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peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    Dear Lawrence, Are you describing the ARGOS-003 trial in which the patient's tumor is used to create a type of vaccination?  This is then given with Sutent or similar and then compared to the patient group given Sutent alone?  There is a very recent review of this trial, which shows mixed results on a small group of patients.  If you have the trial number or more info, I could help describe this more ...

    Wednesday at 10:06 PM view post
    • peggyznd has replied to a post on the message board

      Dear Larry, Glad to know you are at MD Anderson, which is certainly the right place for kidney cancer.  Quickly, as to the Soc Sec issue, that is more relevant for the people who are NOT of typical Soc Sec age, as metastatic RCC can be a proper reason for receiving disability payments from Soc Sec.  The best answer re that might be through the hospital's social services unit, as they have likely dealt with...

      Wednesday at 4:07 PM view post
      • peggyznd has replied to a post on the message board

        Susan, I know you are quite worried about the possibility of your surgery, and want to reassure that it is a quite manageable experience.  There may be real advantage to NON robotic surgery, as it can be faster in terms of time spent under anesthesia, and can also let the surgeon see the complete site of the tumor. In my case, my large tumor had shifted the kidney toward the navel, and seemed to be going into t...

        April 08 at 4:56 PM view post
        • peggyznd has replied to a post on the message board

          "Don't these guys talk to each other?" is the question that so many patients might ask, especially with late diagnosis, errors in treatment, medications that interfere with other meds.  The simple is answer is, "No, they do not talk with other, and may not even know that there are other doctors involved."  The ortho guy is worrying about bones, the diabetes person about that, and so on.  The patient i...

          April 03 at 11:29 PM view post
          • peggyznd has replied to a post on the message board

            Surgery has always been considered the first line of treatment when it was sensible to do so.  Naturally until IL2 in 1992 and then the long wait for more drugs in about 2006, there were few options.  Radiation is typically ineffective at the lower doses that work with other cancers, but more recently the high dose, more directed types of radiation can be helpful, even if just for pain relief.  This ha...

            April 03 at 1:11 AM view post
            • peggyznd has replied to a post on the message board

              I would be talking to a medical malpractice attorney right now, while reminding all other readers that each patient should be given reports of the imaging and tests immediately after each is performed. It is important to get copies of the actual scans for your own records as well; sometimes those thing mysteriously disappear. It is not unheard of for the doctors to ignore something that does not relate to their assum...

              April 03 at 12:52 AM view post
              • peggyznd has commented on a news story

                Since I am not a doctor, I can ask quite freely why in the world anyone who has terminal cancer, and is either dealing with that reality and/or taking some sort of medical therapy would EVER be given or encourage to take statins.  It must be nearly impossible to have any real study which can explain the interactions between any of the statins given and any of the chemo-related medications. Where is common sense ...

                April 01 at 5:01 PM view news story
                • peggyznd has replied to a post on the message board

                  The recommended dosage to start with Votrient is lower than the dose one may eventually be able to take.  Just go on the Votrient website to understand the dose, how it is to move up and all about the side effects.  Each of these drugs may have  their own side effects, and you need to discuss with your doctor very thoroughly what any other problems you mught have.

                  March 29 at 12:13 AM view post
                  • peggyznd has replied to a post on the message board

                    Typically, the patient needs to be off Afinitor or similar for about 4 weeks.  Too often, the side effects can be hard on the patient's health, so some time to recover is good. The side effects of HD IL2 are all expected, monitored and will diminish when the meds are no longer given.  Those side effects typically affect the heart and blood pressure, though fevers, chills, shakes, etc are also common, as is...

                    March 25 at 11:48 PM view post
                    • peggyznd has replied to a post on the message board

                      Dear Amanda, I hope that your post-surgery recovery is in full swing, but do remember that the odd bad day will happen, and not to overdo it in general.  Glad to know that your tumor was a 3centimeter, as it is certainly better to find something early.  I am hoping that you have your pathology back, and that it is reviewed as might be needed by a specialist in RCC.  You are quite young to have RCC, so...

                      March 25 at 11:43 PM view post
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