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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

     RugbyMom, Thanks for the proper and outraged response to the baking soda idea.  This kind of (fill in the blank) advice is the reason that so many patients are discouraged by their doctors from reading the internet and patient-to-patient forums.  Those of us who understand the disease, and/or the science one needs to counter cancer are obligated to help point out the crap from the good stuff.  ...

    Monday at 5:48 PM view post
    • peggyznd has replied to a post on the message board

      Glad to hear you have this kind of support, and should not underestimate the value of the support of your father and sisters.  Certainly you would want to help them in some way or another, were the situation reversed.  Your second opinion re: "resection would eventually be your only option" seems to indicate that you have a bit more time to get this sorted out before going straight into surgery.  I do...

      January 22 at 8:46 PM view post
      • peggyznd has replied to a post on the message board

        Solava, It is important that you not try to do all of this by yourself, and hope that you can find a family member or loved one who will read with you all these comments, listen to your concerns and if nothing else, determine if there is an urgent need for surgery.  Can it wait until you have all your questions answered?  Would the surgeon consult by email with one or more of the experts, or he is unwilling...

        January 22 at 6:24 PM view post
        • peggyznd has replied to a post on the message board

          Sounds as if you have had a good mix of diagnostic data, and will have to live with some uncertainty--not unusual in this world.  Do spend some good time reading about all of this, and writing down your questions.  It is nearly impossible to think at time, and having paper in hand--and taking notes--brings you some clarity.  Is there an EUS device/expert in Jerusalem?  That might be worth checking...

          January 22 at 12:32 AM view post
          • peggyznd has replied to a post on the message board

            Have you had complete imaging and testing as to the markers than can accompany the disease?  Again, if this surgeon is not an expert, is there someone with whom he can consult.  Seems you are still looking for a diagnosis, so I would want to know the full range of testing that can help refine the diagnosis.  Blood tests, other imaging, etc. 

            January 22 at 12:14 AM view post
            • peggyznd has replied to a post on the message board

              http://www.cedars-sinai.edu/Patients/Health-Conditions/Pancreatic-Cancer.aspx and www.pancan.org are two site you should visit to learn some of the basics about pancreatic cancer.  According to the above, it is really unusual to have pancreatic cancer in a person your age--but cancer does not follow all the rules.  In any case, you should get a second opinion. If the surgeon is NOT expert with pancreatic ...

              January 21 at 10:35 PM view post
              • peggyznd has replied to a post on the message board

                As a ten year survivor of clear cell RCC, with 100s of tiny mets in my lungs at the time of diagnosis, I take a great interest in this issue.  You do not seem to have an explantion of why the kidney tumor is not being removed, whether due to size or other complications.  Typically the removal of the tumor is the first step.  Also 17mm is really quite small, but that is was found means that he probably ...

                January 15 at 3:14 PM view post
                • peggyznd has replied to a post on the message board

                  Marcy, Thank you for that and your confirmation of the concern of the damage that in ill-informed statement can make.  Frankly, too many doctors just dismiss IL2 without any further discussion, so the notion is forgotten by the patients. My family may have a better understanding of my response to Il2, but they do try to protect me from their concerns as I had severe blood pressure drops.  I have just asked...

                  January 04 at 11:42 PM view post
                  • peggyznd has replied to a post on the message board

                    I have just responded to another of your emails, and am really distressed (MAD) to hear that your oncologist has taken that position.  The quickest way to describe IL2 is as a terrifically bad flu, and then mulitply it.  Fevers, chills, blood pressure swings, aches, absolutely wiped out, etc.  All of this is given in a hospital in a near ICU setting, and all the side effects just described are anticipa...

                    January 04 at 2:04 AM view post
                    • peggyznd has replied to a post on the message board

                      I am a ten year survivor, thanks to HD IL2, after having a large tumor removed and finding that my lungs were full of mets.  The original thought was that a patient who had Sutent might have some heart problems which would not permit him into an IL2 program.  That is no longer thought to be the case.  Moreover, there is  some emerging evidence that having Sutent prior to IL2 may be an advantage.&n...

                      January 04 at 1:53 AM view post
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