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pineconepeg's Recent CancerCompass Activity

  • pineconepeg has replied to a post on the message board

    I read all of the informative and encouraging info, but I just don't know how much longer I can do this.  I am a burned out care giver, and I just didn't think it would get this bad.  My husband is 4 months post treatment.  He has lost about 80% of his salivary glands, so his mouth is very dry and uncomfortable.  It dries out fast when he tries to talk, so he tries to talk without opening his mout...

    October 03, 2012 view post
    • pineconepeg has replied to a post on the message board

      Praying is always good.  I know it gets very confusing for the patient when communication breaks down between the doctors. I will keep you in my prayers.  May God bless you with peace.

      August 19, 2012 view post
      • pineconepeg has replied to a post on the message board

        My husband is going through the same thing.  You get diagnosed, it's hell.  You get treatment, it's more hell, but you think it's going to end soon, and then it drags on. Test after test, symptoms, infections, medications, and more tests.  The entire spring and summer has gone by without us hardly noticing because we're so tangled up in this mess.  I hate it, but I won't give up and I won't quit.&...

        August 17, 2012 view post
        • pineconepeg has replied to a post on the message board

          My husband is being treated for tonsil cancer.  It's a bad cancer to treat, but it is survivable.  My husband didn't have his tonsils removed, just biopsied, and then he had chemo and radiation.  If you search "squamous cell tonsil cancer" on this site you'll find some great info. Good Luck.

          August 17, 2012 view post
          • pineconepeg has replied to a post on the message board

            He has had radiation and chemo.  There was a spot on his lung on the last cat scan.  they will do a PET scan at the end of the month.

            August 17, 2012 view post
            • pineconepeg has created a new message board discussion

              My husbands ENT saw him today and suspects that his cancer is reduced, but still there.  They are going to do tests, and may  have to do surgery and possible more chemo.  Did anyone else have this?  I feel like this night mare will never end.

              June 28, 2012 view discussion
              • pineconepeg has replied to a post on the message board

                Maddy, My Mom died last year.  I miss her like crazy.  I know she wouldn't want me to be sad, but it's hard not to be.  Being a teenager is hard, too.    You were lucky to have such a close relationship with your mom. Maybe you have an aunt you can talk to, or your Moms best friend?

                June 28, 2012 view post
                • pineconepeg has replied to a post on the message board

                  Lisa,  During my husbands treatment we actually asked friends to only email or call.We didn't want anyone coming to the house because the immune system is so compromised during treatment.  You just don't want to risk them getting anything to set them back or cause complications. It's very hard to watch someone you love go through this.  You just have to believe that it's temporary.

                  June 28, 2012 view post
                  • pineconepeg has replied to a post on the message board

                    Quincy, I think you should get a second opinion.  Since your GP is retiring you'll be needing a new doctor anyway. If you know anyone who works in a hospital ask them who they reccomend.  When you work with alot of doctors you get afeel for who is best at what. God Bless

                    June 27, 2012 view post
                    • pineconepeg has replied to a post on the message board

                      When my husband was first diagnosed he did not want me to tell anyone.  He did not want to discuss it until he had come to terms with having cancer. Many times when you tell someone close to you your bad news you end up consoling them rather than them consoling you, and my husband wanted to avoid that.  It was difficult for me because I wanted the support of our friends, but it was not my news to share...

                      June 27, 2012 view post
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                      About pineconepeg

                      Caregiver
                      After Treatment, Cancer Nutrition, Cancer Treatments, Chemotherapy, Emotional Support, Lifestyle, Radiation, Side Effects, Surgery

                      I am respiratory therapist whose parents both died last year, my Mom from alzhiemers, and my Dad from colon cancer. Now my husband is fighting tonsil cancer. My children are grown, and I thought at this point in our lives we would be relaxing and having fun, not stocking up on nitrite gloves and Jevity.

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