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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    Since PET scans measure the activity of cells, and cancer cells are GENERALLY more active than normal cell, the more aggressive growth pattern is the signal, by 'lighting up'.  Unfortunately, the cancer which is more slow growing, as is the case with most (though not all) kidney cancers, a PET is not very useful.  The first suggestion is to get a second read on the pathology of the biopsy or first bit of ca...

    Wednesday at 6:59 PM view post
    • peggyznd has replied to a post on the message board

      Jetsparkle, I understand the disaster that much cancer treatment can be, and think back to my own situation where the initial advice--post biopsy--was "Go get your breast removed and come back to me for more treatment".  I was sent to an abdominal surgeon, and figured he was NOT the right person.  Quickly to a cancer center, City of Hope, in the LA area, where I had a mastectomy, no further radiation or che...

      August 31 at 10:30 PM view post
      • peggyznd has replied to a post on the message board

        Cryoablation is commonly used and paid for by insurance for kidney cancers and others.  There are ongoing studies in using it in small breast cancers, and it is currently in use for small benign tumors of the breast.  A properly removed breast cancer does NOT necessarily then spread throughout the system through the lymphatic system.  In each mastectomy, a lymph node or several removed and immediately ...

        August 31 at 9:36 PM view post
        • peggyznd has replied to a post on the message board

          I am confused as to your thinking on the progression issue.  If there is a pattern established of some regular growth, or longer term stability, then the addition of a new med/agent followed by unexpected progression naturally would lead one to consider if that was caused by the new element. There are afterall, certain brakes on the growth of the cancer cells, some due to improved immune response, others to lac...

          August 31 at 8:16 PM view post
          • peggyznd has replied to a post on the message board

            Have you discussed the possibility of having the brain mets treated with high directed radiation--not general whole brain radiation?  THat can be highly effective, but does require special skills.  The Mayo people might be your best bet about this.  This is apparently a very tolerable treatment, and may open him up to both trials and other medications. peggyrCC.com

            August 26 at 8:58 PM view post
            • peggyznd has replied to a post on the message board

              Find a nephrologist who has experience in this.  The urologist is likely inexperienced in this, as it is rare.  Getting a kidney removed (I have only one) may be necessary, but at your young age, you should consider all the options.  I would research nephrologists who can help understand these issues, and with any eye to living until you are 85, not just focusing on the short term.  Find an academ...

              August 26 at 8:54 PM view post
              • peggyznd has replied to a post on the message board

                Sue, It is important that you understand that kidney cancer meds may or may not work with liposarcomas, despite the fact that liposarcomas can land in the kidney.  I do hope that you are working with an expert with liposarcomas, as the general oncologist may not have the expertise to deal with this. In the kidney cancer community, there are many types of kidney cancer, some of which respond to some degreee to S...

                August 26 at 8:45 PM view post
                • peggyznd has replied to a post on the message board

                  This research may be helpful in the long-run against some of the non-small cell lung cancers, of which there are several.  This may have no affect on any lung mets which come from kidney cancer.  The lung can get cancers from primary lung cancer, but can also be the site of metastases from many other tumors, breast and kidney as examples.   At best, this is early research, and as indicated, limited to...

                  August 26 at 8:38 PM view post
                  • peggyznd has replied to a post on the message board

                    Jcancom, You reference several things that are important for people to understand, especially about research as it is exceedingly complex. It must be accurate and reliable for it to have value.  However, the traditional manner of starting any lab study is with cells, not people or even mice.  Those cells come from cell lines, derived from tumors.  Those cell lines can differ, and may not always be the ...

                    August 26 at 8:31 PM view post
                    • peggyznd has replied to a post on the message board

                      Re Meech90's comment that PET scanning is very ineffective for RCC.  That is true in general, as RCC is most often fairly slow-growing, and it is the active growth which is measured by PET scans.  THere are RCC tumor which are unusually aggressive, and therefore might 'light up' with the PET scan, but a good PET scan can miss RCC tumors.  CT scans, bone scans and brain scans may be in order for people....

                      August 26 at 3:02 PM view post
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