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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    What a saga of this disease for your mother!  As I understand it from this post, she has not had a nephrectomy, but started all this with a tumor in her hip?  That meant the hip replacement, followed later by the mass in the abdomen, and subsequent surgery.  Nodules now in the liver and stomach lining--is there any discussion of using any laser type ablation on these mets?  Is she taking any of th...

    Yesterday at 4:58 PM view post
    • peggyznd has replied to a post on the message board

      I am always happy to talk about my HD IL2 directly with anyone, so will leave my email so you and I or your mother can really talk.  Naturally, I encourage people to consider HD IL2 if they are anywhere near such a center, and if they are thought to be good candidates.  In my case, I was generally healthy, although had been very anemic for at least 8 months, and post-surgery, that helped a lot.  About...

      Thursday at 9:39 PM view post
      • peggyznd has replied to a post on the message board

        The uruologist is probably correct, and although these masses can be biopsied, it can be difficult to get to the exact spot of concern, and the kidney could contain different cysts and/or tumors at the same time.  The fact that the thing grew would be enough for me to get it out.  With that you can then get a thorough pathology, on any and all of the removed kidney, as there may be a mix of tumors in a kidn...

        October 15 at 10:36 PM view post
        • peggyznd has replied to a post on the message board

          Dear Merry20, If you doctor has had you take these scans so frequently, he must have some particular concern.  Have you had another health issue, other than the pancreas nodules?  Since he has not  given you much explanation, but it monitoring you so closely, he has a reason to do so.  I would simply ask, "What are you looking for, and how do we know if this is a problem or not? How does this imag...

          October 12 at 1:07 AM view post
          • peggyznd has replied to a post on the message board

            If you are not now being seen by a kidney cancer specialist not just cancer specialist get yourself to a specialist. If you need advice to find someone with experience, go to www.smartpatients.com. That is a group of patients who have assembled a lot of good information very credible and can advise you when where in your area a specialist would be You should also ask for a review of your pathologyG because those odd ...

            October 09 at 3:41 AM view post
            • peggyznd has replied to a post on the message board

              Your brother is at a wonderful place in the city of hope. Thisis the most important thing you can know that they will bring everything they have to help him. Besides being excellent in their medical services.it is a kind and loving place that adds to the healing. I am being treated there for breast cancer and I've had previous experience. that should be some comfort to everybody and your family peggyzuckerman@gmail.c...

              October 09 at 3:34 AM view post
              • peggyznd has replied to a post on the message board

                So sorry that you have this scary information and a doctor telling you just not to worry about it for a while. As a minimum I would like to have a second opinion by a specialist in the field and not just a specialist looking at you but a specialist looking at the pathology. Are you close to an academic center who might specialize in something like this. The average gynecologist is just not going to be prepared to ...

                October 09 at 3:27 AM view post
                • peggyznd has replied to a post on the message board

                  Dear AnswerASAP, I understand that they can remove the fluid in the lungs a number of times, while the lungs slow down their making of this fluid.  Maybe it is time to get the doctor to explain the fluid build up and how long it will be to settle it down.  If it is related to the Sutent, or made worse by it, he may want to stop the Sutent for a short period.  Also since Sutent is often given 4 weeks on...

                  October 05 at 3:23 PM view post
                  • peggyznd has replied to a post on the message board

                    So sorry to hear than your partner has had progression of disease with brain mets.  Since he did respond earlier to Sutent, he may well do so again.  There are studies to support this.  Also it may be possible that he could received highly directed radiation to his brain mets; this is NOT whole brain radiation, which hits all the brain, and is not recommended in this case.  Do get some extra insig...

                    October 01 at 9:13 PM view post
                    • peggyznd has replied to a post on the message board

                      You are  wise to realize that taking some medications may preclude you from going into a trial.  That is not true for all trials, as some do indeed permit people who have already taken and failed other drugs.  I would suggest very strongly that you go tohttp://www.smartpatients.com, where you can ask your questions of a lot of experienced patients.  Also you should explain where you are being trea...

                      October 01 at 9:09 PM view post
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