peggyznd

peggyznd's Recent CancerCompass Activity

• peggyznd has replied to a post on the message board

  My reply may be a little late, and maybe by now you have found out more about your situation.  Sometimes the fear of the unknown in more devastating that the information which is always slower in coming!  I had Stage IV renal cancer, clear cell, and after high dose interleukin, have had a complete remission.  This cancer can come back,  and I wonder if that will happen to me, of course.  But...

  June 13 at 12:35 AM view post

• peggyznd has replied to a post on the message board

  While most chemo drugs are difficult to handle, they are NOT used solely as you state.  To imply that only end-stage patients get those drugs is wrong and potentially devastating to the patient.  Also, you likely do not know whether or not the husband in this discussion has had metastases or not.  There are many details not given about the disease, including an exact description. The best advice for t...

  June 07 at 2:15 AM view post

• peggyznd has replied to a post on the message board

  Since you have access to a computer, you should go to this link from the Mayo Clinic--always a source of reliable information.http://www.mayoclinic.com/health/drug-information/DR600413/DSECTION=side-effects   Assuming your husband's drug was Cisplatin, it does indicate that common side effects inlcud joint pain and loss of balacne, swelling of feet or legs, and less common is trouble in walking.  Some sid...

  June 06 at 6:51 PM view post

• peggyznd has replied to a post on the message board

  Are they finding any fluid which seems to cause the pain, or similar?  Have you gained a lot of weight?  Do you understand what the blood tests mean?  Do some comparisons which the latest bloods and the previous that you have no doubt done.  It is your right to have that information and you might feel more in control to review all that and then get y our questions answered accordingly.  Glad ...

  June 06 at 2:31 PM view post

• peggyznd has replied to a post on the message board

  You should determine the exact name of the chemo drugs and check and see if this could be a side effect.  Though the radiologist says that this is not due to the radiation, it is apparent that he is having a reaction to something unexpected.  Sounds as if he is having a response that must be looked at, perhaps fluids building and so.  Get some blood tests run and an appointment with a good general doct...

  June 06 at 12:55 AM view post

• peggyznd has replied to a post on the message board

  Rhys, Whereas Afinitor is more known for causing pulmonary problems, it is also possible that the infection is indeed not due to the meds, but to the weakness that is part of having metastatic disease.  In any case, you have to keep ahead of this and any other medical event and side effect so that you are able to stay on the meds as long as possible and as long as they are effective.  Just for the record, ...

  June 02 at 11:41 PM view post

• peggyznd has replied to a post on the message board

  Why don't you put your "why?" questions up on this board, and see if our combined information might help you tick a few more off the list?  You know that others have similar questions, or may not even know to ask the questions?  This is all a new language, and a new world, and we need one another to navigate it.

  June 02 at 4:46 AM view post

• peggyznd has replied to a post on the message board

  You are correct that the standard PET is usually not as good to image RCC, as most RCC is slow-growing, and the PET scan picks up "activity, i.e., its growth" in comparison to the surrounding normal cells.  Most important to all of this is to understand the pathology of your RCC, whether it is clear cell or papillary I or II.  This also helps determine the proper approach for treatment.  Be aware also ...

  June 01 at 5:34 PM view post

• peggyznd has replied to a post on the message board

  Rhys, I am very concerned that you seem to be having lung issues, since you have been troubled by that, and especially since Votrient can create more problems as a side effect.  You must talk to your doctor immediately, in my opinion, and may need to get your lungs looked at.  Each of the agents against RCC has its own unique side effects, and lung problems--a type of lung pneomonitis is one of them. &nbs...

  May 31 at 5:47 PM view post

• peggyznd has replied to a post on the message board

  Dear LindaSue, I think the fact that you went without recurrance of the cancer for 26 years is remarkable, and am curious if the stomach cancer seems to be RCC as well, or a different type.  There has been such advancement in RCC in just the last 6-7 years that any doctor is likely to be behind the learning curve on this.  There are new oral meds that might be helpful if the stomach cancer is proven to be ...

  May 30 at 8:07 PM view post