pengi

pengi's Recent CancerCompass Activity

• pengi has created a new message board discussion

  This is probably a silly inquiry, but I wanted to see what other survivors have done. Go figure that when I have radiation treatment, I have to update my state ID and passport before my hair has a chance to grow back. Has anyone run into this? Did you just wear a wig?I have a couple of wigs, but they look nothing like my natural hair. I've already gotten the state ID done with one of my wigs, but I'm more nervous abo...

  February 13 at 5:21 AM view discussion

• pengi has replied to a post on the message board

  Sounds like you've been through a long rollercoaster with this. I will have to agree with Shariv.... embracing a plant-based diet with no processed sugar has shown to be effective in my dad's and my cases. My dad is a oligo-astrocytoma grade IV survivor of 17 years who has been stable the last 16 years (after one surgery and 8 months PCV chemo), and he currently runs marathons. I have been through surgery, 2 years of...

  February 11 at 5:02 PM view post

• pengi has replied to a post on the message board

  Phoff - That is wonderful news! I also have similar news. I finished 33 doses of radiation on 1/8, and my 1/29 MRI showed that the tumor shrunk significantly. I couldn't be happier as this is the first time I've heard it's smaller (other than from surgery). This is also huge because there were a lot of tumor cells mixed with healthy cells in my motor cortex, and they were unable to remove them surgically. Now I just ...

  February 11 at 4:26 PM view post

• pengi has replied to a post on the message board

  Kitty - An oligo-astrocytoma is mixed. It very well may start off as an oligo, though I'm not sure. When I was diagnosed, the rest of my siblings went for MRIs to be on the safe side. Also, our family participated in a study called Gliogene, where researchers are trying to find any familial connection to brain tumors. So far they still haven't found anything.  - http://www.gliogene.org/ Phoff - Good luck this w...

  December 03 at 7:50 PM view post

• pengi has replied to a post on the message board

  I also would like to note that since my recent surgery, I've had more tingling and tremors in my left leg/foot. There were 2 times I was not able to squeeze my left hand (fine motor activity), but it only lasted a couple minutes. My Keppra was increased to 1000mg in the morning and 1250mg in the evening. I'm a patient of Dr. Paleologos in Chicago. She's very good, and specializes in Oligodendrogliomas. She claims to ...

  December 01 at 6:59 PM view post

• pengi has replied to a post on the message board

  Hi Kitty, I just shared my story on another thread about Oligos. I just saw your post and joined this site, so I will have my profile updated when I can. I've now had 2 crainiotomies, 2 years of high-dose Temodar and now I'm doing radiation with the low-dose Temodar. Similarly, my Oligo is also located in the right parietal lobe and affects mostly sensory. A lot of the tumor is mixed with healthy cells in the motor ...

  December 01 at 6:53 PM view post

• pengi has replied to a post on the message board

  It is pretty empowering to hear the stories of all of your strong-willed fights, so I'll contribute my own story (unique in some ways and similar in others). Early 2008 I went to the doctor because I heard a pulsating whooshing noise in my ear. Doc brushed it off because I was a healthy 25 year-old girl. After I was armed with good health insurance, I went for a visit to the ear specialist in December 2008 with the ...

  December 01 at 6:30 PM view post

• pengi has replied to a post on the message board

  Hello Miss Kitty Cat... I'm a 29 year-old girl living with an a grade III oligo. I've had it for 4 years now, been off and on treatment and I'm doing well. I'm happy to answer any questions you have... by now I'm practically an expert on the darn thing.

  December 01 at 5:11 PM view post