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ravirajagopalan's Recent CancerCompass Activity

  • ravirajagopalan has replied to a post on the message board

    It is probably worthwhile trying a clinical trial.I have seen vaccine trials where they give Avastin concurrently - that might be the safest option. We opted for a dendritic cell vaccine trial - tumor recurred. Mymy wife is on Avastin now after surgery.

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    • ravirajagopalan has replied to a post on the message board

      In my case, my wife isoOn my medical insurance - so cannot afford to do that. She has been a stay at home wife and mom - so does not have enough years of work to get social security disability. Si I think I have to keep my job.... Staying at home is not really an option.

      April 12 at 4:13 PM view post
      • ravirajagopalan has replied to a post on the message board

        For recurrence, check if UCLA has a DCVAX trial. Good luck, Ravi

        April 02 at 1:27 AM view post
        • ravirajagopalan has replied to a post on the message board

          Hi Rylee, she was in the phase 1 Immunoquimoid trial for recurrences.   Past data shows that DCVax worked well. I believe they have a paper that showed good survival rates for GBM patients in a trial a few years back. Here is a link to a presentation on this.   http://www.cedars-sinai.edu/Patients/Programs-and-Services/Neurosurgery/Community-Education-Programs/Documents/8-Yu-Cancer-Vaccines.pdf   ...

          March 25 at 6:56 PM view post
          • ravirajagopalan has replied to a post on the message board

            My wife participated in the vaccine trial at Cedar Sinai. It was a phase 1 trial. Same as DCVAX - they jaegers the tumor and dendritic cells and make a vaccine. 3 vaccine shots were given. Cedars has been doing dendritic cells for GBM since about 2000.for my wife I think the tumor started growing before the first vaccine was given. Good luck to all of you. I still believe this is the most promising trial. Just did...

            March 24 at 1:09 AM view post
            • ravirajagopalan has replied to a post on the message board

              My wife went through the dendritic cell trial for recurrence in October at Cedar Sinai. This is similar to but not exactly the same as DCVax, which refers to the vaccine made by Northwest Biotherapeutics.  I believe the trial is a good one but did not work for my wife. She had a second recurrence and had surgery again.   From data, it appears that this trial is more effective for initial diagnosis compare...

              March 22 at 1:09 AM view post
              • ravirajagopalan has replied to a post on the message board

                Thanks a lot for the shop names and locations.

                March 13 at 8:06 PM view post
                • ravirajagopalan has replied to a post on the message board

                  Can you give the names of some stores in San Jose?

                  March 13 at 4:53 AM view post
                  • ravirajagopalan has replied to a post on the message board

                    Abhi Robin, my private replies are not getting through. One option - can u send me an email at my personal email if you done mind? Email ID is: first name last mame at yahoo.com. Regards, Ravi

                    February 18 at 5:33 AM view post
                    • ravirajagopalan has replied to a post on the message board

                      Hi Sarah, agree with you completely regarding aggressiveness of treatment. Giving standard therapy (radiation+ temador followed npby Temador) works for a litte while and then in a big majority ther is a recurrence. Then if possible second surgery followed by aggressive treatments. I think the right time to be aggressive is right after first surgery to get ahead of the tumor if possible. Would be easier ten than after...

                      February 04 at 3:47 AM view post
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                      About ravirajagopalan

                      Brain Cancer
                      Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Hormone Therapy, Radiation, Spiritual Support, Supplements

                      My wife was diagnosed with GBM this past September. She had a siezure on September 15. MRI showed growth in the brain. Surgery was on Sept 27. She has undergone her round of radiation + chemo and is beginning her round of adjuvunct Temador. Hopefully the treatment will be effective.

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