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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    The recommended dosage to start with Votrient is lower than the dose one may eventually be able to take.  Just go on the Votrient website to understand the dose, how it is to move up and all about the side effects.  Each of these drugs may have  their own side effects, and you need to discuss with your doctor very thoroughly what any other problems you mught have.

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    • peggyznd has replied to a post on the message board

      Typically, the patient needs to be off Afinitor or similar for about 4 weeks.  Too often, the side effects can be hard on the patient's health, so some time to recover is good. The side effects of HD IL2 are all expected, monitored and will diminish when the meds are no longer given.  Those side effects typically affect the heart and blood pressure, though fevers, chills, shakes, etc are also common, as is...

      March 25 at 11:48 PM view post
      • peggyznd has replied to a post on the message board

        Dear Amanda, I hope that your post-surgery recovery is in full swing, but do remember that the odd bad day will happen, and not to overdo it in general.  Glad to know that your tumor was a 3centimeter, as it is certainly better to find something early.  I am hoping that you have your pathology back, and that it is reviewed as might be needed by a specialist in RCC.  You are quite young to have RCC, so...

        March 25 at 11:43 PM view post
        • peggyznd has replied to a post on the message board

          I do have a number of articles about chromophobe in general but nothing re x rays.  You could write me at peggyzuckerman@gmail.com with your email and I can send you those articles.  If you do find something re the imaging issue, I would very much appreciate it. PeggyRCC.com

          March 25 at 2:25 PM view post
          • peggyznd has replied to a post on the message board

            I find this a bit unusual, but a radiologist could likely explain it to you, make a comparison between the CT and Xray.  If there was a time lapse, perhaps what ever was shown in the xray had resolved itself  For you piece of mind, talk to the radiologist or if there were two, ask them to talk to each other  This is your right, of course, and very smart to understand how your own disease might show up ...

            March 22 at 5:08 PM view post
            • peggyznd has replied to a post on the message board

              There are recommendations to START Votrient at lower dosages, moving in steps to the maximum 800mg dosages, depending upon how the patient tolerates this.  This is an important discussion for the doctor and should be done immediately.  Too often the initial dose is too much, and the patient goes off it completely--losing the chance to see if the cancer will respond--rather than starting at the lower doses, ...

              March 20 at 6:03 PM view post
              • peggyznd has replied to a post on the message board

                There are recommendations to START Votrient at lower dosages, moving in steps to the maximum 800mg dosages, depending upon how the patient tolerates this.  This is an important discussion for the doctor and should be done immediately.  Too often the initial dose is too much, and the patient goes off it completely--losing the chance to see if the cancer will respond--rather than starting at the lower doses, ...

                March 20 at 5:55 PM view post
                • peggyznd has replied to a post on the message board

                  Since you have had RCC, there is naturally a concern that these spots are recurrence of the cancer.  However, you have had CT scans--would any of these have included your chest, so that you can compare?  As a minimum, you need to get a CT scan with contrast so that you can really get the best possible look at the spots--an x ray is just NOT sensitive enough.  If the spots appear to be of any real size...

                  March 19 at 4:10 AM view post
                  • peggyznd has replied to a post on the message board

                    I had forgotton about emu oil, and it wondrous cures!  I do also think that keeping one's immune system up and happy is good, but that gives you energy to fight the cancer, take the meds, get to the scans, laugh at the dog and the kids, and live life as best one can. You might enjoy my blog at www.peggyRCC.com, which is intended to provide credible information in a more patient-friendly tone.  let me know ...

                    March 14 at 12:47 AM view post
                    • peggyznd has replied to a post on the message board

                      Jacki,  I had to laugh and be sympathetic about the "pissed off" comment by your mother, as I have a friend who has kindly said that to me a dozen times.  The next time she says that, I might smack her, so had to "deal with" the issues more directly rather than carry it around with me.  Being a mother, I can't advise you to do the same, but you can certainly quote me. My friend also is into alternativ...

                      March 14 at 12:19 AM view post
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