perrry

perrry's Recent CancerCompass Activity

• perrry has created a new message board discussion

  I have had this NHL for 20 months since original finding.  Have been through Retuxmab treatment to no avail.  Am using naltraxone now and am interested in any other holistic treatment.  What is cellect supposed to do?

  August 26 at 2:19 PM view discussion

• perrry has replied to a post on the message board

  Beth, I have B cell Lymphoma too.  Diagnosed in 12/10  I have had 10 months of e retuxmab treatments to no avail.  Have started on low dose naltraxon now.

  March 31, 2012 view post

• perrry has replied to a post on the message board

  I have stage 4 lymphoma.  Have been thru a year of retuxmab treatment.  Was absolutely misrable, lost 30 lbs, no energy, no strength, metallac taste in mouth, nausa.  A dietician prescribed supplements.  Lost metal taste, nausa, appetite returned.  I am going on to naltraxon treatment now to avoid more chemo.

  March 22, 2012 view post

• perrry has replied to a post on the message board

  I have lymphoma and have had a year of retuxmab treatment.  Lost 30 lbs and felt generally misrable, no energy, lost 70% of strength.  A dietician prescribed supplements for the gut and the metalic taste has gone away.  Appetite has improved as well.  No nausa exists now.

  March 22, 2012 view post

• perrry has replied to a post on the message board

  I have the same cancer diagnosed in dec of 2010.  Have been treated with retuxmab for 10 months, lost 30 lbs have had terrible side effects and am now waiting on oncologist to allow naltraxone treatment.  I have started supplements 3 weeks ago and have had very good results.  Can now eat, lost metallic taste and am going to gym to try and gain back some muscle tissue. My NHL is stage 4.  Before su...

  February 16, 2012 view post

• perrry has replied to a post on the message board

  Sheila, I have a pill form for nausa, but have not taken many.  My rash covered my chest, dermatologist priscribed a ackclavar, herpes type drug that eliminated it.  My knees and elboes hurt.  A ruematologist has priscribed a steriod for that.  My hip joints were very painful got two steriod shots by pain and spine doc thats over for the time being.  spend a lot of time with doctors.  T...

  November 18, 2011 view post

• perrry has replied to a post on the message board

  I have the same thing U have b cell nhl, have been on chemo rituxan for 9 months, have lost 25 lbs due to nausha but have taken only ensure for supplements.  Weight has stablized for last 4-5 months.  My doc has never mentioned supplements.  I have had lots of side effects, such as bursites in knees and elboes, terrible chest rashes, pain in hips,etc.  In all of these events my doc says she never ...

  October 21, 2011 view post

• perrry has replied to a post on the message board

  get a second opinion, fire your doctor

  September 29, 2011 view post

• perrry has replied to a post on the message board

  Thanks for the info.  The rash turned out to be a shingles type and medication has resolved that.

  September 01, 2011 view post