Loading...

peggyznd's Recent CancerCompass Activity

  • peggyznd has replied to a post on the message board

    Just a fairly quick review of some sites indicate that you might be able to get a transvaginal ultrasound paid directly by you to a doctor's office--hospitals are always more expensive--for about $350.  If insurance is the issue, ask the provider for the "cash" price, which does not involve your insurance agent.  Often this gives the provider more actual dollars without the paper work, and gives you the ser...

    September 25 at 5:44 PM view post
    • peggyznd has replied to a post on the message board

      The CA-125 is done through a blood test, and that can likely be done through an online service, if your doctor is not willing to write a script for that!  This makes no sense to me in light of your family history.  Just because there is no recommended standard screening for a this relatively rare cancer in a woman your age does not mean that a properly directed screening--in light of your family history--is...

      September 24 at 11:50 PM view post
      • peggyznd has replied to a post on the message board

        Seeing an expert at an academic center would be my advice.  There may also be great value in getting a needle biopsy of the cyst/mass.  However, get that done where they have lots of experience, and of reading any pathology. Do put your story on www.smartpatients.com ( you will have to register, but very simple) and ask that group of very knowledgeable patients for RCC docs in your area.  Someone may ...

        September 24 at 11:00 PM view post
        • peggyznd has replied to a post on the message board

          That is a terrific story and reassuring to me, as I read too many times of less experienced docs changing meds without logical reasons.  For example, if the side effects with Sutent get too difficult or are poorly managed, rather than shifting to a 2 weeks on, 1 off vs the 4on/2 off standard, many patients are pulled from Sutent.  I also was treated at UCLA following my surgery, where I received high dose ...

          September 24 at 2:59 PM view post
          • peggyznd has replied to a post on the message board

            Assuming that you were on Sutent prior to your surgery because it would have been difficult to do the surgery otherwise, and that Sutent was successful as you describe it, I wonder at the thinking of your doctor.  Sutent must have been successful, and the side effects tolerable.  Did all the mets disappear before the surgery? How long has it been since surgery and since you had your last scan?  This is...

            September 24 at 3:59 AM view post
            • peggyznd has replied to a post on the message board

              Very glad to hear that you are getting on the road to recovery.  The pathology report is very important, and you should have heard by now, it would seem.  Do keep a copy of that and all the imaging which you have had and will continue to have.  The doctors are generally correct in that a small tumor completely removed can be watched with less urgency than a larger tumor.  However, one of the hallm...

              September 17 at 12:59 AM view post
              • peggyznd has replied to a post on the message board

                Sounds as if you are being well monitored, which is important.  I have just heard of a friend of a Harvard doctor who had a nephrectomy, was monitored properly for five years, and then   was released from followup. About four years later, he felt bad, unexplained things, and was found to be metastatic, and you know the rest.  Monitoring would have made a difference there. Peggy Z

                September 16 at 6:18 AM view post
                • peggyznd has replied to a post on the message board

                  Dr TAnnir is very well-respected by those who have this more unusual form of kidney cancer.  I am sure you can find some person through www.SmartPatients.com and their kidney cancer group.  You can listen and read a lecture he gave a patient group two years ago on my blog at www.peggyRCC.wordpress.com, and look for Tannir.  He is much beloved, and the go-to guy.

                  September 14 at 1:50 AM view post
                  • peggyznd has replied to a post on the message board

                    You can read and listen to a lecture about the side effects--which could well include shrinking your tumor!--at my blog www.peggyRCC.wordpress.com.  Look for Dr. Hutson's lecture from a kidney cancer patient forum at MD Anderson in Texas.

                    September 14 at 1:47 AM view post
                    • peggyznd has replied to a post on the message board

                      I second this advice to be seeing a specialist, and not just for the cancer, but also for dealing with the side effects.  There are always some side effects, and some might even be thought of as proof that the meds are working in you,  I also recommend going to www.smartpatients.com, and asking for a referral to a doc in your area.  Also I have a blog t www.peggyRCC.wordpress.com which cn be an educati...

                      September 14 at 1:45 AM view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About peggyznd

                      Patient

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.