One patient with glioblastoma still alive nine years later
Hi, I also had eccrine cancer on the scalp but I had an additional characteristic of it being mucinous which is another rare form to this "rare" cancer. I am interested in looking into my pathology to see about the p63. I also had the 2 surgeries to clear the margins. My experience sounds very similiar to your situation, just like doing most of the research myself. I am 3 years out and have ha...
I had it on my scalp for a couple of years also. They kept telling me it was just a cyst & it was "nothing" to worry about. I had it removed in 2009. The best advice I can give is be persistent with the care & follow up. It is best if you can get to a big cancer center because it is so rare. What kind of follow up have you had?
I was diagnosed with a rare mucinous eccrine carcimoma found on my head. There is very little information on this type of cancer. Looking for more information.
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