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phyllischarles's Recent CancerCompass Activity

  • phyllischarles has replied to a post on the message board

    I been off site for a little while I'm having trouble with the advastin it did not work the tumor has started to grow again now I'm doing clinical trial of double radiation and infusion treatment my legs and back hurts is that normal after a few steps

    March 27 at 2:21 AM view post
    • phyllischarles has replied to a post on the message board

      Thanks this was insightful  

      December 15 at 9:10 PM view post
      • phyllischarles has replied to a post on the message board

        I am so sorry that we have not been back on this site for awhile.  Its been almost a year but I can't say enought about the U of M Team.  From the very first visit; they took us off most of the medications and treatment that Beaumont had us on and started their own course of treatment.  My husband began feeling better right away.    Please contact the U of M if you haven't already. ...

        December 14 at 5:47 AM view post
        • phyllischarles has replied to a post on the message board

          Iim glad to say that since our last post; that we did indeed find a NO at the University of Michigan.  Thanks everyone!  Charles has had his third surgery November 6th and is 13 months out.  He also joined C.Y.O.C. (Cure Your Own Cancer) and has added Hemp Oil to his cocktail of Natural Remedies.  He has been feeling GREAT!  The doctors had thought that he would not be able to walk after this...

          December 14 at 5:42 AM view post
          • phyllischarles has replied to a post on the message board

            my husband just started having seizures again after the removal of his 2nd tumor.  Before surgery he was on 1000 mg of keppra now he is on 4000 mg of keppra in additiion to a new drug vimat along with ativan.   he is still having very slight seizures or tightening on one side of his body.  He also claims that he just feels different now. Really tired and bad mood swings.  His surgery was only 2 we...

            July 10 at 6:35 AM view post
            • phyllischarles has created a new message board discussion

              The NO decided to start trying to decrease my husbands decadron he was taking 16 mg a day. now taking 14. But he has been having bad headaches since.  we see our NO again on the 29th.  Has anyone else experiecned increase in headaches when trying to back off decadron?

              April 22 at 5:00 PM view discussion
              • phyllischarles has created a new message board discussion

                Counting time is the worse!!! Everytime I realize that they gave him 1 year to 18 months...I always count from the month I'm currently on and say to myself "one year" from now...but in actually "IF" the doctors are right October is only 6 months away...I still try to believe he will probably outlive me, if he continues to take his meds.  I get so angry when he misses his doses! Not because he forgot but bec...

                April 07, 2013 view discussion
                • phyllischarles has replied to a post on the message board

                  University of Michigan Have tow of the TOP NO in the Country.  We switched to them a few months ago and have had a lot of success.

                  April 03, 2013 view post
                  • phyllischarles has replied to a post on the message board

                    My husband takes Zofran and pepto bismal tablets.  The pepcid and prilosec made him HAVE heartburn terribly.  He takes these one hour before the temodar and has had no more nausea or stomach pain,

                    March 22, 2013 view post
                    • phyllischarles has replied to a post on the message board

                      OH HOW TRUE, HOW TRUE..WE SPENT THE FIRST SEVEN WEEKS WITH THE BEAUMONT TEAM.  ONE THING AFTER THE OTHER.  AFTER SWITCHING TO UNIVERSITY OF MICHIGAN  AND THE NO THERE ADJUSTING HIS MEDS; HE IS DOING MUCH BETTER.  WISH WE WOULD HAVE STARTED OFF THERE.  GOOD LUCK TO YOU

                      February 19, 2013 view post
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                      About phyllischarles

                      Caregiver, Patient
                      Brain Cancer
                      After Treatment, Alternative Treatments, Cancer Treatments

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