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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    Do not hesitate to talk to your doctor about this.  There is a small risk that the Sutent could have led to some internal bleeding.  Certainly a occult fecal test is likely to be one way , but this could grow into a larger problem.  Do not wait for this to go away, and take some action to make sure what is causing the anemia peggyRCc

    2 hours ago view post
    • peggyznd has replied to a post on the message board

      Just to let you know that I have had ten years of RCC -free years, thanks to HD IL2.  I had a large tumor, radical nephrectomy, and hundreds of lung mets.  Since my recovery, I am healthy and active, and resolved to help other patients understand all their options, Where are you being treated?  Sending my best, PeggyRCC.com

      2 hours ago view post
      • peggyznd has replied to a post on the message board

        I suggest you go to www.smartpatients.com, who will no doubt give you a direct number to some contacts at the NIH.  There is tremendous interest in finding patients with these rarer variants, and you may benefit quickly. peggyRCc

        2 hours ago view post
        • peggyznd has replied to a post on the message board

          The first thing you need to do is to ask for  report on the MRI.  Rarely do patients get handed the images without the report, so do check on that.  It is indeed possible that there is a kidney mass, as many kidney cancers are found incidentally, when they are after some other issue. What did your doctor say and so on?  YOu must be proactive in dealing with this, so pursue it quickly, take notes,...

          2 hours ago view post
          • peggyznd has replied to a post on the message board

            Dear Lyn,  The best solution for you right now may be to get a second opinion from someone who a lot of experience with kidney cancer surgery.  Though a 3cm mass , just over an inch, seems horrifying, that is still considered a small mass.  There are two issue which you need to discuss with the surgeon and then an RCC oncologist.  The mass, though small, may indeed be near blood vessels, which is ...

            3 hours ago view post
            • peggyznd has replied to a post on the message board

              Dear Linda, I cannot imagine the pain at losing a son, and then to find out that your husband has the same disease!  SInce there is very likely a familial connection with the kidney cancer, you may find some extra help through the National Institutes of Health.  They run special programs for family related version of RCC.  If it is hereditary or linked, then that may help determine the kind of medicat...

              3 hours ago view post
              • peggyznd has replied to a post on the message board

                Jdean, May I ask for clarification about your experience with Sutent?  Did you just now start it, but were previously denied it?  If this was shortly after you had your treatment with HD IL2, it may explain his earlier hesitation.  At that time, no one was sure how a post-IL2 patient would handle Sutent. I am not aware that Sutent in indicated for pancreatic cancer, but there may be some effect, as thi...

                3 hours ago view post
                • peggyznd has replied to a post on the message board

                  I am a survivor of metastatic (spread to lungs) RCC, now ten years.  My mass was 10cm, so volume wise, far larger than yours.  You can be pretty sure that this is indeed kidney cancer, and that your best option is to get it removed by surgery.  Whether you must have the entire kidney removed--mostly a matter of location, inside or outside the kidney--or have a partial nephrectomy, where some portion of...

                  Yesterday at 5:53 AM view post
                  • peggyznd has replied to a post on the message board

                    Whatever your opinion is in regard this discussion, you have been incredibly rude and insulting to the writer.  None of us this discussion needs to be treated that way. Simply put, please be polite.

                    February 14 at 11:15 PM view post
                    • peggyznd has replied to a post on the message board

                      Dear Kay, I certainly never implied that you were supporting use of pot, getting high or such.  My issue with that site is similar to your concern that people are taking advantage of the great fear we all rightly have about cancer.  Their goal is to sell their LED lights.  Ours is to help others with cancer, prevent what can be prevented, and help deal with the aftermath of any of these diagnoses. You...

                      February 10 at 6:17 PM view post
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