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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    Sheesh!  What an even more incredible story!  I have been doing some basic research in the literature about small RCC tumors, in the "got it all" size and treatment world, which recur up to 10-12 years later.  Too often, the patient, so relieved to be told that they need not worry, is just feeling confident again about their health, and the stuff pops up again.  It appears that there are some ccRC...

    November 22 at 2:45 AM view post
    • peggyznd has replied to a post on the message board

      That is probably the longest time till recurrence I have ever heard of.  Since the first was found at your very young age, I assume that was a Wilms' tumor, and wonder if there was a recurrence of clear cell kidney cancer or some other type.  Glad to know that Votrient is being helpful to you, and that you have the measurable reduction.  Like to hear about your pathology, and wonder if there is a conn...

      November 21 at 8:37 PM view post
      • peggyznd has replied to a post on the message board

        Dear Kay, What a way to find out that your husband has kidney cancer!  You must be in a state of shock, which makes it hard to take in all the information which is thrown at you.  The most important thing you can do is exactly what you are doing right now, getting the information and trying to make sense of it.  The reality is that there is cause to be concerned--those needs to be confirmed--that the...

        November 21 at 8:33 PM view post
        • peggyznd has replied to a post on the message board

          I am a ten year survivor of HD IL2. Do let me know if you need any extra information, if you have questions.  Assume by now that your mother may be in treatments.  I send my best to you and your mother. peggyzuckerman@gmail.com www.peggyRCC.wordpress.com

          November 19 at 9:46 PM view post
          • peggyznd has replied to a post on the message board

            Dear StillAlive, Of course you should take good care of yourself (and I didn't go to the dentist for three years, since it didn't seem worth my time, but that was seven years ago!).  And of course, we are all terminal, but absolutely unable, as is your doctor, to predict.  I would suggest that you get a second opinion on your situation, and see if there are unexplored alternatives to your situation.  I...

            November 19 at 9:38 PM view post
            • peggyznd has replied to a post on the message board

              Your doctor is correct in that general radiation treatments that might work for other cancers do not do so in kidney cancer.  HOWEVER, very highly directed and multiple beams of radiation can be used.  Think of a dozen tiny beams going to your mets, without doing damage to the surrounding area, but at the point where they all meet--in the tumor--they can indeed impact the tumor.  This is called Stereot...

              November 19 at 9:30 PM view post
              • peggyznd has replied to a post on the message board

                I am a ten year survivor of metastatic kidney cancer, thanks to high dose interleukin2.  I have a large library of credible medical articles, including a good number of IL2 files.  I also write a blog at www.peggyRCC.wordpress.com so that I can share information from lectures, conferences and so on.  You can also write me directly at peggyzuckerman@gmail.com and with that, I can send you articles which...

                November 19 at 9:21 PM view post
                • peggyznd has replied to a post on the message board

                  Mary, You will find more patients taking Torisel on http://smartpatients.com, as there are hundreds of patients. Just do a quick sign-up, and post your question.  Someone will give you practical advice.  Also, if you make a summary of your disease history, that can help, and also may find you a support group in your area. www.peggyRCC.wordpress.com 

                  November 19 at 9:12 PM view post
                  • peggyznd has replied to a post on the message board

                    I am aware of a number of cases of late recurrence of kidney cancer, and this seems to be increasing.  To some degree that is because people are finding the small tumors sooner, but cannot find/notice the super small tumors that may be hidden in the body for many years. You do not say that you have had a biopsy onthe liver to indicate that this is RCC, and certainly that needs to be done to ascertain exactly wh...

                    November 19 at 9:08 PM view post
                    • peggyznd has replied to a post on the message board

                      Lindsey, I have to agree with Rebecca.  Waiting six months in the face of many unknowns and the risks that seem implicit in the pathology report, and in light of your history, I would want to discuss the hysterectomy and any further therapy with an oncologist.   No doubt the OB GYN is concerned about keeping you able to have more children, and thus, his hesitation.  However, the fact that there is so ...

                      October 31 at 2:35 PM view post
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