10:29 PM view post
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                      About paularae

                      Survivor
                      Head and Neck Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Clinical Trials and Research, Recipes, Emotional Support, Lifestyle

                      I am a five year survivor of Nasophayngeal carcinoma stage 3. I still suffer from dry mouth and talking,eating and physical work cause me great discomfort. My jaw and jaw joint have been affected, so that opening my mouth causes pain. The skin on my chin and neck is burnt with scar tissue. I am looking for answers on alternative treatments for dry mouth, and or clinical trials.

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