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paularae's Recent CancerCompass Activity

  • paularae has replied to a post on the message board

    I am going to be getting the nutribullet mixer. It has the pro model that has 900 watts. I am hoping that it purees the nuts and the oatmeal. I like my shakes smooth. I want to start pureeing vegetables to use as sauces. I went to a restaurant that served chicken on top of pureed butternut squash. It was delicious and much more healthy than using gravy as my sauce. Thank you for the information. I am going to try for...

    February 06 at 12:50 AM view post
    • paularae has replied to a post on the message board

      I take salagen three times a day. I don't get enough saliva to drool unfortunaltly.  Still to dry to talk for long periods and still can only eat moist soft foods.  I too sweat at night when I take my evening pill.  I would not go without it.  I am going to go to a clinical trial for gene therapy late summer. Criteria is five years clear. If anyone want to try and be part of this, let me know...

      January 23 at 3:09 AM view post
      • paularae has replied to a post on the message board

        Thank you all for your suggestions. Will be trying what has been mentioned.   Paula

        January 16 at 12:07 AM view post
        • paularae has replied to a post on the message board

          I know my eating anxiety got better with time and experience.  I had to experiment with different foods. Always had a glass of milk at my side just in case.  I feel that I am eating healthier since I cannot eat chips and candy bars.  I have actually been able to eat bread with the crust off and use tuna or chicken salad.  To make it even more moist, add a slice of tomatoe. Susan, I like your smoo...

          January 10 at 3:30 AM view post
          • paularae has created a new message board discussion

            For over four years I have used Biotene products for dry mouth. They first changed the mouth rinse and now have the spray on hold due to a labeling mistake.  They are know taking the oral balance liquid off the market.  If you look to buy it on line Amazon has it for $999.99 for a 1.5 ounce bottle.  I used this when I would go to bed. It helped me to stay moistuized durring the night.  I do not kn...

            January 10 at 3:11 AM view discussion
            • paularae has replied to a post on the message board

              It has been five years since my treatment and my salivary glands were destroyed. I have been able to find enough soft moist meals that the anxiety of eating has lessened.  I eat eggs and oatmeal with extra milk.  For quick lunches, I eat Lean Quizines that have a sauce.  Spaggetti, chilli, Lasagnia, enchiladas are easy for me to eat.  I can eat meat if I have a sauce.  I got a cookbook called...

              January 04 at 2:54 AM view post
              • paularae has replied to a post on the message board

                Meek, Sorry I did not post earlier. I had three chemo sessions 3 week apart.  I would be there for eight hours. I had cisplatin chemo.  If you want to get the pump for feedings, you can have your PCP order it and it will then be covered by insurance. I had to say I could not take anything by mouth.  I would have two can durring the night.  TOMO and IMRT are types of radiation. I deal every day wi...

                November 14 at 1:47 PM view post
                • paularae has replied to a post on the message board

                  I am a five year survivor of nasopharyngeal cancer.  At five years we are considered cured.  The treatment is hard, so you will have to stay strong and help your Dad.  My hopes are that this is not cancer. But there are survivors out here.  Just wanted to let you know. Paula

                  November 14 at 1:29 PM view post
                  • paularae has replied to a post on the message board

                    Meek, I am a an almost five year nasopahryngeal carcinoma suvivor.  I had no symptoms except migraines and then my lymph nodes became swollen on both sides of my neck.  I had 3 chemo treaments and 39 radiations with chemo once a week durring my radiation.  It was not a walk in the park.  Of course I lost my hair, I was very sick from the chemo and I would go back to the chemo clinic for hydr...

                    October 31 at 3:23 AM view post
                    • paularae has replied to a post on the message board

                      I had radiation to the back on my neck and I lost the hair that grew low on my neck.  It was a colic that kept me from getting my hair cut short.  So now that it is gone, i can cut my hair short or put my hair up.  I have had some fine hair grow back, but at least it is even in the back now.  Some good out of this terrible cancer. My hair came back darker.  Wish it would of had curls, but sti...

                      October 16 at 11:54 PM view post
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                      About paularae

                      Survivor
                      Head and Neck Cancer
                      Acupuncture, After Treatment, Alternative Treatments, Clinical Trials and Research, Recipes, Emotional Support, Lifestyle

                      I am a four year survivor of Nasophayngeal carcinoma stage 3. I still suffer from dry mouth and talking,eating and physical work cause me great discomfort. My jaw and jaw joint have been affected, so that opening my mouth causes pain. The skin on my chin and neck is burnt with scar tissue. I am looking for answers on alternative treatments for dry mouth, and or clinical trials.

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